PLEASE HELP: Adrenals & Hormone levels: saliva test results

Discussion in 'Fibromyalgia Main Forum' started by marilynb, May 20, 2006.

  1. marilynb

    marilynb New Member

    I recently did a saliva test to check my hormone levels. My husband & I went to the Pharmacist (also someone my husband went to Pharmacy school with & a good friend) to get my results, as she specializes in hormone replacement. I had a total hysterectomy when I was 25. I am now 52.
    Everything that was checked was low. My testosterone was non existant, as was my DHEA. She also told us, she would guess that my Adrenals weren't working at all. Her recomendation was T3 & Cortef along with testosterone & DHEA. With other things, I don't remember.
    She had given me a list of blood work to have done, which was:

    hsCRP

    Vit D3 (hydroxy vit D3)

    ANA

    Homocysteine

    Thyroid panel: TSH, free T3, total T3, free T4, total T4, reverse T3, TPO antibodies

    Fasting Glucose

    Fasting Insulin

    Hemoglobin A1c

    Lipid panel

    Well, I took this list with me to 2 different Drs & they would not even look at it! I do have an appointment with an Endocronologist on June 6, so hopefully I can get him to do these test. She said she would even go with me to the appointment, but I am wondering how the Dr. would feel about getting suggestions from her. Do you think it would upset him? I so think we are on the right track. I didn't know anything about Adrenals until she mentioned that. I have since been doing a lot of research on that & have found the same symtoms of FM (which is what I have, along with Oestoarthritus of the neck, with bulging disks & bone spurs) among other things.

    I told her I thought my body needed a detox & she said my body would not be able to take it right now. I have been congested since December & went to my Dr. last week & he gave me antibioctics, which have done NOTHING!

    I just want to be well again. My whole family is at the lake today & here I sit at home. I just don't have the energy to do anything.

    Do ya'll think we are on the right track? She told me to read Adrenal Fatigue by Dr. Wilson. Has anyone read it?

    Please help. Any advise would be well appreciated.

    Thanks,
    Marilyn

    [This Message was Edited on 05/20/2006]
    [This Message was Edited on 05/21/2006]
  2. suzetal

    suzetal New Member

    Storm posted this earlier today it might help you.It also has a section on testing.Theres a web sight that might have info.

    Sorry your going through this.

    Sue

    ain Care Bill of Rights 05/20/06 06:18 AM

    http://www.painfoundation.org/ The "Pain Care Bill of Rights" is as follows:

    As a Person with Pain, You Have:
    The right to have your report of pain taken seriously and to be treated with dignity and respect by doctors, nurses, pharmacists and other healthcare professionals.
    The right to have your pain thoroughly assessed and promptly treated.
    The right to be informed by your doctor about what may be causing your pain, possible treatments and the benefits, risks and costs of each.
    The right to participate actively in decisions about how to manage your pain.
    The right to have your pain reassessed regularly and your treatment adjusted if your pain has not been eased
    The right to be referred to a pain specialist if your pain persists.
    The right to get clear and prompt answers to your questions, take time to make decisions, and refuse a particular type of treatment if you choose.
  3. Jeanne-in-Canada

    Jeanne-in-Canada New Member

    something.

    It just rots my socks, that FM is only considered a syndrome of exclusion. Meaning they run very basic tests, FOR OTHER THINGS, and if those are ruled out, then they toss you in file 13, which in this case is FM or CFS.

    If docs ran those more comprehensive tests, they'd be bound to find something. My env. doc runs alot of tests that regular docs don't bother w/. My GP asks for copies to be sent to him, and then he ignores them, and even grumbles that she's overwhelming him w/ paperwork. Needless to say, it was soon after I changed my doc. My physical was only a pap test, no blood pressure, stethoscope, not even routine tests. I had to beg for a hormone panel to be run, and he's ignored those results too, even though most hormones are low, which I told him I have the symptoms of.

    Docs don't want to bother w/ FM. They are trained not to. It's no wonder they don't believe it's real, when they get orders from above to only run tests that will come back normal for us. There are plenty of tests, that if run, would prove lots of things are out of wack. I know, because my extensive testing env. doc finds them all the time.


    Jeanne
  4. marilynb

    marilynb New Member

    Fight4cure, what is Prolactin? Should I have that checked too?

    How did you get everything checked? If I can't get anyone else to do these test, I may have to end up going to FFC. Just trying to keep my out of pocket expense down.

    Marilyn
  5. grace4u

    grace4u New Member

    I finally went to cfs center in Dallas Texas. I had many test run about $6000. worth. We had large amount of out of pocket expense for dr. but ins paid most lab(blessed)I read an article and most important in our condition are thyroid and sex harmons. I have to admitt that my dr. has been right on the money from what I have read. It is most imp to do a reverse T-3.Most thyroid tests miss a low thyroid reading.Progestrone level was low, testostrone was nonexistance(causing no sex drive)cortef is for the adrenal glands that are usually worn out and not producing much any more.It is a cortisteroid which wires me and keeps me awake 23 hours at a time. Cortef produces cortisol which our bodies produce during stress, but fails to prod. now. I could not understand why would I want to take cortisol if that is what helped cause me to be sick in the first place. Anyway I am still learning and wanted to share what I have gleened. I am a nurse and it,s difficult for me to understand let alone those without med background good luck Grace
  6. grace4u

    grace4u New Member

    Grace again I forgot to include that at cfs center they go by their own range of norms. Though my thyroid test results elsewhere are not considered low, using their norms they are therefore I was treated where I might not have gotten the treatment elsewhere. I was going to go to endocronologist ect. My husband and I decided to spend the money up front and skip the run around. I could not take any more "there is nothing wrong with you"--visits from dr. to dr. We are now broke but feel like we made the right choice.
    good luck Grace
  7. marilynb

    marilynb New Member

    Which Dr do you see at the CFS clinic? Is it the FFC in Dallas? I was considering going to that clinic. I went to one of their seminars, but have not decided if it was worth all the money (that I don't have) I guess I will go to the Endo Dr & then go from there if he doesn't do anything.

    I was also told by the Pharmacist friend that everything has a range & most Dr.s just say, "they are in range" & don't actually look at the whole picture. She said even though some things could be in range, it might be very low & not the optimal amount. My husband was really not on board with my illness & now since talking to her, has really started doing some research himself. He still does not believe in FM & believes it is all hormone related & thinks he can "fix me". That is great, if that is what happens. He even cleaned to kitchen the other night, even loading & running the dishwasher. I can't even remember when he last did that. I don't really care if he doesn't believe in FM, I am just glad he now understands that I AM sick & will hopefully give me more support. However, I did not go to the lake with him this weekend & I know that bothers him. I am hoping he will become more understanding about that.

    Marilyn