Percocette works for me,...and I can't get it??? why?

Discussion in 'Fibromyalgia Main Forum' started by tandy, Apr 30, 2005.

  1. tandy

    tandy New Member


    Hi Guys,... Hope everythings going fairly well considering our battles~


    Me having Fibro and other painful conditions for 12 yrs now,.... I have never once been given anything for pain that really helped me any.
    well,.... long story shortened.

    My man/hunny/boyfriend,...whatever,.. got his wisdom teeth extracted last month and he was given 30 of the percocettes for pain.
    After about 5-6 days of them sitting there and me being in pain,...I finally decided to try one. (thinking ,..its most likely not gonna help cause nothing ever does) That stuff had me feeling great!!
    Energy and everything!!??
    OMG! I don't remember ever feeling so painfree!!
    Thinking I may have just had LUCK with the first time,..I tried one another day,...same thing!!
    Its like a miracle drug!
    So,...if something can work so well for us,...why the hell are we denied????
    I have 3 different drs. treating my conditions and not one of them would prescribe those to me~ I won't even ask.
    so what gives??

    Thanks for listening
    Hugs
    Tandy
  2. tanyasue

    tanyasue New Member

    You are not really in pain, so you don't need anything that strong...

    They are really strong pain pills, so I imagine a doctor thinks that it is too strong to give.

    Good luck. I hope you find a doctor or a pains specialist that will work with you.

    tanya sue
  3. Kaedysmommy

    Kaedysmommy New Member

    Oh where do I begin? Doctors think that if you ask for a pain med. by name that you are a drug addict and will not prescribe it.

    When it comes to schedule II drugs such as Percocet, the DEA gets involved and most doctors don't want to deal with them. So, you could be dying in pain and you wouldn't get it.

    Trust me! I've been in this situation and have been treated very bad. When you tell a doctor your in pain, they automatically think you are a drug addict. There are so many addicts out there that "doctor shop" and get the pain meds and then sale them, or abuse them it's just something most doctors don't want to deal with.

    I did finally find a pain specialist and am prescribed Lortab. BUT, they are extremely strict. You have to do drug tests and they can call you in anytime they want. They want to make sure you are taking them (not selling them) and they want to make sure that you aren't taking too much...

    I totally believe in pain meds, they have saved my life! The only problem is, is when you take them for about a month, you don't get that same reaction like you first did. All that energy and stuff. So you have to take more and well, it's just a viscious cycle really. They are addictive. Even if you just take them as prescribed, you will become addicted to them, but that's just something you have to be willing to deal with.

    Me personally, I would rather be addicted to something that will help me live a normal life rather than to be stuck in my house all the time on the couch living a secluded life because of my pain.

    My advice, keep looking for a doctor who will work with you. But if you go in and start talking about pain meds right off, I can guarantee you they will automatically assume you are a "drug seeker".

    You could even call the doctors office and ask them if they believe in "opiod therapy" before you even make an appt.
  4. backporchrags

    backporchrags New Member

    Doctors can also get sued for prescribing pain medication, say someone duped the doc and sold the pills, someone dies and pow! Who has the money, the doctor, no, his insurance company!. Most doctors pay a whopping 35% of their income on Malpractice Insurance. This makes it doubley hard to find a doctor who will aggressively treat pain. The whole situation is out of control and makes it impossible for those who are in genuine need. Either we get medications that do not help or we get treated like addicts.
    Dissapointing and dishartening,
    A
  5. tandy

    tandy New Member

    I guess its just the knowing that something out there WILL take this pain away and I'm denied it,..thats what bothers me.??? Up untill I tried those I did'nt even think there was such a med~ Because nothing ever worked.
    I'm not new to "this world of pain."
    I'm a long time survivor~
    I guess if I can endure 12 yrs I can do it longer right?

    I have seen pain specialists and I'm given ultrams.
    They dull the pain for me. So I should just be happy with that~ (no energy from them tho) odd.

