Phew! Is it hot in here??

Discussion in 'Fibromyalgia Main Forum' started by chloe_s_mom, Jul 25, 2011.

  1. chloe_s_mom

    chloe_s_mom New Member

    Anyone else have trouble with their temperature? I've been cranky and grumpy for weeks, complaining that it is either too hot in the house or too cold.

    My parents are visiting and I was showing my mum how to use my kids' ear thermometer and demo'd on me.....yup, a low grade fever. Then, normal for her and my dad. I'm not fighting a cold, and this is becoming more and more common for me.

    A few weeks back, I was in a FM flare, but had a fever, no other symptoms.

    I always thought that I had FM bec of the pain component, but am now wondering if it is ME/CFS.....maybe I'm simply splitting hairs on the label?

    Just wondering if anyone else feels that their temps are out of whack?
  2. kat0465

    kat0465 New Member

    Anything over 99 for me feels like 102, I go from one extreme to the next. Mostly low now days tho.
    I'm my early years with this DD, it was fevers, now it's usually below normal.

  3. chloe_s_mom

    chloe_s_mom New Member

    99.1 and I feel overly warm. One cup of coffee and I'm sweating. Takes me ages to cool down from my morning hot-ish tub dip. :(
  4. chloe_s_mom

    chloe_s_mom New Member

    interesting references to supplements to help deal with temperature sensitivity. Once again, vit D is listed. I really need to get myself organized with my supplements.

    Anyone try sublingal vit B? second article refers to it as second best to injections, and it dissolves under the tongue.
  5. dzlady

    dzlady New Member

    I usually run a low grade temp, around 99.4, all the time. The weather here has been extremely hot and have been having Heat Advisories/watches/warnings pretty constant for the last couple weeks. If I get hot, forget it. I wont get cooled down. I eat dinner and then start sweating.

    I have been cranky and grumpy as well. I cant stay cool. My husband will be freezing and I am sweating. But he deals with it, for me. I dress in as little as possible. My hands and feet are always like ice, but I am hot.

    I also wonder about ME/CFS. I diagnosed myself with FM and then went to the doctor with the information I had, and she agreed. Its been just a bit over a year although, I am sure I have had it for about 10 years. I cant believe I was so stubborn to try to deal with it and live with the pain instead of giving in years ago and going to see the dr.

    I have filed for disability and was denied, so I hired an attorney and am fighting it right now. I havent worked for almost 2 years. November 3rd 2 years ago, I lost my job after missing too many days as a result of this. And finally got tired of messing with things and losing job after job as a result of my missing work.

    I am a small hobby/show breeder of Pomeranians and a week ago, I took one of the dogs into the bathroom, sat on the floor and groomed him. Brushed, trimmed his hair and nails and then a bath. I was in there about an hour and the back of my house is not temperature controlled. It was hot, and within a half hour after finishing with him, I had the worst migraine I had ever had. It was so bad, I am certain I could have shot myself in the head and it couldnt have hurt any worse. (not suicidal, just saying..) I ended up in the ER and had to get 3 injections thru my IV and it didnt take the migraine away, but it did reduce it significantly, from what I would have called a 9 (on a scale of 1-10) to a 2. The only reason I would have called it a 10 is because I wasnt crying, although I wanted to, but knew it would hurt more if I cried. I was also nauseous and was fighting that as well, because if I got sick, it would have hurt tremendously. I couldnt eat the dinner that my husband had made even.

    I hope you get things in order. I sure wish I could. I love the fall and winter, simply because I can always make myself warmer by putting on more clothes or a blanket, but I cant make myself cooler.

  6. chloe_s_mom

    chloe_s_mom New Member

    like an awful migraine, Theresa.

    I just assumed (as have 2 pain specialists that I've seen) that I had FM vs. ME, bec of the extent and persistence of pain, but find the low grade fevers to be very, very odd. Not that, in my limited understanding, there is much difference between the treatment of the two conditions?

    Sorry to hear that you've had to hire a lawyer (I've just hired one too), but I do think that having someone who can think clearly, help with all of the necessary forms, etc is the best thing to do.

    My lawyer has known me for 6 yrs now, as she was my accident injury lawyer. She said to me that the change in my email style/writing style is almost night and day, that I no longer seem to condense my thoughts, that I ramble on, that I send multiple emails. Made me sad to hear that my cognitive changes are so dramatic to others, but must learn to accept them.

