please help me???Bleeding from nipples

Discussion in 'Fibromyalgia Main Forum' started by carebelle, May 5, 2006.

  1. carebelle

    carebelle New Member

    I am hurting soooooooooooo bad today.My lumph notes hurt in the bend of my legs and all under my arms .I have had bleeding from my nipples for 6 months, but they cant figure out why.They have been doing my Mamograms every 3-4 months.They also leak a clear liquid and milk.just the pass two days I have been in such pain and it get worse.Is there a way to clean out my lumph notes???
  2. Juloo

    Juloo Member

    Please call your doctor today.

    If your doctor can't figure it out, maybe it's time to find another.

    From the wrongdiagnosis web site:
    ______________________

    Possible causes of symptom: Bleeding nipple: The following medical conditions are some of the possible causes of Bleeding nipple as a symptom. There are likely to be other possible causes, so ask your doctor about your symptoms.

    Benign breast tumor
    Breast duct cancer
    Breast cancer
    Breast duct papilloma - typically a bloody nipple discharge
    Breast abscess
    Paget's disease of nipple - can cause a bloody nipple discharge
    See causes of nipple discharge, breast pain, breast lump, or other breast symptoms


    [This Message was Edited on 05/05/2006]
  3. carebelle

    carebelle New Member

    my doctors know about this problem.So far they just keep giveing me test.and don't find out anything.I have another appointment on Mon.but I am so tired of not getting any ansewers.
    I've told my husband when I die donate my body to health research maybe then they can find out why I have all these problems.Hopefully they can help someone else to live a painfree life.
    I already know about what it could be but they haven't found it to be any of those things.Now they just keep REPEATING test .My dad died from a rare cancer two years ago ,I am worried they will not be able to help til its to late.These are Military Doctors and I just dont know what to do, to get to an ansewers before it is to late.I have to use this system and I have seen different Doctors I dont know what to do .I have even been to Walter Reed one of the best hospital there is.
  4. Marta608

    Marta608 Member

    .... looked into your hormone levels?

    Marta
  5. jhmitch

    jhmitch New Member

    Hi Carebelle!

    I'm so sorry to hear you are going through all this pain and distress!

    When I had a similar problem about five years ago in my left breast, at first it was diagnosed as an abscess and a breast duct was removed.

    A year later, this same breast had swelling and bloody discharge around the nipple. Another breast duct was removed.

    A few months later, a similar situation occurred (same breast) so I went to a different doctor who ordered more tests and diagnosed Paget's disease of the nipple.

    Once the second surgeon removed all the ducts in the left breast, I've had no more problems (keeping my fingers tightly crossed). Since then, I've had 6-month mammograms and follow-up exams.

    I understand the frustration, fear, and misery you are experiencing right now but really do encourage you to keep on hunting for the right diagnosis.

    Have you had a stained biopsy done on your breast tissue?

    If you've already had a second opinion, and it is possible, please consult another doctor for a third one.

    Please let us know what you find out.

    Many hugs,

    Janice (been there - unfortunately)
    [This Message was Edited on 05/05/2006]
  6. Juloo

    Juloo Member

    Sorry to be so blunt, but get your butt OFF THE BASE and to another doctor. This is YOUR HEALTH. Take out a loan if you need to, just GO!

    I am not and have never been in the military, but my father-in-law was, and my husband was a military brat. The number one impression of hearing them talk is complete incompetence.

    Our local base hospital has been in the news so many times because of erroneous medical judgements that I cannot even count. The stories are so sad and frightening. It has been one of the major medical stories in our area for several years running.

    My apologies to all *good* doctors who just happen to be in the military. But you must know that the system just isn't set up for consistancy in peacetime-type health care needs. To those on this board, if this were your wife, sister, mother or daughter, what would YOU recommend?
    [This Message was Edited on 05/05/2006]
  7. carebelle

    carebelle New Member

    yes I have had a MRI to check my pituary glands for a tumor nothing shows up.I also went to an outside endocnlogest Dr.but he sent me for the mri, when it came back no tumor ,he told me to check back in 6 months.
    I also had a biopse for a lump and it was necative.I have been told that your milk ducts should be the size of a thread but that mine are the size of a pencil.They dont know why .I didnot breast feed my babys years ago if that even matters.
    .Please forgive my spelling I have Fog when I type and I cant remember how to spell nothing looks right.
  8. Cromwell

    Cromwell New Member

    Can make this occur. Have they checked your prolactin levels? If not make them do this right away and also have an MRI of the pituitary gland.

    There are also some meds that cause galactoreah(fluid from nipples) that is sticky, often blue or green and often with a feeling of fullness as if you need to squeeze out the fluid. Reglan is a biggie.

    Also, galactoriah can be a symptom of other illnesses, I would see an endocrinologist for sure. Just checked in and saw your comments.

