I have had fibro for about 6 years, also IC (interstitial cystitis), and other related illnesses. Mostly my husband just tolerates me, and I work in a family business so my family gets alot of laughs out of all of my ailments. I have learned to deal with them. Right now, other than 24 hour pain, I am in a state of exhaustion that noone can understand. I work full time, so when I get home from work I throw myself in bed and don't (or try not to) get up till morning. On the weekends, I stay in bed, or else move from the bed to the couch to the computer, and back to bed again. To me, this is terrible, and extremely depressing, but it is my life right now. I have not even turned 34 yet (July 27th is my birthday). I am taking about 8 different meds right now (antidepressants, muscle relaxants, anti inflammatories, percocet, meds for my ic, meds for heartburn, ambien, etc). I also had a sleep test, which found that I have mild apnea, and recurrent interruptions in my sleep. But my alpha, delta, and REM sleep seems normal (or whatever it's called). So its not like I'm sitting around doing nothing. I went to my pcp a few weeks ago for a strep test, because I had strep two weeks prior and felt symptoms coming back. I didn't have strep, but I had a huge canker sore in the back of my tongue. My pcp said, "you're just completely worn out", which is nuts because I am so sedentary and I don't do squat! Of course, now I have about a dozen or so canker sores all in my mouth, on my tongue, the roof of my mouth, inside my lips. And of course with the canker sores I have headaches, throat pain, glandular swelling, earaches, etc. I am totally exhausted as well, but I can't get anybody to understand how someone who lays around most of the time can be exhausted. I've been trying to find some websites on canker sores and fatigue, but all I've found are advertisement-type websites. Can anybody else relate, and more important, how can I help people understand why I'm so tired all the time?