Physician in/near Buffalo, NY to prescribe Xyrem

Discussion in 'Fibromyalgia and ME & Chronic Fatigue Syndrome' started by FrustratedInBuffalo, Mar 17, 2013.

  1. FrustratedInBuffalo

    FrustratedInBuffalo New Member

    Hello all!

    I was diagnosed with Fibromyalgia a little over ten years ago. Since then, I have tried close to every medication, dietary restriction/addition, and alternative treatment under the sun, and I still have a daily battle with insomnia. I have heard great things about Xyrem and am looking for a physician to prescribe it. Any leads would be much appreciated!
  2. jaminhealth

    jaminhealth Well-Known Member

    posted on Alternatives board...

    I've never had the insomnia issue, thank goodness...and
    don't want the sleep drugs as they can really alter our sleep
    systems too much...

    Calming herbs and magnesium thru the day do really help.
  3. roge

    roge Member

    actually GHB (xyrem) is naturally found in the human body so I would rather take that than many of the other prescription sleep drugs on a long term basis. only problem is xyrem is very expensive - rediculously expensive in fact for a naturally occuring compound in the human body - it was actually sold in health food stores at one point.

    sorry dont know of a dr. who prescribes it but i hope u can find one and hope it helps as for some it really helps - makes sense as it is proven to get one into slow wave sleep stage 3 and 4 (deep sleep) where those with Fm can't and that is when your body heals itself.
  4. cisasnaps

    cisasnaps Member

    Dr. Enlander, in NYC is a cfs, fibro specialist who prescribes xyrem
  5. lincamp

    lincamp Member

    Suggestion, call several local pharmacies and ask them if they ever dispense the med and if so, ask who the prescribing Doctor is. Hope this helps!
  6. tig519

    tig519 Member

    My understanding is Xyrem is only prescribed for narcolepsy. They tried to get approval for use with FMS and CFS patients in 2010, but that request was rejected by the FDA.