Periods and Fibromyalgia (for you ladies)

Discussion in 'Fibromyalgia Main Forum' started by 30feeling80, Aug 25, 2005.

  1. 30feeling80

    30feeling80 New Member

    I went to my gynecologist today for an annual exam. I was complaining about my long and heavy periods. I also told him that I've noticed my Fibro flare-ups seem to revolve around my cycle...pain is at it's worst 1 week before my period plus the 7 to 9 days of the period itself.

    He believes he may be able to control some of my pain by controlling my menses. We talked about the pill and even an IUD to reduce my flow and decrease the amount of days, thus reducing my fibro-pain. He believes there is a connection from hormones to all-over body pain.

    My rheumatologist was unwilling to even entertain the thought and they're supposed to be the 'specialists'. HA. I think my gyno may be onto something.

    What do you guys(gals) think?
    ~30
    [This Message was Edited on 08/25/2005]
  2. dakotasweett

    dakotasweett New Member

    ...although I am currently doing the opposite thing since my pain has increased significantly since being placed on depo provera (birth control shot). I decided to stop that method to see if it makes any difference. But- if your pain seems to coincide with your menstrual cycle, you may as well try what your gyne suggested.

    Hope whatever you choose helps!
    -Vanessa
  3. backporchrags

    backporchrags New Member

    I have had FMS longer than I have been menstrating. My cycle changes like the wether. Unfortunatly now I get heavy flow and horrid cramps. The PMS is also very bad, I am a monster for 2 weeks before i start.
    Let us know if you find any changes in your FMS symptoms because of the pill or IUD.
    Very interesting.
    A
  4. steach

    steach Member

    I believe there is some correlation between flare-ups and periods. For the past two years, my migraines are worse about 2-3 days before I have a period and my body hurts more.

    Maybe it is due to the fact that I am 40 now and it is just what happens to the body as one ages- fibro or no fibro.

    Steach
  5. Meekah

    Meekah New Member

    I was on the pill from ther age of 16 till last fall, I'm 36 now. (except for before and after both pregnancies) and now that I'm not on anything, my periods are awful and last a long time.

    I can flow for 8 or 9 days sometimes. It's getting to the point that I'm considering going back on the pill. I had stopped taking it because I wanted to give my body a rest from pill. It's hard to know what to do.

    I seem to feel worse the week before my period then I do when I actually have my period. My CFS and Fibro are at their worse in that week prior to my period and then of course it's no picnic the week of, either.

    I'm not of any help, I just wanted you to know that you're not alone.

    Hugs and Prayers
    Meekah
  6. kelleypepp

    kelleypepp New Member

    I am interested in knowing if this will help you.

    I have always has abnormal period and since my fibo has been getting worse I have NOT had a period all summer long...strange. Nope! I'm not nor can be pregnant!
    I do think it's just an another "added" thing we have to deal with. I bet once I do get it I'll be in pain and out for a week or two!
  7. Kira451

    Kira451 New Member

    There is a correlation between fibro and PCOS, which has symptoms such as migraines before and/or during period, flu-like symptoms, pain, irregular periods, worsening of fibro pain and other fibro symptoms. The pill has helped to regulate periods for women, and has helped to ease the symptoms in alot of women also. It is worth it to ask your Gyno about this and even mention this to your Rheumy. PCOS can cause infertility and can affect your body's insulin resistance level as well, so it can be serious.
  8. getfitat40

    getfitat40 New Member

    I seemed to get sick around the same time as my TOM. I would get sinus infections or a bad cold and had FMS flare ups. My GP actually agreed with me when I said that there had to be a connection. She changed my Pill to Mircette which instead of 21 days of hormones and 7 days of placebos, there is only 2 days of placebos. I hardly have any sort of real period and even my PMS is much more under control. I still get a couple of days of increased pain, but nothing like before.

    Nancy
  9. elsa

    elsa New Member


    Hormones play a very big role in these illnesses. The adrenal gland gets wiped out and it is in charge of producing what some refer to the "master hormone" that gets the ball rolling with many other hormones.

    Although I agree with your gyn., I don't agree with synthetic hormones, or giving estrogen for whatever ailes us.

    You can order on-line salivia testing kits that can clearly tell you how all your hormones are doing ... if any are low, you could take the results to your doctor and ask for compounded, natural hormones.

    Being in your 30's ( just barely ) and having fibro you could have estrogen dominance where you are not producing enough progesterone. This would explain the heavy, painful periods and the worsening of fibro symptoms.

    You could google Dr. John Lee and find out more about this. Also, you could put bio-identical hormones in the search, and come up with some more information.

    I try ( not always successful )not to preach, but please look into bio-id hormones before agreeing to take traditional, synthetic hormones. I'm a big supporter of rx medications, but this is one area that just doesn't sit well with me.

    Good luck to you .... hope you feel better soon ...

    Elsa
    [This Message was Edited on 08/26/2005]
  10. JLH

    JLH New Member

    I haven't had to worry about monthly cycles since I was 32 (thank heaven!!), but I have seen an advertisement for a pill (?) that will now control your cycles so that you will only have one every 3 months. Maybe something like that might help you. It would be worth asking your doc about!

    Janet
  11. vbjess

    vbjess New Member

    I always feel worse the first day of my period... mine never last more than 3-4 days, but the first few days just drain me of life completely.

