Please help Migraines are out of control

Discussion in 'Fibromyalgia Main Forum' started by matthewson, Jan 2, 2007.

  1. matthewson

    matthewson New Member

    I have had 3 migraines in the last 4 days! I am about to go insane! I only started getting migraines in the last couple of years (52 years old) and have not had them very frequently except for the last month and 1/2 I have had 6 of them! I have imitrex 50 mg to take and also tigan for nausea, but I haven't taken the tigan, because it is sedating and by the time I figure I have a migraine, I am taking my vicoden that I have for breakthrough pain, and I have been hesitant to try it.

    I had a very bad reaction to phenergran in the ER, I started jerking uncontrollably for about 20 min. I have had a similar reaction although not as bad to vistril. I have gone in twice now to the Dr. for a shot of vistril and an anti-inflammatory, but the second time did not even help!

    I have an appointment at 1pm today and I need some ideas on what to ask for. I have called in sick 4 days in the last month and 1/2 and I can' keep doing this!

    Any help would be appreciated! I am getting so depressed over this. The pain is worse than my FMS pain! And the nausea is something else!

    Take care, Sally
  2. AllWXRider

    AllWXRider New Member

    Try eliminating Monosodium Glutamate (MSG) and all of its aliases: Hydrolized Vegetable Protien, Autolyzed Yeast Extract, any Yeast Extract. Fermentation of soy makes MSG so no Soy Sauce.

    Sodium Nitrite & Nitrate

    Tyramines from Bananas and some red wines.

    Sulfites, preservative used in dried fruits, wine. Make sure you have enough molybdenum in your mineral supplements as this is needed by the liver to change sulfites into sulfates (sulfates are easy to pee out).

    The herb, Feverfew is helpful for some in migraine headache control. Ginseng is a vaso-constrictor and may help too. Celestial Seasonings Detox A.M. helps the liver detoxify stuff. Its made of dandelion root and milk thistle.

    In case of allergies, you could get some testing for that and take digestive enzymes. Ppl are allergic to the protien of an allergen, usually, and once this is broken down into amino acids it becomes harmless.
  3. justlooking

    justlooking New Member

    Hi. Sorry to hear about your headaches, I've had several the past couple of months too.

    I personally don't find Vicodin to be of any help for headaches, for me it just didn't work. Triptans give me heart palpitations so I can't offer any help there BUT....

    the one thing that works absolutely miracles for my headaches is Fiorinal with Codeine. It contains Butalbital, codeine, aspirin and caffeine. You can also get them with out the codeine (not as effective for me) or with Tylenol instead of aspirin (again I found the aspirin was better in this particular medication).

    If you haven't discussed this medication with your Dr ask about it. It really works. I've tried so many meds for headaches (including stronger ones and preventive meds) and they haven't been able to touch the migraines I get. I'm sure its not for everyone but its been a lifesaver for me.

    Hope you get some relief. Also when this hasn't worked I've gone to my Dr or ER and gotten shots of Demerol and Toradol. toradol also comes in a pill form and I use it when nothing else works....

    Wishing you the best,
    sincerely
    JL
  4. bigmh

    bigmh New Member

    Sally,

    I'm sorry about your migraines, and I can relate as I am 49. I have had migraines for the last 6 years, as many as 25 days per month. 2 neurologists gave up on me as we had tried everything in the book.

    Finally we have found that if I take Inderal, 120 mg per day, this lowers my already low blood pressure enough to slow down the migraines to 6-8/month.

    Also, a few more suggestions:

    1. Take your migraine meds within 30 minutes of having a migraine.

    2. A rice-filled sock or Bed Buddy wrapped around your neck may help with the pain.

    3. Frozen peas or a frozen wash cloth on your head help with the pain.

    You might try Botox, acupuncture or massage as these help some people. Also visualization...listening to a tape and relaxing your muscles sometimes helps a lot.

    Perimenopause really contributes to a lot of women's migraines (mine, too).

    I sure hope that you get some help...I know the misery.

    Blessings, Ann
  5. survivor13

    survivor13 New Member

    hi there

    i suffer from a chronic migraine strain called 'basillar migraine' can be really debilitating at times i have had then for many years. i have a very effective treatment which works when all other medication has failed. It is called IMIGRAN and although can come in tablet form is far better and more effective as either an injection or a nasal spray. I use the nasal sprays these days as the injection method is in itself quite painful but i assure you it will help you no end. It is the most effective migraine treatment available and the makers are currently working on its release over the counter as a patch so i hear. Ask your doctor about the nasal sparays though as they are brill at easing even the most severe of attacks.
    hope this helps you
    xxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxx
  6. matthewson

    matthewson New Member

    Also, good to see you again MCD56. I hope you are doing well. I am still hanging in at work and hoping to make it to 55 so I can retire in less than 2 years! You know how stressful this job can be! The migraines are a new thing to me and any time I have to call in at work, I worry about being able to make it to 55!

    I have an appointment today with a neurologist and I will see what she has to say. I haven't had anymore migraines in the last week, so hopefully it was just the stress of my daughter's wedding and Christmas all together with the crazy weather changes! I did start a new anti-d, Celexa, and have stopped it in case it was causing the migraines. I think it isn't though, so I am going to start back up on it. I will look into some of the suggestions you all posted and see if any of them will help.

    Thank you again for your replies. You guys are the best!

    Take care, Sally
  7. I really feel sorry for you, I just posted a thread on possible tmj headaches. I know they can be a horror story, been there done that. Just an idea to think about.
  8. Mini4Me

    Mini4Me New Member

    I hope your head is better now. I have suffered from migraines for about 10 years. They came on with the onset of menopause. Currently I use maxalt and hydrocodone as needed. I use suppositories for the nausea.