    And Lastly: I think the 1st reply down (??) said " Fibro pain is'nt that bad" or something close to that.(Tanya Sue)

    Speak for yourself only dear one. My pain is horrible~
    and I'm no wimp! If I can give birth without a stitch of med in my system and even RIP during the birth,...trust me I know pain. But that pain ended.
    This pain does'nt ever end~ Its very draining.

    BTW: MY first 5 yrs were tolerable.
    Its no longer that.
    I hope yours stays tolerable for you.
    Your obviously ahead of the game.

    Hugs
    Tandy
    [This Message was Edited on 05/01/2005]
  6. matthewson

    matthewson New Member

    I think she was saying that sarcastically, like that is what the Dr.s say to you. I don't think she was saying that literally! I know when we are in pain, we read more into posts than are there.

    I also can only get tramadol from my Dr. and it does dull the pain, but doesn't entirely take it away.

    I have been thinking about going to a pain clinic, but I am trying to wait until the pain gets so bad I can't stand it. Not quite to that point yet, but getting there.

    Take care, Sally
  7. Mikie

    Mikie Moderator

    Are any of your docs pain specialists? If not, find one who will help you. If you have a pain specialist now and he is not helping you, find one who will. Good luck.

    Love, Mikie
  8. tandy

    tandy New Member

    Your most likey right about Tanya "mocking drs."

    I was hoping thats what she meant~

    But in case,...I just wanted to defend myself in my own needs for pain meds.

    I never planned on asking for the percocette.
    I've been around the bend with drs. long enough to know that thats "crazy talk". They don't even wanna know ya if you need more than a tylenol.
    I'll make due,... I always have,always will.
    stubborn mule! thats me.

    Hugs
    Tandy
  9. Tigger57

    Tigger57 New Member

    I agree they really do help. But government regulations won't allow doctors to keep prescribing them.

    Believe me, I have this conversation with my doc frequently. They are scared stiff of the government.

    Tigger
  10. sparklewa

    sparklewa New Member

    and shame on the docs that won't prescribe them. Like many of us who are on prescription pain killers, most of us have gone through a battle getting them.
    First of all doctors don't like to prescribe them because their license is on the line. Federal laws dictate the dispensing of all drugs and the dispensing of narcotics is watched over like a a new momma watches over her baby. The feds want to make sure that your doc is not blindly... dealing out prescriptions for opiates and such to maybe get in the hands of street dealers.

    Secondly, so many doctors REALLY don't know what helps us CFIDS patients and what doesn't. They aren't educated enough to know the origin of our pain and what works and what doesn't. They are afraid that we will become addicts!!!

    Well I am here to say that I am able to function at a pretty high level which greatly expands my quality of life. But, if I wasn't on those narcotic pain meds I would not be able to work and recreate. I know I'd probably be house bound and bound to my bed. Actually that how lots of my weekends are. Because even by my ability to function greatly I do pay for it on the weekends!

    But here's the good news is that you have several choices to consider.
    The first choice is not an easy one, but must be considered. As others have pointed out, you can look for a different doc in your area. Or if there's a pain clinic in your area, ask your primary for a referral. The pain clinic should be able to help immensely.
    I have this sinking feeling that you're in an area that doesn't provide you with too many choices. I hope and pray not.

    Now, another thing that you can do is help educate your doctor. But of course, miracles don't happen overnight but do it anyway, wheter you stay with them or not.

    Our last issue of the CFIDS glossy page magazine had an excellent area on what works and what doesn't and why. It listed all the things that are possible to use in the treatment of CFIDS. And it listed things that aren't useful.

    It clearly said that the acetemenophens/aspirin doesn't work, whereas other drugs in the opiate category were very successful.

    One of the other things that it listed that I brought to my docs attention is Lidocaine patches. If you have specific areas of pain like me, which my pain tends to be 90% in my butt, I can use the lidocaine patches with some relief.
    However if I hadn't read about the patches that magazine, I never would have asked my doc to prescribe, and she probably would never have thought about offering it as a help.
    And by getting her to prescribe the patches for me, I could inadvertantly be helping another fibro/chronic fatigue patient of hers, down the road.

