Persistant Taste that wont go away...

Discussion in 'Fibromyalgia Main Forum' started by vinetti23, May 31, 2003.

  1. vinetti23

    vinetti23 New Member

    Ok - this is a weird one...

    And a long shot...

    But the reson I ask is bc I know a lot of people with FMS have strange symptoms beyond just the pain, and to date I have not been able to find a doctor to figure this one out and it absolutely drives me crazy. So, I thought it might be worth a try. Chances are it is unrelated to FM, but here goes...

    About 2-3 times a year, for about 2 weeks at a time, I get a taste in my mouth that will not go away. It tastes exactly (and I am serious) like extra sugar free bubble gum... like artificial sweetner / artificial flavor. A chemical taste sort of. No doctor has found anything in blood tests, etc...

    I am going to try to find a taste & smell specialist, but they are hard to find and usually too booked up to get in when the problem is actually happening. Plus. they mostly just deal with taste & smell loss (due to stroke, weird virus, etc...).

    The first time it ever happened were my first 2 weeks on accutane about 4 years ago. What a weird drug that is... Worked well, but not a fun 6 months.

    Aright, well thanks in advance if anyone has ANY ideas... :)
  2. Shirl

    Shirl New Member

    I am too sleepy to answer you right now, but am bumping your post back to the first page.

    The board is slow on the weekends, so if it falls again, plese bump yourself...........

    Shalom, Shirl
  3. Sissy123

    Sissy123 New Member

    When my blood sugar is high even when I drink water it taste sweet. Have you had that level checked. It should be around 70-120 or so. Mine at one time was well over 600. Do you get yeast infections, tired, thirsty and peeing alot? If yes get yourself tested for diabetes. Much Love Sis
  4. vinetti23

    vinetti23 New Member

    You definitely were on the same track as the doctors I saw. Those were the tests they did as well, but they came out normal. It was the 2nd time I had a diabetes test - the first time was when I was a kid and my parents saw me drinking a gallon of water a day! :)

    Usually "the taste" only lasts 2 weeks... So I only have 1 week more to go. I can't even explain how annoying it is to have something like's just so uncomfortable. I actually end up with a headache from the taste after a while.
  5. smyle4moi

    smyle4moi New Member

    i also get that metal tast from time to time...weird...would definately trade it for sugar free bubble gum tasted least its not something really gross you tried something sour to counter the sweet? maybe a sour hard candy would at least give a temp relief from it....or even a fireball....ive never heard of anything over powering that!! dont know...maybe that would at least be a temp break from that taste....Lori
  6. vinetti23

    vinetti23 New Member

    Yeah - I could try the GUI. thats a good idea. It's supposed to be a cleansing agent, right? I mean, besides clearing out your sinuses- doesn't it clean your body of toxins and stuff? I can just look this up online... So maybe there's something built up that needs to be cleansed ot of me. hmm...

    And LOL - yeah it could be worse. Its funny bc my friends say that too. They're like "whats so bad? at least it's not rotten eggs or something." It is hard to describe why its so bad. It's bc there's no way to make it stop - like even if you heard a Beethoven symphony and it's all nice - but then if it keeps going forever and you can't turn it off...I eat garlic and stuff to try to mask it but then I heard a theory it might be from gastric reflux so i stopped that.
  7. 600

    600 New Member

    I have experienced this also,usually a metallic taste? Also,And much more often,after smelling certain things like lysol or Mr. Clean,The sense of smell stays in my nostrils and or system.