do I help the pain go away?

Discussion in 'Fibromyalgia Main Forum' started by TaylorP, Sep 20, 2006.

  1. TaylorP

    TaylorP New Member

    Please, can anyone help me? A few months ago I was diagnosed with fibromyalgia, and ti's really hindering my daily activities. It's like I woke up one morning and I had it. I'm only 20 (soon to be 21, WAHOO!) years old. I'm very active during the day and an avid ballroom dancer. My doctor says that "this" is caused from stress and from not enough sleep. First of all I'm not a stressful person, and second, I was perscribed sleeping pills which help with sleep but does nothing for the pain. I've lost a lot of my flexability and all my joints, from my collar bones to my knees, are in extreem pain. Right now I'm taking 12 200mg Ibuprofen a day just so I can move. When I get cold all my joints hurt. I'm a cold-natured person anyway, so it's just that much harder for me to stay warm. Once I start dancing I start to feel a little better, but the second I stop...that's when the pain is at its worst.
    I've read that limitting the intake of cafeen and sugar are somethings that help. Does that help? What else can I do? Will buying one of those "Cuddle Ewe" mattress covers work? I just want to be able to get up and go and not walk around like I'm 95 years old. I'm will to do anything and try everything, as long as it works.

    If anyone has any suggestions, please let me know. I'd give anyting to be pain free again.

  2. misskoji

    misskoji Member

    First of all welcome. I'm fairly new to this board too, FM and CFIDS. I'm so sorry you have to suffer with this DD too! A ballroom dancer? That's awesome!

    Here's what I can tell you. Yes, stress can very much cause and be the cause of symptoms of this DD, but I don't think it is the main factor. As you will learn, many of us have sleeping difficulty. It's not about neccesarily the quantity of sleep, it's the quality. Many of us do not fall into deep stages of sleep, which causes our bodies to hurt, ect.... In other words, your body isn't rejuvinating itself at night like it's supposed to.

    I really suggest you do some research. There is a wealth of information here, the web, the library.... Everyone is really nice here, and they know this better than anyone else.

    You'll probably find that opinions and treatment options differ from doctor to doctor. (actually I know you will) There is no one protocol for all FM patients. It's through trial and error that you find what works best for YOU. I'm concerned about how much Ibuprofen you take! You should also do some research on that too hun.

    I hope I'm not sounding too negative, but you need to find a doctor who will care for you entirely. You should NOT have to suffer in pain like this everyday! I can't tell you exactly what will work for you, but there are many things to try as far as medication goes.

    For caffiene and sugar, yes I've heard the same thing. I limited my intake for a while and found no difference. However this may not be true of you. I haven't tried the cuddle EWE thing, but man I want one!

    I'm so sorry to say that you may have to cut your activity time way down. You need to find your "limit". This is a very hard thing, adjusting to a new way of life. Sadly, it's the truth. You dancing may actually be aggrivating your symptoms. This is what I mean by "limit". You need to limit your activities to help you have the best health and pain free days as possible. It takes a while, but almost always, you will FEEL when you've reached your limit. You will know it's time to stop for the day, the hour, take a break, ect. It can take you a while to learn this, it sure did for me.

    I'm sorry that I don't have better advice for you, or that it is so grim. I'm sending you big hugs hun to feel better soon! Please stay on this board, it will help you so much!

    [This Message was Edited on 09/20/2006]
  3. findmind

    findmind New Member

    I'm so sorry you came down with FM. I've read that person's with "hypermobility" can be susceptible to a ballroom dancer,you must be like a wet noodle, to do all that dippin' and stompin'!

    Can you get to a warm pool? Exercise is good for FM, but when newly dx'd, one is often too stiff and in too much pain to feel at all able to do so.

    I think a rhuematologist should be seen soon; the sooner you get sleep meds and pain care, the better you'll be able to learn to pace yourself and learn your limits.

    I'm sorry to tell you, there is no CURE for FM: however, keep reading here, use the search engine with questions/topics, and you'll do much better than those of us who only found this site after years of illness.

    Oh, look for recommended docs under "good docs" listing here, too...hopefully there's one in your area to help you.

    Keep on dancing, just a little slower, ok?