    There's a gread online migraine support group that I am a member of that you might want to check out. It's migrainepage.com. You can get lots of good advice there from a great group of people!
    Best of luck,
    Mini
  9. singingirl

    singingirl New Member

    I have had migraines and headaches everyday of my life every since I can remember. When I was in the hospital a few weeks back, the neurologist started me on topamax, and I feel better that I have in over a year. I have not had a migraine in 2 weeks and have not had a headache above a 3 on a scale of 1-10 in 5 days. I have not had to take anything other than my lexapro and topamax. I may crash and burn tomorrow, but today I am enjoying it. Maybe you should try the topamax.
  10. abcanada

    abcanada New Member

    Not exactly, but I've sure been through the whole migraine sinerio over the last 2 years. It started for me with pregnancy....I haven't gone more than a day at a time with no migraine in the last 2 years. i've tried several preventative drugs & all the immetrex like drugs. I haven't had much luck with any, and I too end up taking Percocet. I was just switched to long acting oxycontin so will see if this keeps me nicely comfortable. I'm with you, as mine get out of control very quickly. Let me know if you find something that works, good luck, Laura
    PS I had never had one in my life before they took over my life.
  11. balletdancer74

    balletdancer74 New Member

    Hi Sally,

    Please read my post under Wakemeup's post regarding headaches of all types.

    I'd also add that taking too much of any medication can lead to rebound headaches. Even tylenol or advil can cause rebound headaches/pain. The good news is that after stopping the med/culprit usually ends the vicious rebound cycle.

    I also suggest keeping a log (blow up a calendar - easier) of what you eat, sleep pattern, what meds/treatments you're taking/undergoing, etc. and what time and write down your reactions...I had to do that for a month with my neuro who is also a headache specialist of all types.

    I have the rare 24/7, incessant head pain/pressure, but I've come a long way.

    Again, check out my post under Wakemeup's headache post.

    There IS hope, so don't give up. Ice on head and heat on the neck are helpful too.

    If you have any questions, please do not hesitate to ask me. I'm a "younger veteran" to head pain.

    www.about.com also has a great group of people who suffer from all sorts of head pain.

    Warmly and healing hugs,
    LB32 (Leeza)
  12. Tibbiecow

    Tibbiecow New Member

    I get a LOT of migraines. I used to get a lot more, but I now take oxycontin and pherergan for them , along with playing a meditation CD and retreating to a dark room. It took me a while to find my triggers, but it was well worth it since I am down to only 1 or 2 'complete shutdown' migraines a week.

    MSG, as mentioned before, can be insidiously hidden in a lot of things to make them taste better. It can be labeled, as described before, as such things as 'autolyzed yeast extract' and 'hydrolyzed vegetable protein'. The worst is 'natural flavor'. Let me stress that Natural Flavor DOES NOT always mean MSG, but it is legal to put it on the label that way. If you have any doubts, look on the label for a phone number or website and contact someone to ask. Once the answer in my inquiry about a ranch dressing was that the 'natural flavor' consisted of celery salt and garlic. No problem there.

    MSG is in most broth (chicken broth, bullion cubes, onion soup mix). It is also in most salad dressings. I have learned to identify the 'tingly/salty' feeling my tongue gets when eating something with MSG. One bite won't hurt me, but I don't eat any more after that bite.

    MSG is a vaso-active substance, which means that it has an effect on your blood vessels' dilation. Many vasoactive drugs can cause migraine, or rebound headache. I have to avoid Afrin, sudafed, caffeine, and MSG, as well as the triptan drugs which first relieve my migraine and then give me a worse headache the next day.

    Rebound headache can also be a real bear. Any med with a short duration of action (3-6 hours) or vasoactive action can cause a rebound headache when the body is cleared of the medication. I finally got off the nightmare carousel of 4 to 5 migraines a week- each one a rebound from the one before- by taking methadone and phenergan, and lying still. Methadone relieves pain and binds for up to 24 hours to the pain receptors, so there is no up-and-down pain levels from it. I eventually switched to oxycontin (long release percocet withOUT the tylenol) and it also works.

    I hope you are feeling better.
  13. Lendy5

    Lendy5 New Member

    I have suffered from chronic daily headaches since childhood and started getting migraines about ten years ago. I use to think what I was getting was a migraine but I was so wrong. My migraines always hit in the same spot, my left temple.

    I started seeing my neurologist about eight years ago and he is just about the best there is. He has ran so many test on me to rule out certain illnesses and tumors. He has told me a few times that he has never seen a patient like me to hurt as bad and frequent as I do with head pain.

    Like another poster mentioned Fiorinal is great at getting rid of a horrible headache and it's a analgesic and does contain Phenobarbital, Aspirin and Caffeine. It's a compound tablet. If you can't tolerate aspirin then you could try Fioricet which contains Tylenol instead of aspirin. I prefer the Fiorinal. It's the best thing I have taken besides the triptans like Relpax and Maxalt which shouldn't be used that often.

    It's odd that caffeine is actually used by alot of doctors especially in emergency rooms to treat/relieve a migraine.
    I never knew this until I was admitted for a migraine and they hooked me up to a caffeine bag. Sounds weird I know but it worked.

    There are so many triggers that can lead to migraines including; red wine, aged cheese, smoked fish, chicken livers, barbeque, figs, and some beans, MSG, bacon, hot dogs, and salami, Other foods such as chocolate, nuts, peanut butter, avocado, bananas, citrus, onions, dairy products and pickled foods.

    Also another thought is have you had your blood pressure checked? This can cause migraines also. Just an idea.


    Hope this helps and hope you find relief soon.

    Carolin