    Well you saw one(endo), maybe they missed something. Are you on any meds at all that could cause this? That sounds as if it could be Pagets. Have they biopsied the ducts. Nacy Reagan years ago had ductal cancer and lived all those years after still. You must be worried sick. I aree, can you get a second opinion off the base? The army etc have good surgeons but regular doctors in the specialty fields can be iffy. I am sorry we are all saying the same things and that your tests are not showing anything. Can you make sure your MRI gets re read by a neuro radiologist as ordinary radiols. miss things.

    Love Anne C
    [This Message was Edited on 05/05/2006]
  9. FM2004

    FM2004 New Member

    Have you had an xray of your pituatary. And there is a test that they put dye through your milk ducts and take pictures to see if you have ductal cancer. You really need to get a doctor who will be aggressive and see about this problem.
  10. findmind

    findmind New Member

    I would be frantic, you poor thing.

    The military hospitals are pathetic in the fields of endocrinology, esp., I cannot get any help that way.

    I would go to the nearest Cancer Therapy and Research Center...they will treat you on a "needs" based basis, and they will find a way to help you no matter what, and often the military will even pay for your care there if they haven't been able to find out the cause.

    Or, if that's not an option...the military hospitals can refer us to the major university/teaching hospitals if they can't solve the problem...ASK!

    Hoping you find answers NOW...or Monday at least!
    findmind
  11. elliespad

    elliespad Member

    Where this longwinded story is going, is DIOXINS and EXCESSIVE Estrogen.

    Just wanted to tell you, while I was a teen, my mother developed bleeding nipples. She also had lots of testing and they never determined a cause. She also had a few breast lumps biopsied, no cancer. She had severe hemmoraging with her periods. She would stand up, and gush a river.

    She had a MULTITUDE of OTHER SERIOUS health problems, but until her death at age 62, there was never any other issues with breast health. (She DID have Muscular Dystrophy, Myasthenia Gravis, Schizophrenia, Lung Cancer, Asthma, COPD, SEVERE Osteoporosis, 3 collapsed vertebrae)

    Also, I have 2 SHAR PEI. Mother and daughter. Both of them had bleeding nipples when they were around 2 or 3 years old. There is a lot of cancer in the breed, in general, and that was, of course, a concern. The grandmother to the oldest dog died from Mammary Gland cancer at age 11 or 12. This breed lives 8-10 years, so that is still VERY old.

    Dogs produce ALL pregnancy hormones each time they ovulate, whether pregnancy occurs or not. Humans only produce pregnancy hormones IF pregnancy occurs. BOTH my dogs' nipples bled, during the time they were "IN SEASON" and for a month or two after.

    If you read my BIO you will see I grew up next to a Pesticide Company. Lots of pesticides are Endocrine Disruptors and Dioxins mimic Estrogen, but of course ISNT a true estrogen. Dioxins have been linked to many female problems, such as Fibrocystic breasts, endometriosis, excessive menstrual bleeding, infertility.


    Now you wonder how the dogs health could be affected? AGAIN, I just happened to move (17 years ago) to another community where there is (was)another branch of this same Pesticide Company. UGH. Can you imagine? I live about a mile this time, but we had wells until 2 years ago when GE was forced to pay for the entire town to get on public water because of contaminated wells. So, while this is a crazy, rambling chain of events in my life, I wanted you to know WHY I thought you should research DIOxiNS and EXTROGEN and perhaps go that route, once you are satisfied that more urgent and serious concerns have been ruled out.

    Also, my daughter, was about age 19 or 20 when I had her hormone levels tested, as she showed all the classic signs of Estrogen Dominance. I have been treating herfor couple years with Natural Progesterone cream for her SEVERE fibrocysitc breasts and SEVERE periods, and she had 95% improvement the VERY FIRST MONTH.

    Also, my dogs are now 8 1/2 and 6, both robustly healthy.
    The oldest is a senior and doing well, thank God, cause of love that dog.

    I wish you the best.
    [This Message was Edited on 05/06/2006]
    [This Message was Edited on 05/06/2006]
  12. Treca

    Treca New Member

    GET AWAY FROM THE MILITARY DOCTORS!!!!!!!! I am on a military base! PLEASE, PLEASE, PLEASE whatever you do find another doctor off base!!! I'm sorry, but the majority of military doctors DO NOT CARE!! They change positions so much why would they care??? They are always ETSing or their contract is up. I've had this happen so many times I've lost count. I know that there are some doctors on bases that really truly care and are nice, but if they are not doing what they should to help you then it is time to move on.

    Just think about it your doctor keeps doing the SAME TEST OVER AND OVER AGAIN????? That is a big light bulb moment. They could be endangering your life because of this.

    I implore you to get someone OFF base to test you using different test that haven't been done and don't settled if the doctor is not doing other test then the ones that have been done before. Just keep searching.

