Pituitary Tumor

Discussion in 'Fibromyalgia Main Forum' started by darude, Aug 4, 2005.

  1. darude

    darude New Member

    Pituitary Tumor Center

    Pituitary tumors are common, cause significant disease related to the production of excess hormone(s), interference with the normal function of the pituitary gland, and compression of adjacent structures. The pituitary gland is about the size of a dime and is centrally located in the head, behind the eyes. The most common pituitary tumors are prolactinomas, that present with amenorrhea, infertility and galactorrhea in women and with impotence and loss of libido in men. Patients with growth hormone secreting tumors may have joint pain, carpal tunnel syndrome, muscle weakness, sleep apnea, hypertension, congestive heart failure, diabetes mellitus and colon cancer. Adrenocorticotropin-secreting pituitary tumors present with centripetal obesity, muscle weakness, easy bruisability, hirsutism, amenorrhea, diabetes mellitus, hypertension and osteoporosis. Other pituitary tumors arise in thyrotrope cells, resulting in excessive thyroid gland function, and in gonadotrope cells, that often do not secrete any functional hormone. Headaches, visual disturbances and abnormal pituitary function may result from local growth of the tumor.


    [This Message was Edited on 08/04/2005]
  2. ibisgirldc

    ibisgirldc New Member

    So are you getting yours removed? If so, by which method?
  3. wangotango

    wangotango New Member

    mine is 14 mm and is located in the back of the sellica and towards the top.very hard to operated on. they say mine is causing he gland to be squished i think they call it mass effect? any way i have to go on saturday and have my yearly mri done of it.
    i have my own therory's on how my tumor came about or got so big. when they 1st found it my prolactin level's were only 400 but they have went back to normal since.
    be well
  4. darude

    darude New Member

    They can use radiation to shrink it!! Are you on any meds for it?
  5. ibisgirldc

    ibisgirldc New Member

    Pituitary tumors can be dealt with without radiation and don't let any doctors tell you otherwise. It is possible that a particular tumor in a particular location within the gland needs that treatment, but otherwise, there are several drugs and at least the two types of surgery (sphenoidal and gamma knife) that can be used to reduce or remove it. either way, get a second opinion... but especially do so if someone tells you that you need to go on radiation therapy.

    The docs that I saw second, the supposed world-reknowned specialists, told me that I'd have to have it removed via sphenoidal surgery and need radiation treatment. That I might never have children as a result. I cried all the way home in the car. We got a second opinion from another radiologist and then a third at the Mayo Clinic. Mayo explained that I could get it removed via the non-invasive gamma knife (something that the geniuses never mentioned to me as a possibility) and that we could try several other drugs in the interim. That radiation and the idea that I'd never have kids was ridiculous. (They also told me that this team of einsteins was known for being reactionary.) In the end, we just decided to use the drugs and that worked out fine for me.

    Anyway, point is, you need to do alot of research and you always need a second opinion - paricularly before someone tells you that they're gonna run a scalpel up your nose or make you take radiation and/or chemo drugs.
  6. TXFMmom

    TXFMmom New Member

    You have no idea how some doctors can be so ignorant.

    Additionally, they get stuck on one thing and stay with it, without updating their knowledge.

    I had a pitutitary tumor before developing FM. I started complaing of fatigue, not being able to sleep, gaining weight, feeling awful, etc.

    All the doctors told me that I was "trying to be superwoman" or was going through an early menopause. While they ignored it, it apparently outgrew its' blood supply, infarcted, and took part of my anterior pituitary with it.

    It was discovered when I was diagnosed with a melanoma and they did all these scans. The neuroradiologist who read the thing was someone I did cases for and he said that the docs had "blown it." Well, yeah.
  7. darude

    darude New Member

    I can't believe all this!!!!!!!!! My second MRI they said it was a proteinaceous cyst because no blood products in and then the neuro said no it was a PT. It is in the central pituitary abutting the optic chiasm. Still don't really know so have to have another MRI. I also have a vessel or scar that showed up on chest xray and no-one seems to know what that is.
    [This Message was Edited on 08/04/2005]
  8. darude

    darude New Member

    Thats ridiculous PT's can cause a lot of our problems. other tumours as well what the heck!!!! Neuro said lesions were a normal course of aging. Hey I have his letter stating this so if hes wrong hes gonna be sued!!!!!!!! I'm gonna have mine taken out if I can. By the way did any of you guysd watch HOUSE the other night. Girl on there ended up with Pituitary tumour (after having heart attack).
  9. ibisgirldc

    ibisgirldc New Member

    But remember that pituitary tumors are not always a big deal. A much wider segment of the population probably has them and will never know and never have a single symptom. They're only a problem if they grow, produce, etc. It's not so much the tumor itself, but its location and function.
  10. darude

    darude New Member

    Ithink I have had for years but when I collapsed in 2003 and had massive headache for three months something happened.
  11. ibisgirldc

    ibisgirldc New Member

    Darude, I wasn't suggesting that yours wasn't a problem. Just for anyone else opening this thread, wondering if they, too, might have some sort of brain tumor... well, they might, but unless it shows symptoms (see www.pituitary.org for more info), it doesn't mean it's something to worry about. This is not something that doctors look for as preventative; you only look for it if you're having ailments that could be tied to a pituitary disorder. Lots of people have them and will never know, never be affected.
  12. darude

    darude New Member

    Ya I read that one in five have them!!!! Can sit there I guess and cause no problems and then one day, like me, bam!! It's very interesting isn't it. I will be investigating this.
  13. wangotango

    wangotango New Member

    if this tumor has grown, (it is 14mm) then they will attribute a lot of my problems to it. which changes gears for me as well. the surgeons because of where it is located are scared to touch it. any way thanks for the info.
  14. darude

    darude New Member

    Yea I just want to find out what can be done. A guy friend of mine was admitted to hospital with stroke like symptoms (like me). They too found tumour on pituitary and he had radiation and is FINE now.
    [This Message was Edited on 08/05/2005]
  15. darude

    darude New Member