PLEASE HELP BY PARTICIPATING IN STUDY OF CAUSES OF FMS

Discussion in 'Fibromyalgia Main Forum' started by ataylor, Mar 5, 2003.

  1. ataylor

    ataylor New Member

    I am Amber Taylor, a senior Exercise Science/Pre-Physical Therapy major at Mississippi University for Women in Columbus, MS. I am involved in a senior research project on causal factors of FMS. For my senior project, I chose to study fibromyalgia because I feel a need to help FMS patients. There has to be a cause for this debilitating disorder. Please help by taking just a few minutes to answer the 20, simple, one word answer questions below. I listed my email address in case you do not feel comfortable putting your responses to the questions on the board. Simply "copy and paste" the questions into your forum response or email so it will make answering the questions easier for you.



    Participating in this survey is a voluntary action. All information is given anonymously and will in no way be linked back to the participant. The participant may terminate their participation at any time during the survey with no negative consequences to the participant. By responding to this survey, the participant is acknowledging that they participated in the survey voluntarily.



    Please fill out this survey only if you have been clinically diagnosed as suffering from Fibromyalgia and are not diagnosed with Chronic Fatigue Syndrome.

    1. How long have you been suffering from Fibromyalgia?

    2. Has anyone in your immediate family been diagnosed with
    Fibromyalgia? A blood relative?

    3. Has anyone in your immediate family been suspected to have fibromyalgia and had not been assessed or diagnosed? A blood relative?

    4. Was there a trauma that occurred that seemed to “set off” your symptoms of fibromyalgia?

    5. Was there a life change or stress that occurred before the onset of the symptoms that you feel might have played a part in the on-set of your disorder?

    6. Are you currently taking any of the following medications?
    a) Sertraline (Zoloft)
    b) Fluoxetine (Prozac)
    c) Paroxetine (Paxil)

    7. Are you currently taking any of the following medications?
    a) Amitriptyline (Lavil)
    b) Doxepin (Sinequan)
    c) Nortriptyline (Pamelor)

    8. Has acupuncture therapy been suggested by your doctor?

    9. Do you have difficulty concentrating?

    10. Do you have any problems with your short term memory?

    11. Do have problems sleeping?

    12. On average, how much sleep do you get a night?

    13. Do you wake feeling well rested from a night of sleep?

    14. Are you currently taking medications that are a prescribed sleep aid?

    15. Are you currently being treated for hormone problems?

    16. Have you been diagnosed in the past with any hormonal problems?

    17. Have you been diagnosed in the past with any glandular problems?

    18. Have you been diagnosed in the past with any hypothalamus problems?

    19. What is your age?

    20. What is your sex?


  2. swred5

    swred5 New Member

    1. Diagnosed 2 years, symptoms as long ago as 20 years
    2. Yes, Mother
    3. Yes, Father
    4. No
    5. No
    6. No
    7. No
    8. No
    9. Yes
    10. Yes
    11. Yes
    12. 8 hours, but not restorative
    13. No
    14. Yes
    15. No
    16. No
    17. No
    18. No
    19. 30
    20. Female
  3. nefran5

    nefran5 New Member

    1. Have had symptoms 18 years. Was diagnosed by a rheumatologist at U of Oregon Health Science center 10 years ago.

    2. No, no

    3. no, no

    4. yes. A car accident. I was walking in a cross-walk.

    5. yes. exposure to film processing chemicals and art (painting) chemicals for extended periods fo time.

    6. no
    7. no
    8. yes
    9. yes
    10. yes
    11. yes
    12. Varies from waking every hour, to waking every 4th hour, to sleeping 9 solid hours.