    And on the addiction thing.... that many docs are worried uses them recreationally, yes... they will act goofy and zoned out and high, and possible become addicted..

    But for those of us fribroites and fatigers, we have REAL pain and you won't see any of us feeling HIGH and zoned out. We act and appear very normal and we're able to function a little better.

    Here's something else,okay? I am was taking certain narcotic pain relievers. Then about 4 months ago I tried another treatment called microcurrent therapy. This therapy was really working for me and took away about 80% of my pain. For several weeks when my pain was low or near to nothing, I actually took less of the narcotic pain meds. And that was because my pain wasn't there. I noticed that I was feeling more groggy, sleepy and such. That's because my pain wasn't at the level my meds were used to helping at.
    The micro current doc had a long talk with me about weaning off the pain meds. And I was able to dramatically cut down.
    The bad news is that the microcurrent stopped working. Then I went through heck to get my pain meds back to the level I needed.
    I know that this is long winded but I hope it helps. In this day and age you should be able to live a life of quality and digmity with the resources that we have available to us. And if anyone or thing prevents us f5rom doing that we must seek answers to help get us back on track
    If I can think of anything else I will write back.
    Good Luck and hang in there! I will keep you in my prayers! lauren
    I'd love to talk to you more on this too!
    [This Message was Edited on 05/01/2005]
  11. Muddieanne

    Muddieanne New Member

    My 2cents worth---I have had a lot of dental work&I'm the kind who brushes like a maniac&flossesyet every single tooth has had cavities.In the last several years I've had 17 crowns put on. In only 2 did I receive Novacaine. The dentist drills your teeth down to nubs so the the crowns can go on the teeth.

    Once in awhile he would hit a nerve& that was awful but brief. My point in this story is that I take 4 Percocets everyday for fibro because this pain never stops. It is relentless&it rules my life. I would rather go to the dentist everyday instead of having this DD .The dental would end&I would go home & live my life.

    My regular dr. prescibes them.I get examined by him every 3 mos.& go to the office& pick up a new script every month.

    Also,I'm trying to say in this long story that everyone's pain is different&pain tolerance is diff.

    By the way,I still have pain everyday but life is bearable but not fun.

    Marie
  12. hehmommy

    hehmommy New Member

    Are you do to have any teeth pulled? I know the only time I have ever gotten any narcotics like that are when I go to the dentist. My dentist just asks what I would like and he gives it to me if I need it for any work done on my teeth. A lot of doctors do not want anything to come back and bite them in the rear if something happens. Other doctors prescribe away with no problems. You may just have to look around for a doctor that can help you. I understand about those strong pain killers. They can become addictive if used long term.

    Trish :)
  13. chris47451

    chris47451 New Member

    Tandy,
    WHAT type of doc are you "normally" seeing? If it is at all possible, find a rheumy (a referral would be optimal!) that treats FMS/CFS patients. BECAUSE rheumatologists are specialists, part of their licensing allows them to prescribe opiod (read: narcotic) pain medication for longterm use, as opposed to general practitioners, who are under closer medical board scrutiny. My GP will gladly give me Lortab 10s (well, until I had a horrid reaction to the hydrocodone, boo hiss), but I had to been seen monthly to have them refilled, not HIS requirement but the licensing board's requirement! My former rheumy had me on duragesic 50s and would give me 9 months worth of refills...GP won't even GIVE me duragesic's....he CANT without a written order from a pain specialist! See where I'm coming from??
    Above all, do NOT give up in your quest for adequate pain control. If I've learned two things with this DD it's this....(1) only YOU know how YOU feel, and how MUCH of it you feel, and (2) phraseology is very very important! pain RELIEF is completely different from pain CONTROL!
    Good luck hun, and keep us posted!!!

