Plantscaper re saliva test for hormones

Discussion in 'Fibromyalgia Main Forum' started by tansy, Jul 14, 2003.

  1. tansy

    tansy New Member

    Hi There

    I checked out Dr Sarah Myhill's (uk) site yesterday. She is a GP who treat CFS and other patients privately and uses the 24 hour saliva test for DHEA and cortisol. Her approach is holistic and she is one of the medical advisors to Action for ME.

    Dr Myhill actually explains what high or low levels and different combinations mean. That means you would only have to pay for the test. Alongside checking out your blood pressure changes you might be able to suss where the problem lies, and indeed if it is in this area.

    I couldn't find any similar information on the sex hormones though, but this weather is playing silly games with my body and brain so could have missed it.

    She also has another way of raising mg levels which is an alternative to injections and IV. I posted a topic on this yesterday. I believe this increases patient's options and is most suitable for those unable to attend a clinic regularly. Might be a good solution for those who cannot tolerate oral mg.

    Have you decided whether to try cytolog for your mother yet?

    Love

    Tansy
    [This Message was Edited on 07/14/2003]
    [This Message was Edited on 07/14/2003]
  2. Plantscaper

    Plantscaper New Member

    Just got online, again, for today..Thanks for the info..You mean, she would help with people in the States? I guess she would not be able to prescribe the Cortef, for us, here, would she? I really need to get that test done, but did not like Poesnecker's solution of using the glandulars, mainly, because Klutzo thinks that is not a good solution..and given her reasons, she sounds very right..I will go and read up on the Dr. Myhill's website..
    Thanks for thinking of me...

    Have you tried the Cytolog, now? I heard that you had made an order for it..I may be trying on my mother and me, soon..
    I seem to be needing more help with my sinuses, and PatPalmer indicated that it really helped hers, so..do you know what Pat is up to, lately..Has she started some nutritional training? Been trying to catch up on some work, at home today..Also, have not had rain in so long that must do a lot of watering, today, which required a recovery from, afterwards..

    I probably need to raise my Magnesium levels..but, have depended on the oral route..Have taken magnesium shots, in the past, with prior docs, but did not see a big change in symptoms..although, back then they did not know many ways to help our DDs..Used to have bad cramps when I administered the shot..Still administer my mother's shots, and have given myself different kind of shots..allergy, which made my symptoms worse...

    Hope you having a good day (relatively, speaking)
    Plantscaper

  3. tansy

    tansy New Member

    actually describes what the levels mean. They're under fatigue and hormones. She seems to favour DHEA but she mentions cortisol and doses as well. She has an e-mail address. With regard to the sex hormones she dilikes HRT and prefers more natural alternatives, unless it's clear there's no other choice.

    As soon as I saw this site I realised it might solve your dilemma too. There's loads of info, most of it you already know, but it's gives so much more direct help than most.

    I checked out some US sites for help but still not sure about any of them, if they all said the same I think I'd be happier.

    I'm in such a mess with this heat. Struggling to get sugar level up and stay there, realise now diet keeps it stable until some stress - bright lights, heat, sensory overload, sets things off. Then it plummets but it's never been as bad as this so hoping saliva test gives some clues. I'm going from the shakes, nausea and passing out, feeling very low blood sugarish, terrible headaches/pains to being totally wiped out. My body's certainly being stressed and challenged at the moment. Oh boy am I looking forward to a drop in the temperature.

    Managed to get hold of blood pressure reader so for a few days will check out responses to being vertical and when heat hits me badly.

    Cytolog hasn't arrived yet but will start that as soon as it does. Was concerned about milk allergy but considering how things are now a reaction's not going to be as bad as the hot weather. Hoping I can get things settled down enough to try OLE again but Pat thinks the cytolog may do a good job on it's own. It certainly appears to be a feasible option for your mother too.

    It's amazing how things have come together and now I have some understanding of what's going on. Couldn't have done all that without this board. As sujay said my case is complex and I'm sure yours is too. I knew there had to be some explanations and something more I could do, just had to find it.

    I think Pat starts her course in September.

    Love

    Tansy
  4. Plantscaper

    Plantscaper New Member

    I used to have really bad hypoglycemia, when my illness began, but now, I seem to be able to control it with diet..However, I have had such a bad hypoglycemic reaction like you are talking, about where I felt the huge dip, and then almost passed out until, they were able to get a coke (of course, another sugar to raise blood sugar and bad way to do it), but I was incoherent at a play..embarrassing..
    But, heat really bothers me...