    13. sometimes yes, sometimes no.
    14. no
    15. no
    16. no. have been tested
    17. no. have been tested
    18. no. have been tested.
    19. 50 years
    20. female

  4. Kathryn

    Kathryn New Member

    1. Symptoms since 1989
    Dx "Probable Fibrositis" 1990 or 91
    Dx Fibromyalgia 10/2002
    2. No
    3. No
    4. Initial traffic accident 1989. Several more through most recent 2/1999.
    5. No
    6. No
    7. No
    8. No
    9. OH, YES!!!
    10. Memory? What's that?
    11. Only when trying to sleep. If I am supposed to be awake, I can fall asleep without notice.
    12. 2 - 4 hours.
    13. Never.
    14. Tried several rx. They all kept me awake.
    15. No.
    16. No.
    17. No.
    18. No.
    19. 55
    20. Female

  5. jgckeyes

    jgckeyes New Member

    1.dx--2-3 yrs ago, but life long symptons

    2.cousin

    3.no

    4.yes

    5.not sure

    6.yes- zoloft

    7.no

    8.no

    9.YES

    10.yes

    11.yes

    12.3hr

    13.never

    14.no

    15.hrt

    16.no

    17.no

    18.no

    19.47

    20.female

    I too would like to see your results, Thanks
    Jenny
  6. EllenComstock

    EllenComstock New Member

    Thanks for your willingness to study this condition. We need all the help we can get!

    Answers:

    1. I was diagnosed with fibro in July 2002, but believe I have had it most of my life. I am 44 now, and remember having problems back to my early teens.

    2. No one that I know definitely was diagnosed. My father, who has since passed away, used to complain about pain that is similar to the pain I have, but he was never diagnosed.

    3. Yes. My dad.

    4. I had some emotional and physical trauma in my teens which may have set the stage for the fibro.

    5. I am not really sure. I do know that stress definitely increases my pain and stiffness.

    6. I am not taking any of these medications.

    7. Amitriptyline. (Elavil is the brand name, not Lavil).

    8. No, but in the reading and research I have done, I have wondered about trying it.

    9. Yes, very much so. Some days are worse than others.

    10. Yes, all the time. Have to write things down.

    11. Yes, definitely.

    12. Some nights are better than others, but I would estimate five to six hours.

    13. No, never. Not even on my "good" nights.

    14. Yes, amitriptyline and melatonin (I know melatonin isn't a medication, but my doctor recommended it).

    15. No.

    16. No.

    17. No.

    18. I have low thyroid and take 60 mg. of Armour thyroid a day.

    19. 44.

    20. Female.

    Good luck with your project!
  7. Katlover

    Katlover New Member

    Since I have recently been diagnosed with CFS I guess I am out of being able to participate in the survey. Amazing how many of us were involved in auto accidents, huh? Please keep us informed of your findings. Would love to know what you find out after looking at your surveys, etc!
    Kat
    [This Message was Edited on 03/05/2003]
  8. LeLeHpr

    LeLeHpr New Member

    1. 3 Years
    2. Yes, mother, & grandmother.
    3. Nope, all have been diagnosed.
    4. Possible that EBV did it? Who knows for sure.
    5. Nope
    6. A)NO B)NO C)NO
    7. Nope, only buspar
    8. Nope
    9. YES
    10. YES
    11. YES YES
    12. Maybe three to four hours..
    13. Nope
    14. Nope, they are way too sedating..
    15. Nope
    16. Nope
    17. Nope
    18. Nope
    19. 26
    20. Female
  9. klutzo

    klutzo New Member

    1. 17 yrs.

    2. No

    3. No

    4. almost died in a car accident, unconscious with closed head injury

    5. a cold, a strict diet and lots of overtime work

    6. No

    7. No

    8. No, but I had 22 sessions anyway with no help from it.

    9. No

    10. Yes

    11. Yes, sleep study showed delayed sleep-phase onset and 40% alpha wave intrusion into theta sleep, no delta sleep.

    12. 5 1/2 hrs. I alternate between 8 hr. and 4 hr. nites usually.

    13. usually, due to meds.