    I think that I will ask my new doctor to recheck my thyroid.

    Thanks for sharing your experiences on the internal temp issue!
  7. dzlady

    dzlady New Member

    My cognitive abilities have been greatly effected. I find myself sending many emails, repeating what I have already said or asking questions I have already asked. I ramble constantly, in person and in email. My thoughts are not together. I will say something about one thing and think of something else to say and pop off to that subject and then go back to the original subject. I always have my best friend proof read my emails, when she's not busy and its important, to make sure its not ramble and is condensed and used the right words.

    My thyroid tests have all been within normal parameters.
  8. chloe_s_mom

    chloe_s_mom New Member

    well, that's a new term for me, thermostatic stability. I was browsing thru the giving back project (opportunity to vote for important charities advancing research in ME/CFS/FM, amongst others) and decided to look at bit at the Whittemore Peterson website and came across a really interesting description of how CFS/ME is diagnosed - check out point 6, second bullet:

    To date there is no known specific medical diagnostic test to determine or confirm a correct diagnosis nor is there a specific treatment.

    For Diagnosis: a patient with ME/CFS will meet the criteria for fatigue, post-exertional malaise and/or fatigue, sleep dysfunction, and pain; have two or more neurological/cognitive manifestations and one or more symptoms from two of the categories of autonomic, neuroendocrine and immune manifestations; and adhere to item 7. (Source: Canadian Guidelines definition; see Chronic Fatigue Syndrome/Fibromyalgia Symptom Checklist, ME/CFS Most Common Symptoms, and the Canadian ME/CFS guidelines)

    1. Fatigue: The patient must have a significant degree of new onset, unexplained, persistent, or recurrent physical and mental fatigue that substantially reduces activity level.

    2. Post-Exertional Malaise and/or Fatigue: There is an inappropriate loss of physical and mental stamina, rapid muscular and cognitive fatigability, post exertional malaise and/or fatigue and/or pain and a tendency for other associated symptoms within the patient's cluster of symptoms to worsen. There is a pathologically slow recovery period—usually 24 hours or longer.

    3. Sleep Dysfunction: There is unrefreshed sleep or sleep quantity or rhythm disturbances such as reversed or chaotic diurnal sleep rhythms.

    4. Pain: There is a significant degree of myalgia. Pain can be experienced in the muscles and/or joints, and is often widespread and migratory in nature. Often there are significant headaches of new type, pattern or severity.

    5. Neurological/Cognitive Manifestations: Two or more of the following difficulties should be present: confusion, impairment of concentration and short-term memory consolidation, disorientation, difficulty with information processing, categorizing and word retrieval, and perceptual and sensory disturbances, e.g., spatial instability and disorientation and inability to focus vision. Ataxia, muscle weakness and fasciculations are common. There may be overload 1 phenomena: cognitive, sensory, e.g., photophobia and hypersensitivity to noise—and/or emotional overload, which may lead to "crash" 2 periods and/or anxiety. Carruthers et al. 11

    6. At Least One Symptom from Two of the Following Categories:

    a. Autonomic Manifestations: orthostatic intolerance—neurally mediated hypotenstion (NMH), postural orthostatic tachycardia syndrome (POTS), delayed postural hypotension; light-headedness; extreme pallor; nausea and irritable bowel syndrome; urinary frequency and bladder dysfunction; palpitations with or without cardiac arrhythmias; exertional dyspnea.
    b. Neuroendocrine Manifestations: loss of thermostatic stability—subnormal body temperature and marked diurnal fluctuation, sweating episodes, recurrent feelings of feverishness and cold extremities; intolerance of extremes of heat and cold; marked weight change—anorexia or abnormal appetite; loss of adaptability and worsening of symptoms with stress.

    7. Immune Manifestations: tender lymph nodes, recurrent sore throat, recurrent flu-like symptoms, general malaise, new sensitivities to food, medications and/or chemicals.

    The illness persists for at least six months. It usually has a distinct onset, although it may be gradual. Preliminary diagnosis may be possible earlier. Three months is appropriate for children.

    CFS is diagnosed as a process of ruling out everything else!

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