Periphial Neuropathy Anyone ????????

Discussion in 'Fibromyalgia Main Forum' started by KathiM, Jun 19, 2003.

  1. KathiM

    KathiM New Member

    I just got the news that I have periphial neuropathy and am wondering if anyone else has it and what you can do.

    Kathim
  2. LeLeHpr

    LeLeHpr New Member

    Kathim,

    What is that??? Never heard of that before...
  3. tandy

    tandy New Member

    Don't mean to stick my nose in here where it prolly don't belong but.........Is this the name for the burning,painful feet??? My mom has FM and does'nt have a computer,she was just asking me today if anybody ever mentions painful,burning feet on here??and I do recall it being discussed but since it never has been one of my symptoms(thank god!!)I never paid much attention~
    I'm trying to find out for her what this is,and if its common?? I was gonna post this question for her.
    She says its the bottoms of her feet.(if I'm not mistaken)
    Anyone??HELP!?? (ps.Her Dr. does'nt address this problem,meaning....her complaints go in & out his ears!
    Thanks~
    Tracey
  4. Mikie

    Mikie Moderator

    We are prone to it. Jelly, your doc needs to get to a hyperbaric chamber to get the sores to heal.

    This condition is often associated with Diabetes and accounts for a lot of the amputations with Diabetes. It is a circulatory problem. The feet and legs can burn, ache, tingle, and go numb. Walking helps, but it is painful. Walking in a pool can be helpful.

    If we are prone to hypercoagulation and our bodies aren't getting enough oxygen, it makes sense that we would get a circulatory condition like this.

    Love, Mikie
  5. KathiM

    KathiM New Member

    Hi to all....and thanks for replys.........

    Periphial Neuropathy in me is like this:

    It is of lower extremities/ meaning my feet

    worse at night
    burning
    tingling
    numbness when you wake up....like you cant feel your feet

    feeling swollen
    like walking on gravel or rocks at the ball of the foot

    The whole mess is auful !!!!!

    You mostly hear about it in diabetics and I am NOT diabetic.

    Kathim
  6. Carlacat

    Carlacat New Member

    in my feet and lower legs and I think its moving up on me. I take neurontin for the pain but I try and stay away from pain pills cause I just dont like them plus I take 6 other pills also. I cant walk very far and my ankles and feet hurt and I was told I have it in my arms also so go figure. Alot of people I've talked to who has FM/CFS has neuropathy so go figure.
    Carlacat
  7. tandy

    tandy New Member

    just adding to what I said up above~ My Mom is not diabetic either.She's having it quite hard with FM AND OTEOARTHRITIS.She's nearing 70yrs old. This neuropothy(sp?) what kind of treatments or pain relief are available?
    Does this sound like what she's experiencing??She said its worse at night and especially in the mornings. But it gets rough after walking awhile too.She still works part time....god bless her! Thanks again:)
    Regards,
    Tracey
  8. KathiM

    KathiM New Member

    I really dont know...........
    Maybe we should yell for help from MADWOLF !!!!!!!

    I am 47 and hopefully have a few more years left...lol....
    I just cant imagine having to put up with this pain for another 25 years

    It has taken me 2 1/2 years to get this far.

    Kathim
  9. Mikie

    Mikie Moderator

    This this is rare outside of Diabetes--NOT!!

    A lot of non-Diabetics have this condition, especially those with our illnesses.

    Love, Mikie
  10. tandy

    tandy New Member

    I'm not sure what meds she's on other than provigil for fatique~I read this.....and gave her a quick call to ask her,she must have gone to bed because she's not answering the phone????Its early...only 6:30. She does go to bed early sometimes when shes really hurting.Plus shes alone so i think alot of could be boredom??Anyway thanks alot for telling me this.I'll check with her tomorrow morning.
    ((Hugs)),
    Tracey
  11. KathiM

    KathiM New Member

    jelly.....
    that is interesting about your dr and the oxygen because my oxygen evel drops real low 82 when I SLEEP due to the sleep apnea and I wonder also if i had oxygen if it would help the neuropathy.
    I just cant use the darn CPAP.... I feel like I am in a casket....ugggghhhhhhhhhhhhh

    Kathim
  12. IntuneJune

    IntuneJune New Member

    I used to have them every morning on the bottoms of my feet. It felt as though the floor was nothing but sharp knives with blades pointing up and I would have to step on them. Making sounds with every step, I would hobble to the shower. The hot water helped a little, after an hour, the pains would wear off.

    When I started PT with myofascial release, the pains just stopped I found this amazing, the therapists never touched my feet.

    Fondly June
  13. clueless

    clueless New Member

    I am interested in the "small nerve neuropathy" reply. I have had problems for a number of years, have had three nerve conduction tesrs with different answers. Two neuralagists said neuropathy and the last one said no so I am totally confused. Mine started after three weeks of being very ill with what they said was an intestinal blockage. It started in my feet and is now clear up to my hips. It is a very burning numbing pain. As I sit here now I have taken oxycontin, neurontin and klonopin but am still in pain. It is very debilitating and if you push yourself as I do at this time of year trying to keep my hands in the flower gardens I REALLY suffer. I just can`t give that up yet. The fm.+ the neuropathy really gets the best of me and I just hope I am not doing more damage by stressing myself in the gardens. I am 75 so I know how your Mom feels. It is tough whwn you get older and have to start the process of giving up things. My thoughts and prayers are with her and I hopre she gets some help. I am trying a new pain specialist.My best to her
  14. Susan07

    Susan07 New Member

    Noone has ever called my foot problems this but from the other replys...thought I'd throw in my 2 cents.

    The bottoms of my feet burn most of the time, more so if stand for several minutes or have to walk. I also have tingling and numbness. Several years ago I had such a bad session I went to a podiatrist who said it is plantar fasciitis. You can do a search on both of these diagnosies and get some good info.

    The plantar fascia is the band of fibrous tissue running from heel to toes on the bottom of your feet and can cause or be caused by heel spurs. I am currently on anti-inflammatories again for the burning. Wear orthotics in my shoes or wear Berkinstock shoes all the time. Can never walk barefooted per the doc. You can freeze a 2 liter bottle of water and roll it under your feet for some relief. There are stretches and stuff you can do if it turns out that is the problem.

    The chiropractor I go to is also working on my feet using ultrasound. I actually didn't have the burning for almost 2 hours the other day after I left.

    The site for peripheral neuropathy does not mention plantar fasciitis at all. But if it is foot pain you are experiencing maybe the things above can help.
  15. tjblueeyes

    tjblueeyes New Member

    My mom, who is 80, had neuropathy in her legs. Her Dr. gave her quinine sulfate pills and she says it has helped her a lot. I am 48, with FM, and I get the sore tingling feet mostly in the morning when I first get up. It takes it a while to wear off. TJ
  16. tandy

    tandy New Member

    this once~I think this may be what my ma's problem is.
    Thanks for all the info!!
  17. Carlacat

    Carlacat New Member

    With the autonomic it affects my neuropathy in which I take neurontin,but it has to do with the nervous system and it is all connected to my POTS also. Pots is where I kept getting dizzy when I was on my feet for an amount of time and felt very tired all the time. It is all having to do with the central nervous system in my body.
    Carlacat