    14. Yes

    15. Naturopathically (take pregnenelone)

    16. No

    17. No

    18. No

    19. 52

    20. Female
  10. totteacher

    totteacher New Member

    1. 5-6 yrs.
    2. no
    3. no
    4. no
    5. yes--My sister became unable to care for her children and
    they came to live with me.
    6. no
    7. yes-(c)
    8. no
    9. yes
    10. yes
    11. sometimes
    12. 6-8 hrs.
    13. Most of the time
    14. yes-nortriptyline
    15. yes-HRT
    16. no
    17. no
    18. no
    19. 54
    20. F
  11. Sandyz

    Sandyz New Member

    I appreciate your study ATaylor. My answers are as follows:

    1.At least 15 years
    2.no
    3.yes
    4.yes
    5.no
    6.no
    7.no
    8.yes, but it didn`t help it
    9.yes
    10.yes
    11.yes
    12.7-8 with meds-3-4 hrs. without
    13.only if I take meds
    14.yes
    15.yes
    16.yes
    17.no
    18.no
    19.45
    20.female
  12. Combatmedic

    Combatmedic New Member

    1. Have had this for 6 yrs.

    2. My mother, her sister, maternal grandmother, my father's sister and her daughter both.

    3. My mother's youngest sister, my cousin (male) 29--has Parkinsons also.

    4. I have hurt, and suffered fatigue since a young teen, then had a car accident in 1997 ( age 19, only suffered a broken left collarbone), then (Feb-July 1999, age 21) boot camp/additional training for the National Guards, ALL hell started breaking loose with my body while in the military---I have not been the same since.

    5.no

    6.no

    7.no

    8.no

    9.yes

    10.yes

    11.yes

    12.1&1/2-5 hours

    13.no

    14.no

    15.no

    16.yes

    17.no

    18.no

    19.25

    20.female


    Medic
    [This Message was Edited on 03/05/2003]
  13. Annette2

    Annette2 New Member

    1. 5 years

    2. No (I have an identical twin sister who does not have FMS)

    3. No

    4. Yes, a lot of emotional stress

    5. Same as above - emotional stress

    6. No

    7. No

    8. No

    9. Sometimes I do - I have to focus very hard

    10. Yes

    11. Yes, I take medication to help me sleep

    12. 6-7 hours (with medication)

    13. Sometimes

    14. I take Neurontin and Trazadone

    15. Right after I was diagnosed with FMS my periods stopped - no perimenopause or anything - just stopped. I was 48 years old. I went on hormones right away. This past November I had a total hysterectomy. I stopped taking hormones about 2 months ago.

    16. No

    17. No

    18. No

    19. 52

    20. Female
  14. teawah

    teawah New Member

    1. 31 years
    2. yes, sister and mother
    3. yes, both my sons
    4. not that I know of. Symptoms started at around four y/o
    and I was taken to the hosp. numerous times. Never
    found anything.
    5. possibly abuse. Physical, mental, sexual, etc.
    6. no
    7. no
    8. no
    9. yes
    10. yes
    11. yes
    12. 4-12 hours
    13. no
    14. no
    15. yes, HRT for complete hysterectomy
    16. no
    17. no
    18. no
    19. 35
    20. female
  15. AchyAchyBod

    AchyAchyBod New Member

    1. How long have you been suffering from Fibromyalgia? Four Years

    2. Has anyone in your immediate family been diagnosed with
    Fibromyalgia? A blood relative? No

    3. Has anyone in your immediate family been suspected to have fibromyalgia and had not been assessed or diagnosed? A blood relative? My Mother.