    Gentle hugs,
    Crystal =)
  14. joyegail

    joyegail New Member

    i had the same experience. My doctor prescribed Tramadol, but it makes me sick. Others that he is willing to prescribe also make me sick. Percocet does not, but he is not willing to prescribe that one. i also mentioned the patches, whatever they are called, and he said no to that too.

    Deb
  15. TeaBisqit

    TeaBisqit Member

    And it was truly the only thing that ever helped me. But, I had to go off of it. I got headaches on that drug so bad, I was puking from them. It was a real shame because for the time it worked, it was a miracle drug for me.

    Most docs will not give narcs. Mine was rare and then she moved out of state and now I have like no doc because the one that replaced her just left as well.

    They always use the excuse that they don't want to addict you, but it's like, please. I bet that's rare. I've never met anyone who did get addicted to prescribed drugs.

    I've tried a few narcs, but nothing helped like the Percocet. If it didn't cause those headaches, I'd still be on it.
  16. JLH

    JLH New Member

    My rheumy is a very intelligent doctor, but will NOT give ANYONE a narcotic for fibro or cfs.

    He told me to NEVER "let" any other doctor give me narcotics for my fibro, severe arthritis, lupus, and my back problems that he is aware of.

    He said that I should never get started on them because they would be hard to get off of, that I would just need more and more to control the pain, then stronger and stronger stuff, etc.

    This is the doctor who is supposed to "care" about by illnesses!!

    All he believes in for fibro, arthritis, etc. is sleep meds and tells you to EXERCISE, EXERCISE, ETC. He said I need to get my heart rate up and keep it up for 30 min., otherwise my fibro pain WILL NEVER GO AWAY!!!

    I have to laugh when I leave his office, because I can't even stand up for 15 min., let along get an areobic exercise class in for 30 min.!!!!

    He's only 1 of 2 rheumys in my area ... and the other one is a bigger joke than him!!!!
  17. jake123

    jake123 New Member

    Why would a dentist give a person 30 Percoset for wisdom tooth extraction which would be better in 7 days and not give someone Percoset for CFS which is never going to get well?
  18. tandy

    tandy New Member


    maybe its because those are the people they never see again. Us,...we need it all the time.
    I guess we're high maintenence!!LOL

    I see a Rheumy,a primary,a Gyno,.and a pain clinic.
    none of them will prescribe "heavy narcotics"
    because "generally the pain of Fibro and CFS are'nt that bad" The words of the pain dr.
    Geee,...??maybe I've been mis-DX then?? cause if these illnesses are'nt suppose to be that bad,...mine is really bad,..??? what would you think?
    I think the drs. around here suck!

    sorry guys~
    I do get angered by all this.
    just a bad day,...tomorrow will be better~

    I apreciate you all,
    Hugs
    Tandy
  19. gravitychallenged

    gravitychallenged New Member

    A few years ago there was passage of some new language in the medication regulations to make it easier for doctors to prescribe needed pain meds. I'm sorry that I don't have any more specific information but if you go to the CFIDS Association Of America's web site and do a search you will probably get more information.

    I have been fortunate in getting prescriptions for Percocet from both my PCP and my CFIDS doctor. They do give me measured amounts and don't refill them too frequently but at least I get them. I did go to a pain clinic however and was told they only give opiods to people dying of cancer. Go figure!

    Maybe you can find some info on the web that you can take to your doctors that gives some legitimacy to both the pain of fibro/CFS AND the use of Opiods to treat it.

  20. lovinlifeinAK

    lovinlifeinAK New Member

    I was in the ER in severe past level 10 pain. They gave me demoral (spell), then a prescription of Percocet. It worked soooo well. I went to the doctor with this news. That the combination of the Soma and percocet, I felt normal. I now go in when my prescp. runs out and he gives another refill.

    I have only been to this doctor since being down here, he has come to know me and my track record so he feels I am not a drug hunter. The first time he gave me a full months precrip. he said that I would need to lock it in something - people were getting them stolin.

    He can tell when I am in pain and not because my blood pressure goes back to my normal level and is no longer high.