    I've been on three different BC pills, but they all just made everything worse... even on one of the lowest dose pills on the market, I still felt so sick all the time.. the side effects were worse than the illness itself.
  12. marzrox

    marzrox New Member

    I drastically change between heavy bleeding and nothing at all for months. The one common thread is dreadful aching and tenderness, I have reciently decided to try using sea sponges instead of tampons, it was recomended to me by a freind who had tried them and found remarkable improvement in menstral flow and discomfort.

    I have about 6 golfball sized sponges, I soak them in a solution of baking soda and water between uses, dry them out once they are not needed. The beauty of them is that they contain no chemical bleaches, fit naturally and are soft and much more flexible than tampons, there is no odour, the duration of my period has reduced, and I simply feel better knowing that less toxins and bleaches are in my body.

    I change them roughly as frequently as I would a tampon, use two overnight to be sure. Carry spares in a snaplock bag or film canister or similar. If you are out it is better to have something to pop them into till you can get home to wash and soak them.

    There are a number of sites on the net that explain the use of them, if anyone wants to know more please feel free to ask.I will never go back to tampons again.
  13. Jeanne-in-Canada

    Jeanne-in-Canada New Member

    The pill is a huge culprit in causing systemic candida. Synthetic estrogens cause several types of cancer, esp. breast cancer.

    It is a terrible idea to suppress periods for three mths at a time. I don't believe in giving estrogen for whatever ails a woman either. We need much more than estrogen, it is usually too high and unbalanced and causes most of our problems.

    Good advice from elsa. I ditto it. There are homeopathics I've taken too that really help, I now take natural progesterone. And am working on getting the plethora of estrogen mimickers out of my water, food and food containers (plastics). St. John's Wort is great for PMS and periods too.


    Jeanne
    [This Message was Edited on 08/25/2005]
  14. Cyndi40

    Cyndi40 New Member

    Hi, all I knew to say was "Bless your heart" because I know how what you described feels. I don't want to scare you or anything, but has your doctor ever mentioned that you might have endometriosis? I'm trying to get myself settled down long enough to do a little more research of the FM/CFS being worse in individuals who have endometriosis. I was "eaten" up with the endometriosis for apparently years prior to them finding it. They treated the symptoms but it was in a very late stage, so it wasn't showing up on the sonograms or other tests they used that it normally shows up on. My doctor did a partial hysterectomy... I started bleeding so badly and he did a D&C... then I started bleeding again. He did those surgeries vaginally (meaning he did not have to cut my belly button to do the surgery, so it was not showing up even during the first two surgeries). It was not until he did the laproscopy, that he found a growth and the endometriosis which as I said before, had spread out of control. Once I got the surgery, I had several very healthy years. It was unbelieveable... but then about 2 years ago, I started getting achy, running fevers, feeling like I had the flu 24/7... serious aching, all over my body. My new doctor here, he was the only doctor who ever shared that the endometriosis could've spread into other organs that were close and it can show up years later. I don't know if this information is completely accurate, but my doctor's both here and back in TN where I had the surgeries, are all "good" doctors and in very good standing in the medical community. So I thought you might want to just mention this if you think it could have something to do with your added pain you feel comes along with your menses. I'm no expert, just sharing what little I do know, hopefully to help someone else not have to go through what I did. God bless you all, and hoping you all are having a pain-free, peaceful evening...
    Cyndi
  15. phoebe1

    phoebe1 New Member

    There have been alot of posts about this topic, I think most of us experiences a flare-up of our fibro symptoms during or before.
    I turn into a pms monster a week before I start and get the most horrible headaches and my IBS is 10 times worse.
    I'm 26, on Mirelle and my period is not abnormally painful, by day 2 I don't even know about it and by day 3 it's over, flow is also very light.
    Definitely discuss this further with your gyno.

    Good luck!
    Phoebe
  16. kalley167

    kalley167 New Member

    My pain has increased one week and during my period. I practically live on Midol (caffine free). There are days when I feel I can hardly function while on my period. My brain fog and headaches increase also. I feel totally wiped out everyday of it. It can last 6 to 7 days and be quite heavy. Haven't really discussed this with my doctor yet I may bring it up.
    But it makes me wonder since so many of us feel like this if it isn't connected.
    I can't take the pill due to blood pressure so I am not sure what can be done.
  17. nozomi

    nozomi New Member

    I had elongated periods and two weeks or longer of PMS....the only thing that relieved the pain and exhaustion was getting a hysterectomy. I KNOW the increased pain and exhaustion was flared by my cycle.
  18. 30feeling80

    30feeling80 New Member

    I fought systemic Candida and won. Don't want to fight THAT fight again. I used to be on the pill and think that contributed to my problem. We did discuss the possibility of endometriosis, diagnosed positively through laproscopic methods only.

    I recently heard a neighbor talk about her uterine ablasion, ablasian, ablashon. I don't know how to spell it. Anyhow, the inside of her uterus was lasered (the whole endometrial lining) while she was under twilight. She had it done in March, hasn't had a period since.

    My tubes have already been tied for a few years now. The ablasion is something I will discuss with my doctor next. Thanks for everybody's input and support. Good to know I'm not the only one who's found a correlation between Fibro and periods.

    ~30