    4. Was there a trauma that occurred that seemed to “set off” your symptoms of fibromyalgia? Yes

    5. Was there a life change or stress that occurred before the onset of the symptoms that you feel might have played a part in the on-set of your disorder? Yes

    6. Are you currently taking any of the following medications?
    a) Sertraline (Zoloft) No
    b) Fluoxetine (Prozac) No
    c) Paroxetine (Paxil) No

    7. Are you currently taking any of the following medications?
    a) Amitriptyline (Lavil) No
    b) Doxepin (Sinequan) No
    c) Nortriptyline (Pamelor) No

    8. Has acupuncture therapy been suggested by your doctor? Have had this procedure.

    9. Do you have difficulty concentrating? Yes

    10. Do you have any problems with your short term memory? Yes

    11. Do have problems sleeping? Yes

    12. On average, how much sleep do you get a night? 6 hours

    13. Do you wake feeling well rested from a night of sleep? No

    14. Are you currently taking medications that are a prescribed sleep aid? Yes

    15. Are you currently being treated for hormone problems? No

    16. Have you been diagnosed in the past with any hormonal problems? No

    17. Have you been diagnosed in the past with any glandular problems? No

    18. Have you been diagnosed in the past with any hypothalamus problems?

    19. What is your age? 41

    20. What is your sex? Female
  16. lassiecass

    lassiecass New Member

    Hi Amber,
    1. 5 years since diagnosed, figure I had it about 10. 2. First cousin has been diagnosed. She is 56.
    3. My Mom has EBV and I suspect my daughter might have Fibro.
    4. I contracted a really bad virus on a plane to Europe in 96 and symtoms recurring and no complete recovery, then pain in legs,arms,feet hands and sleeping problems.
    5. I took care of my mother-in-law with Alzheimers for eight years and helped care for my Dad who was dying of cancer before and after trip that seemed the catalyst.
    6. no
    7. no, on Elavil breifly but discontinued due to weight gain that made symtoms worse.
    8. No did it on my own and have been greatly helped by it.
    9. Yes, at times
    10. Yes
    11. Major
    12. 4 hours if I am lucky
    13. No, only tylenol PM 3 2 benedryl
    14. Yes, Estrace 10 mgs total hysterectomy in 2000
    15. Just Estrogen replacement
    16. No just the replacement Estrogen
    17. Graves disease
    18. No
    19. 54
    20. Female as you might have gathered by the hormone question.
    Much luck to you Amber.
    Sandy (Cass)
  17. bejo

    bejo New Member

    1-at least 12 years
    2-no
    3-no
    4-no
    5-no
    6-no
    7-a
    8-no
    9-yes
    10-yes
    11-yes
    12-6 1/2 hours
    13-no
    14-yes
    15-no
    16-no
    17-no
    17-no
    18-no
    19-60
    20-F
  18. mapessd

    mapessd New Member

    1.about 17 yrs i think but dx. 2yr ago
    2. no
    3. no
    4. not for sure
    5.no
    6. no
    7. no
    8. no
    9. yes
    10. yes
    11. yes
    12. 8 to 9 hrs
    13. not at all
    14. i did but stopped it didn't make any differnce
    15. no
    16.no
    17. no
    18. no
    19. 49
    20 .female
  19. lagm31

    lagm31 New Member

    1). 5 yr.
    2). no, no
    3). grandmother
    4). auto accident
    5). no
    6). Fluoxetine (Prozac)
    7). no
    8). not by my Dr. but by my counselor. Insurance does not cover any part of accupuncture.
    9). yes
    10).sometimes
    11).yes
    12).3-4 hrs
    13).no
    14).yes
    15).I am taking Estratest now
    16).no
    17).no
    18).no
    19).42
    20).Female
  20. jeniwren

    jeniwren New Member

    Hi Amber....hope this info is of help in your research.

    1.Just recently diagnosed.....but approx 16-18 yrs

    2.No

    3.No

    4. No.

    5. Yes.Started Uni,had ovaries removed because of polycystic ovary syndrome & cancerous cells found in biopsy, went into full-on menopause.

    6. No.

    7. No.

    8. No.

    9. Yes.

    10. Sometimes.

    11. Sometimes

    12. Anywhere from four to six.

    13. Mostly no.

    14. No.

    15. Yes.

    16. Yes.

    17. No.

    18. NO.

    19. 39

    20. Female.

    Wishing you peace
    Jeniwren