    I really like the fact, that the doc leans more towards a natural way to treat the hormone debacle..I will check into it..

    I had a peptic ulcer..and was diagnosed with the H.Pylori bacteria..you have already had that checked out, haven't you for your intestinal tract..mine was in the stomach, so it was probably easier to detect..

    I really hope that Cytolog will help you, immensely..sounds
    like you need some really good improvement, soon..I had very frequent migraines, which the OLE really helped..although, lately, I think I need something stronger, cause my allergies are at their height, this time of the year..We have much more allergens in the air, now, with a lot of rain, earlier, that caused a bumper crop of all kinds of weeds, etc..I guess that with your English rains you are really affected by all of that..I live high up in the mountains and the snow usually gets rid of a lot of problems for me during the winter/early spring..

    Take care (it must really be late or early morning over there, whatever the case may me)..
    Goodnight or Goodmorning, Tansy
    Plantscaper
    [This Message was Edited on 07/14/2003]
  5. Plantscaper

    Plantscaper New Member

    I read about the adrenal test..sounds great, and like her take on it..What is the conversion from pounds to dollars..do you know? She indicated that it was 70 pounds..
    I am going to read, more, tomorrow..looks to be a very good place to be..Have you had your test done with her? My brain is drained, now..

    ~~Plantscaper~~
    [This Message was Edited on 07/14/2003]
  6. tansy

    tansy New Member

    on Dr Myhill's site she's one of the good ones. I pay £65 for my kit, but I wanted to include the sex hormones as well. Just DHEA and cortisol is slightly cheaper. GP ordered single sex hormones but it just came back as perimenopausal, like we didn't know that (!) It's a cost cutting exercise on the part of the hospital as usual.

    You should be able to access the kit in the US and it may well be cheaper, don't know the current exchange rate. I ordered mine direct from the lab. They send me the results so then I can check the results against her interpretations. If I'm not sure I will e-mail her and perhaps a few others as well.

    Come across a major problem which may effect you too. For most of the time I have a really dry mouth. You are not supposed to clean your teeth, eat or drink water for one hour before each sample. Tried to produce enough this morning and just ended up very aggitated - couldn't do it, sample is 1/4 of what they request; so have been taking loads of salt and drinking water before next sample due. Keeping as cool as possible so as to keep some water in my body.

    Went off line before your last message yesterday. Had dozed off several times during the day so clock's gone even more out of sync hence using board even later than before. In someways it's a good thing because more of you from the States are active then. By the time I got to the end of my "day" I had just cooled down enough to get my brain working a bit.

    It's even hotter today and I'm trying very hard not to get uptight, my body's doing enough of that already. The higher temp had been predicted but I just hoped they'd got it wrong. Could do with living in a cave just now, they stay cool in the summer. My home is too hot in the summer and too cold in the winter. In spring and autumn it's just fine.
    Roll on early autumn.

    It's great when we find a way around the high cost of medical care and testing. I'm probably going to have to find a way of first travelling then funding seeing David Dowson. There are two specialists (allergy) on Dr Myhill's list who see patients on the NHS, one has a two year waiting list the other works at the same hospital as my brother so I can get him to check his attitude to cfs out for me. I need someone who desensitises. If the waiting list is just as long it will have to be private. David does check for infections in an unorthodox way, but very much cheaper than the sophisticated ones being used at present. He's holistic and I trust him too which is important.

    Take care and have a good day.

    Love

    Tansy
    [This Message was Edited on 07/15/2003]
    [This Message was Edited on 07/15/2003]
    [This Message was Edited on 07/15/2003]
  7. Plantscaper

    Plantscaper New Member

    She has a lot of info I want to read on her website..that I have not been able to get to, today...I am somewhat confused, though, as to whether I could access her testing/treatments..Do you know if it is possible for people from U.S.?

    I finally found an integrative doc, in my local area..don't know if she treats CFS or not, but I am going to look into it..I know that she does use natural hormonal treatments, which is my direction..and don't know how expensive she is..
    Just wanted to let you know that I appreciate your effort..but fairly busy with mother's needs and cooking for family..

    Plantscaper