Peptide Injections Anyone?

Discussion in 'Fibromyalgia Main Forum' started by Mikie, Feb 12, 2011.

  1. RadioFM

    RadioFM Active Member

    Hey Jam,

    Thanks for the great info and sharing your thoughts. I have been researching this topic and I feel that each person may need custom testing to find out which peptides are needed to regenerate the body's defective proteins.

    Also, we need ATP for cellular regeneration. We could possibly add in RNA, Methylation & Mitochondria supportive supplements to this treatment plan as well.

    Radio: GcMAF makes the peptides..

    (commercial supplement website URL deleted by moderator)

    Last edited by a moderator: Jun 8, 2014
  2. Sick Songbird

    Sick Songbird Member

    I am hoping this works, my iPad was not allowing this.

    I was on these shots for 4 years at $300 a shot. I did fabulous on them for 8 months and then all hell broke loose.

    I have CFS and Fibro with Sjogrens and CVID.

    After going off of them, I cannot seem to not do them anymore. It's like my body can't function without them. The cost is too high. My pain is now through the roof. It was never good on them, but now it is so much worse.

    Here is something I also noticed about them; they took away interest. My interest in life waned. My specific shot was for food allergies and that was helped but interestingly, while on them, I became a Celiac and milk intolerant completely.

    My food allergies are not too bad anymore, but my pain is through the roof. I am contemplating going on them again for pain relief, but I still had pain. But, I can't stand the thought of the price and the fact that they made me feel "DEAD." I had no desire at all.

    Who wants that?

    We don't know enough about these shots and the long term affects. I am unhappy that they didn't continue to really work for me after 8 months and what exactly did it do? My doc would never really explain that. I didn't like that, either. I need to understand...what is this?

    But, I did it for 4 years due to desperation. I am glad I did it and not so glad all in one. It's too expensive and I never had the benefit that Mikey had.
  3. Sick Songbird

    Sick Songbird Member

    By the way, my doctor says that the main doc in Germany or Spain who does not getting peoples blood work back to them until a year later, to tell them which shot they need exactly. This totally baffles me.

    Are you all getting your bloodwork back before a year? I live in PA. I am having it done here, but my doc is saying it's nearly impossible. Is he full of it, or what is going on?

    I would love to do a shot for pain.
  4. LTPallergy

    LTPallergy Member

    Thank you so so much for your story- it's important to have a general knowledge of the therapy, good and bad feedbacks are both appreciated- I'm trying to create on Facebook a SAM Group - It would mean a lot if any of you guys on here would be interested- we can potentially help other people and people on the therapy at the moment- since as you know there isn't much info available anywhere- even better if we are spreaded around the world - I am from the UK and I am looking for docs who could administer this closer to me. Although I ended up going to the US for the first shot..I so far had huge improvements- but you Sick Songbird are reporting of decresed intest in life- that sounds scary. I guess if you are doing it for food allergies you are using PA?- pls guys if you are interested in the group let me know-
  5. 49fiori

    49fiori Member

    I do these injections in Europe, SAM-AL for my allergy and they work perfectly. I am on my 5th injection now.
  6. 49fiori

    49fiori Member

    Are you sure about this? I can contact Oxford University and they will tell me the names of the doctors who administrate these injections? I am not really sure about this. I think these injections have nothing to do with Oxford University. Let me know please. Thanks.
  7. Mikie

    Mikie Moderator

    I can only tell you what my doc has told me. Isn't it worth a shot, no pun intended.

    Love, Mikie
  8. 49fiori

    49fiori Member

    Are you still using them and are they helping you? I got my allergy injection SAM-AL and I immediately felt better, I am now going for my 4th, but they seem to last about 3 weeks and then again my allergy kicks in.

    Do you know where the specimen is manufactured? Do you know how to the doctors in America are selling it if it is not FDA approved?

    Thanks Mikie!
  9. 49fiori

    49fiori Member

    Also, please who is your doctor? Can you share his details? Thanks!
  10. Hello, I am new in this forum. I live in Fort lauderdale, Florida. I have been trying to find peptides therapy to treat different pathologies, specially the autoimmune and degenerative ones, here in the US for a long time now but I can't find anything. My father has been working with peptones with a high concentration of peptides for more than 40 years back in Argentina. They have been very successful treating all kind of pathologies back home. Some doctors even go from Mexico to get these products to treat their patients. There are a few labs in my country, being my dad's lab one of them. I am very surprised that this kind of therapy is known very little here in the USA. I am very glad I found this forum and realize that actually people use this kind of therapy (Complementary Medicine, designation back home) I never heard of the application of peptides through injection , but I found it very interesting reading this forum. Has anyone tried this therapy in the form of capsules? if so, could you share?

    Best Regards

  11. Mikie

    Mikie Moderator

    The peptide sera is made in England at the lab used by Oxford University. It doesn't need refrigeration and is shipped to my doc, Dr. David Gomeringer, 1-239-768-5544. He is located in Fort Myers, FL. There are only about 25 docs in the U.S. who do the peptide injections. The FDA has approved them but insurance doesn't pay for them. The FDA insists that they be called, "Amino Acid Solution Injections." Providers must use this in lieu of peptide injections.

