Please enlighten me. CFIDS and mono?

Discussion in 'Fibromyalgia Main Forum' started by KMD90603, May 1, 2006.

  1. KMD90603

    KMD90603 New Member

    Okay, so I had mono when I was 14 years old, and I believe that's when my CFIDS dates back to. HOWEVER, I had recent blood work done by my infectious disease specialist to test for everything under the sun, including EBV antibody panel and even parvo. The EBV came out negative, while the parvo came out positive for past infection but negative for recent infection. I'm confused though because I thought that EBV was what caused mono. So, if I had mono and EBV always shows up positive in your blood after having it, then how can it now be negative?

    I'm so frustrated because everything except the parvo virus came up negative. It's frustrating because I want some explanation as to why I feel so lowsy every single day. I mean, I know by now I should accept CFIDS, but I still long for an answer. I still long to be told I have a disease that can be treated, one that the rest of the world understands and accepts as being real.

    I hate feeling sooo sick every day. I slept 11 hours on saturday night and woke up feeling just as sick as the day before. I don't know why I even bother sleeping anymore, because I don't feel any better when I wake up. So what's the point? I give up, I GIVE UP!!! I'm tired of the fevers, sore throats, achiness, and the bone crushing fatigue. I want out!

  2. taniazcatz

    taniazcatz New Member

    Hi Kim,

    I had mono 10 times when I was younger and ever since then every ebv blood test comes back normal. YOu're right that mono and EBV are one in the same. I was taught in nursing school that when doctors do a blood test for EBV on patients who have had mono the way they determine if the virus is active or dormant is by a certain level on the test.

    DON'T GIVE UP!!! Please hang in there, you're not really alone I promise you. It may feel like it and there isn't a lot we do but support you but we can offer a safe place to vent and even cry if you need to. I've been there, I do understand how you feel.

    Things will get better. They may be slow to improve but they will improve. We all wish we had a diagnosis that at the very least the medical community understood. Our numbers are growing and we are slowly making these diagnosis' known to the world.

    My prayers are with you, I am very sorry you are feeling so bad right now. Try not to let the mono and the cfs get your very depressed, which is difficult I know but there is hope. There is light at the end of the tunnel and until you get to it remeber you're not in the dark alone, we're here with you, you cany see us that well!!!

    Please take care and let me know how youre doing, okay?

    Bye for now


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