Plaquenil prescribed by..........??

Discussion in 'Fibromyalgia Main Forum' started by caroleye, Jun 27, 2006.

  1. caroleye

    caroleye New Member

    Has anyone had anyone but a "rheumatologist" prescribe this?

    Just had a horrible visit with one guy who hasn't a "clue".

    Thanks & LIGHT************carole
  2. jarjar

    jarjar New Member

    As most lyme docs will tell you that the vast majority of fm and cfs patients are undiagnosed lyme patients.
    I went went about 15 years undiagnosed thinking I had CFS.
    I suggest you try the plaquenil and if you don't have a die off reaction ask to take it with Biaxin xl.
    Your doc is on to something....he wants to see if a bacteria is causing your problems..Try it and see if you feel yucky or low grade fever. If you do you need to test for lyme.
    As I said tho the Biaxin a major lyme combo that will get your attention by killing off bacterai.

    best of health
  3. ginnytex

    ginnytex New Member

    My rheumatologist has prescribed Plaquenil for me, 200 mg twice a day. This is used for my lupus. My numbers were relatively low and I take plaquenil to keep them that way. I have no side effects that I can remember, I do have blood work done every months and I see an eye specialist every 6 months to check for any eye damage ( none at all)...The medication seems to help with the muscle pains in my legs. At least thats the way it seems to me. I have heard about doctors prescribing this even if they do not diagnose "lupus", as in my case, my doctor said he was not calling it lupus, but connective disease disease.Anyway I have been taking it for about 2 years and I seem to be in some sort of fibro remission, (may not have anything to do with the plaquenil, just my time for remission right now.)
  4. Jo29

    Jo29 New Member

    For my Lupus. I have felt so much better that I was wondering if I really had FM/CFS.

    My doctor says I still do. I was just thinking today that everyone with FM should try this. But maybe I had Lyme?

    I have never been tested for it. I did not have a die off reaction. I have just felt increasingly better every day. I have been doing so many things I haven't been able to do for many years.

    No bad side effects either.


    [This Message was Edited on 06/27/2006]
  5. lenasvn

    lenasvn New Member

    My previous MD prescribed it. Those are mild RA and Lupus meds, and can be prescribed by regular docs.

    I got sick from it, chronic fevers, viral-like states, more arthritic like pain than ever. I was weak and have constant high tachycardia.

    I wonder what I had, then? Well, I'll find out once I get to a rheumy in July hopefully.
  6. lv2sing

    lv2sing New Member

    I actually took it for 2 yrs, & felt alot better. It was also for the fatigue. My one side effect was gas pain/ stomache aches & cramping. It eventually got to where I could hardly leave the house, because I never knew when the cramping was gonna start, & I could barely walk once it started, then I'd be in the bathroom half the day. But I had much less fatigue & joint pain. If it wasn't for that, I'd still be on it. Because I'm feeling bad again. It's been a few years since I've taken it. My rheumy put me on Prednisine , only 5mg in AM. I've taken it for 3 months, & I am now weaning off. I can't stand it any more. I just feel awful on it. As far as the Plaquenil, I took 200 mg 2 x a day. My opthalmologist said the new studies show you can now safely have your eyes checked only 1x a year while on it, instead of 2, like they thought. As long as you have no prior problems.
    For the other person that mentioned Plaquenil & "die off" , with the antibiotic, what is that? I've never heard of that. I've wondered about lyme before, but have never been tested. Don't even know who to go to, or what tests to have done. I live in a small town, & I think most of the physicians would not have a clue. I do know I asked 1 doctor about it once, & he told me if I didn't have the "bulls-eye" rash, that I don't have it. Which they now know is not true, according to Center for Disease Control. Can you give me a clue? Thanks!
  7. JLH

    JLH New Member


    My Rheumy was the original doc who prescribed my Plaquenil for my lupus. But since I don't go to him as often, I just started having my primary care doc (Internal Medicine) give it to me.

    I have taken it for 10 years without any problems at all.

    Sorry to hear that you had a horrible visit with a guy who didn't have a "clue." What? Did he not know anything about Plaquenil???!!!!!!!

  8. caroleye

    caroleye New Member

    I was angry when I wrote my original post. I actually was wanting to know if another kind of Dr. (not rheumies) could prescribe plaquenil.

    This guy is a major researcher, and all he did was test the living daylights out of me; not just blood tests. Then I felt like I was taking Lupus 101. He's "very" traditional, and I'm sure the testing isn't bad, except sometimes my tests show "normal", and I'm wanting to try plaquenil wouldn't give it to me. Said he had to rule out other things, as I sit there with this huge red butterfly rash on my face!! And his letter diagnosing me years ago..........

    Since someone mentioned her internal meds Dr. prescribed it, that gave me my answer. I'll have to search out someone who will be willing to let me do some experimenting.

    My Lupus has progressed symptomatically over the last few years, and I need to get on top of it somehow.

    Thanks for all your info.


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