    Each person is different. The injections helped a lot for quite a while but I've been in a bit of a remission lately. I got one booster shot but could use another. If I could afford it, I'd get them regularly and, I believe, I would feel much, much better. The older a person, and the longer that person has been ill, the more injections it takes to get rid of the symptoms. The injections are not a cure but, if the symptoms are gone, it's the next best thing. There are no apparent side effects of the injections.

    Good luck.

    Love, Mikie
  12. Binkyboo

    Binkyboo Member

    I had my first shot 2 1/2 weeks ago with Dr. Gomeringer and experienced some issues. Has anyone else had intense muscle cramping after the first injection, especially so with the legs and feet? Also, were there any of you that experienced a butterfly flush on their face the next day? I feel like I am experiencing continuous growing pains in my feet and legs. It's so uncomfortable! :eek:
    evamamacita likes this.
  13. evamamacita

    evamamacita Member

    Hello I am new here, but I have been coping with RA for 24 years, since I was 14!!! I am so interested in the peptide therapy, I've read a lot of the older post, Mikies especially and I'm so excited. Is it still helping you Mikie? Wasn't sure what u meant by remission? I can't believe this, is available in the US, I was planning to go to Mexico! Pinch me if I'm dreaming, is this too good to be true?:)
  14. Mikie

    Mikie Moderator

    Hi, Everyone,

    Binky, I'm so sorry about the side effects. The minute they tell you there are none, there is always one or two people who prove that wrong. I hope these side effects will go away and you will feel better.

    Eva, I am soooo sorry; I meant to say "relapse" instead of remission. I've been in a really stressful situation and that isn't helping me. I believe the peptide injections continue to help me but, every now and then, I try to get a "booster" injection if I feel myself slipping backward. We are all different and the effectiveness of these injections differs from patient to patient.

    Good luck to everyone who is trying this treatment.

    Love, Mikie
    evamamacita likes this.
  15. RitaF

    RitaF Member

    Dear, dear Mikie, You keep keeping on for which I am very thankful. I know all too well that we "ain't like we used to be." I am back, maybe, for at least this question:

    Does anyone have a list of Drs. who do peptide therapy in the U. S. and where they are located?

    I had some experience w/ a clinic in Houston in 2013 but don't know their present status.
    evamamacita likes this.
  16. RitaF

    RitaF Member

    SIDE EFFECTS - I was once told that side effects are good in that they show that SOMETHING is happening. The worst response is no change. Feeling something new means something, maybe?
  17. evamamacita

    evamamacita Member

    Hey wanted to let you all know I found another Dr who does the Amino Acid Injections, Dr Wichman at Advanced Rejuvination Institute in Georgia, they're # is 770-232-7883, website is advancedrejuvinationinstitute
    I do not know specifics on their individual process or which amino they use, will let you all know more when I find out! I'm looking for a Dr as close to Asheville North Carolina to do the Amino acid injections, so please share any helpful info you all might have of Drs doing this!
  18. Mikie

    Mikie Moderator

    Hi, Rita and Everyone,

    Seems that these docs don't even have a list of the other docs doing the injections. A few may know one another from their travels to Europe to symposiums on the injections. It's really too bad but I understand that they feel they must keep a low profile to keep the govt. from interfering in their work. Also, they worry about protecting the formulae for the injections. I think it took a lot of research to come up with just the right sequences of peptides to make the sera.

    I've been in a bit of a relapse and don't think just a booster will do it for me. I may have to bite the bullet and get a series of the injections for several months. The longer one has been ill, and the sicker one is, seems to determine just how well the injections work. A young person who just got sick may not even have to stay on the injections for a year. One injection seemed to clear up my doc's teenage daughter's allergies.

    Good luck in finding docs. If you find one but he or she is not in the area you want, it might be worth a call to see whether that doc knows one in the right area. I still don't think there is a list but I know the ones doing these injections know one or two others who do. May take a bit of sleuthing. Good luck.

    Love, Mikie
  19. evamamacita

    evamamacita Member

    An update. I found a Dr in Asheville North Carolina who uses the Peptides! They asked me to keep their info off blogs and share sites, I just tried to include my email so someone could email me with a request for this info, but this site wont allow me. Maybe you can message me here if u want info? They said their Peptides are made in the US, that their connection to Oxford University has ended. He said its technically a nutrient, not a drug, so therefore, technically doesn't need to be approved by FDA, I wonder about this? I have to be off my Enbrel- immunosuppressant for 6 weeks, then Ill start shots of Peptides for Rheumatoid Arthritis . this Dr says there are 23 Drs in US using Peptides, but they stay under the radar.
    Best of luck to you all.
  20. evamamacita

    evamamacita Member

    Oh I also just found a trial for Peptides used for RA. There are many clinics or hospitals where it being done: Stanford clinic California, Arizona, Denver, Baltimore, Pennsylvania, Seattle Washington St, Mayo Clinic in Minnesota. . It was just posted on 9/25/15 so it may be open for patients. Heres the web page, You just need to add https:// before it, this forum wont let me post a link yet. I couldn't find direct contact info on trial, maybe contact the specific clinic closest to you! My only reservation is you are choosen at random to either get the Peptide or a placebo.
    Makes me wonder if there are studies of Peptides used for other disease too. I know there a clinical trial in Houston for Brain tumors. Did you all know Peptidesare used for Diabetes, Alzheimer's, Cancer, Epilepsy, ADHD, Dementia, Allergies and other Auto Immune disorders. its so exciting!