    There's always hope!
  4. jenn5

    jenn5 New Member

    yes, cutting sugar is huge.
  5. baanders

    baanders New Member

    I am so sorry, you are so young. It sounds like you have a mild case of fibro. It may remit (go into remission, go away), if you do the right things. You sound scared. First, relax. If you're very active during the day, it is a mild case, most likely. Have you had a neck injury or other injury? If so, that needs to be seen by a specialist and any specific area of severe pain should be addressed. Have you had any virus or grief before becoming ill? These can trigger fibro. Are you sure there is no history of psychiatric illnesses in the family? Even depression can prevent sleep. Sometimes, antidepressants can help with sleep better than sleeping pills. A medication called "Klonopin" helps put people to sleep and many people have taken it for a long time. It also helps with pain. I don't know whether or not you're depressed. Instead of taking ibuprofen, prescription Tramadol is much better in relieving the pain. It is a mild pain killer. You may need something to help with your stomach while you take this or ibuprofen. Here are some hints on getting better. Some people do go into remission. 1. Keep exercising, not to the point of pain. Stretch gently before and after 2. Take hot showers, baths with epsom salts or use a hot tub even at a local club. 3. Take malic acid by mouth , purchase at the health food store. 4. Avoid viruses (which can worsen this illness...such as mono or the flu or Lyme), sick and contagious people. Wear a seatbelt to avoid neck injury. Don't ever stress even over this illness. 5. Use a soft mattress. Purchase a heating blanket and warm it up before getting into bed. Buy a heating pad with adjustable settings when you are in pain so that you can put it on you for instant relief. Ben Gay also provides instant relief. 6. Stages 3 and 4 sleep are necessary for muscle recovery. I addressed this earlier. A psychiatrist can help you here. 7. Avoid "flares" which are very painful days by not overstraining muscles. 8. Get someone to give you a massage...a family member or friend. 9. You need lots of support. We are here for you.

    I know a nun who went into remission. She prayed every day. She is my inspiration.

    God bless you sweetheart and keep praying for your healing.

    [This Message was Edited on 09/20/2006]
  6. JLH

    JLH New Member

    Welcome to our board!!!

    I'm sorry to hear that you are feeling so badly. Everyone has given you a lot of good advice.

    I have to make this short, as it's 2:30 a.m. and I need to go to bed!

    I use a heating pad on my low back a lot; and I have always used ice packs between my shoulder blades to numb the pain, and a bag of frozen peas on the base of my neck to numb the pain!!

    I take Neurotin (a low dose 3 x day) and Cymbalta (30 mg in the AM and 30 mg in the PM) which both help my pain. I take Zanaflex to help me sleep.

    I would also suggest a sleep study to see if you have any sleeping problems. I have sleep apnea and sleep with a CPAP machine and oxygen, which greatly help my sleep.

    Your dancing should help--keeping moving is key--but maybe coming home to a hot bath--soak in the tub for a while--may help, too!

    Pacing yourself during the day is important, too.

    Ask your doc about a non-narcotic pain med called Ultram--it should help you.

    You'll never be pain free, but you can get it to a manageable level, hopefully!

  7. homesheba

    homesheba New Member

    and i got it when i was about 4o i think- now im 52,
    but my problem was not being able
    to find a dr to help me.
    many do not want to fool with it,
    i have been told there is no cure.
    ipray that isnt true!
    i get injections in my pressuer points about 3 x's a month and am on vicodin and ultram.
    but none of it works to the extent i am totally pain free.
    i am always a 6-10 pain wise.
    i have had to stop wk and go on disability.
    but with you being so young
    and if you dont have any other health problems,
    i think you may- with the right caring dr,
    be able to totally recover from this.
    but really!! rest is the key.
    total rest and not to over do it.
    i know that is the hard part.
    discover your limitations and dont go
    over board on any activity.
    cause youll sure pay for it days later...
    hang in there and try try try not
    to let this illness wipe you out.
    you will make it im sure hon.:)
  8. lela7

    lela7 New Member


    Sorry to hear of your suffering. As I understand it Fibromyalgia, chronic fatigue, M.E. are all the same condition jsut different names if pain in the muscles and joints is involved.

    From the research I have read in the initial stages if one is too active it can end up prolonging the condition, wish I had known that sooner, so something to seriously consider.

    I have had the greatest pain relief from using electronic accupuncture, it's called 'Search and Stem' which I bought from Dick Smith's for about $75.00. It has a beeper that lets you know when you are exactly on an accupunture point then you press the button to release a small electrical current into the point. Use it on the fibromyaligia points(if you don't know where they are you can look it up on the internet). Also an electronic massager which can be obtained on ebay(I got the Skybird brand for around $20 delivered)is excellent for relief from the muscle pain(heaven. They are not a cure but they have brought the most significant chemical free relief for me.
    Hope this is of some help. Wishing you good health.


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