    I am extremely concerned about your welfare. I know it's nice to not have to pay for visits, tests, and meds, but not when they won't do new test and keep doing the same ones over again with no results and no answer to your problems.

    I hope that I didn't come off harsh. I just want you to get the best treatment and concern from your doctor that you deserve. I pray that you find the doctor that you need and that they will find out the problem and be able to help you like they should.

    Big hugs to you from a military wife who knows what your going through (as far as the military doctors go :))

    Treca
  13. mme_curie68

    mme_curie68 New Member

    I think the best specialist for you to see is a breast surgeon. Several years ago, I found a lump in my breast. Had mammogram, etc.

    My doctor sent me IMMEDIATELY to a breast surgeon. They are the experts when it comes to matters of the breast.

    Fortunately for me, I did not have to have it removed. I have fibrocystic breasts and this was a benign fibrocystic lump. I could have had it removed, but the doctor said that removal is no guarantee that another inflammation and lump would not occur and the size of the scar would have been terrible and because it was not cancer, I would not be covered for reconstructive surgery.

    I think the best website for ANY breast problem whether it is benign or cancer is www.breastcancer.org

    Please check it out and see if you can find a breast doctor in your area. My sister's husband was active duty navy for 5 years. Even living in Washington DC gave her no access to any good military doctors unless you went all the way up to Bethesda Naval.

    I have mammograms every year now to keep on top of everything.

    The good news is that if it's painful, chances are it is NOT cancer. That's the problem with most breast cancers versus other breast diseases - NO PAIN to tell you something is going on.

    Before you go to see breast doc, take a Sharpie permanent magic marker and do a breast self-exam. Where ever you feel something that is "abnormal" for your breast keep a finger on it and then mark the spot with the sharpie. This helps the doctor and the radiology tech who is giving you the mammograms to concentrate on the spot.

    The marker will eventually come off with soap and water.

    Breast cancer, like prostate cancer, is generally SLOW. This means that many mammograms in one year really won't yield any productive information - for significant changes to be visualized on a mammogram, it can take more than a year.

    Get your records and your films and go see a breast surgeon. Also, see a woman if you can. I don't think male doctors quite get WHY breast problems freak us out. Throw a penis problem their way though and watch them all run around like chickens with their heads cut off....

    The first thing mine did when she came into the exam room after greeting me was put my films up on the light box and walked me through my mammogram results.

    Good Luck and keep fighting.

    Hugs,
    Madame Curie
  14. carebelle

    carebelle New Member

    I have been seeing a female surgeon .I am thinking about everything you all have said and agree with you .I plan to see another Doctor on mon. but I am going to ask my surgeon at my next apt if I can give me a referal for an outside doctor,If they will not put me in the hospital and find out what is wrong.It's weird ,I know what I would be telling someone else to do and why. I just don't understand why I can't be more agressive about my own health.I think it has something to do with being told for so many years that I need to "learn to live with" my CFS and FM that there is nothing more they can do.Does that make sence ? It's like being kicked down so much you just don't know how to, or even if you can ask for anything better.Thank you all for understanding it does help to have your thoughts and encouragement to keep going.I will be sure to let you all know what I am doing and what they find.
  15. carebelle

    carebelle New Member

    I went to the doc today.He took more bloodwork.I go fri to get my mamagram and sonagram again.Then next week I see the surgon.
    He gave me Etodolac 400MG (Lodine EQ) for pain.I dont think I have ever had this and I took it 3 hrs ago I'm still in pain.
    Well I'll write more after my other apts next week.Keep me in your prayers
  16. ANNXYZ

    ANNXYZ New Member

    and was leaking milk from my breasts FOR NO REASON. The military GYN told me he could find nothing wrong and that I needed psychiatrist . ( THIS IS TRUE! ) I think he thought i was just a mental case bec I was crying and scared . I also developed HORRIBLE insomnia.

    I later went to another doc who found I had a SKYHIGH prolactin level and related it to a med I was taking - REGLAN. It also caused the insomnia .

    FIND ANOTHER DOCTOR , and do not take anything personally that these insensitive docs may say . Military medicine is socialized medicine . Some of the docs are saints , and others are incompetent and do not really like people or patients .

    Even if you have to raise Hell , put your feet down and be firm about a referral .
  17. kellyann

    kellyann New Member

    Hi,
    My aunt had the same thing once, the doctors told her it was from too much caffeine.

    I have had a dark green discharge for many years, yuck! And also swollen and sore breats. I was told after my last mamogram that I have fibrostic breast disease. I personally think mine is caused from Lyme disease. It is a symptom of lyme to produce milk, have painful breasts, etc. I have noticed an improvement, not as much discharge, and the swelling has gone down since I have started antibiotic treatment. I do need to get a mammogram done, since it has been a few years since I had one.

    There are a lot of reasons you could have bleeding or milk production. I would check it out!

    Take Care and Good luck!
    Kellyann