Please list what has helped with your brain fog

Discussion in 'Fibromyalgia Main Forum' started by Saul, Aug 30, 2008.

  1. Saul

    Saul New Member

    If anyone is currently using a supplement or medication that is helping with their brain fog, could you please list it?

    I am having the worst CFS fog I can remeber and it is getting worse. I am a teacher and have to go back to school after Labor Day. At this point, I am not sure that I can perform my job in a competent manner due to my impaired cognitive issues. Please help and God bless!

  2. hatbox121

    hatbox121 New Member

    I was on Lyrica. When I went off, it majorly improved. It didn't completly go away, but at least I can finish a sentence. Before, I felt like I was crazy! I don't know what you are on but maybe that's some of the problem.
  3. deliarose

    deliarose New Member

    Per Amy Yasko or Rich Van K's protocols.

  4. hugs4evry1

    hugs4evry1 New Member

    One thing you can do is start a calcium/magnesium/zinc supplement. We're all deficient in magnesium and the two have to be taken together on combo form to work well.

    I even take a cheap store brand twice a day and it works wonders. Not only does it help with Fibro Fog, but it helps alleviate muscle aches as well.

    One of my favorite supplements that I wouldn't ever want to be without again is the Fibro Complete Multi with Malic Acid that they sell here at Pro Health.

    Good Luck....


  5. Catseye

    Catseye Member

    I took tons of aminos for a long time. They really helped. Then I discovered Biotec Extra Energy Enzymes. They helped clear up my head - they will work if you are low on the antioxidant enzymes of the body.

    I did a post called "neurotransmitter precursors" in Jan 18 '07 about the aminos and fog.

    Then see the thread "Mitochondria's role in PEM (crash) and how you can reduce it" for info about the enzymes.

    good luck


    It's funny how psychs are worried about "interactions", which really means that those other substances work, too. And having too many neurotransmitters is just as bad as having too little. But they don't realize that these other substances are more effective because they are building what the body is lacking in the first place. It's not the same type of interaction as let's say alcohol and tylenol.[This Message was Edited on 08/31/2008]
  6. wildflowers2

    wildflowers2 New Member

    It goes with the 'turf' of this illness....I have to have my calandar and note book at all time and write EVERYTHING down I need to do or want to do or just things in general I forget.

    good luck
  7. hopeful4

    hopeful4 New Member

    My two worst symptoms were always extreme fatigue and cognitive problems. Just prior to my sudden onset of symptoms, I was a school social worker and in graduate school, and completing internships in school counseling. I'd say that losing my ability to think clearly, analyze, speak coherently, and other "brain fog" symptoms were very frightening. I thought I had dementia.

    What helped me the most was reducing the level of infection in my body, and using cholestyramine for neurotoxins. After 5 yrs. of CFS/FM diagnosis with no improvement, I was properly diagnosed with chronic lyme disease (bacterial infection), and other underlying infections.

    The lyme produces neurotoxins which cause brain fog. The lyme treatment, although initially making me feel worse, eventually reduced the lyme load, thereby reducing the neurotoxins. In addition, the cholestyramine binds with the neurotoxins, and helps to flush them out.

    I'm better, but still a work in progress.

    Best of health to you,
  8. PainPainGoAway

    PainPainGoAway New Member

    Provigil is a medication that does help with brain fog. I have some issues with side effects from it but I will say it helps me to stay alert...still tired, but the brain stays awake.

    I also noticed my Vitamin D (I was extremely low), a prescription of 50,000 untils I take once a week, helps with brain fog.

    I noticed it made a big difference because I'd forgotten about that prescription and neglected to get it filled for months...once back in my system I saw improvement in a few days.
    So maybe you can get your Vitamin D levels checked.

    CoQ10 is something else I take, along with spirulina, a child's chewable multivitamin and sometimes caffeine.
    I try to eat fish or shellfish twice a week, blueberries, cherries, and drink a protein drink every other day.
    There's also a drink called
    Acai juice (a Brazilian fruit) that helps...I drink it when I can afford to buy it and I really like it. I don't take it as a supplement but just buy it in juice form (Bom Dia brand).
    No matter what I take, I still have the brain fog, but it's not as thick, lol!
  9. colorfulcolorado

    colorfulcolorado New Member

    sticky notes-everywhere. When I write things down I seem to remember more. I have notes in every room in the house. My purse has them, etc. And part of my fog has alot to do with stress. But I do take Omega-3 and some herbs that my acupuncturist con-cocked (she went thru all my meds and gave me this recently-it tastes nasty!), so that nothing will interferes with each other.
    By the way acupuncture did help for a few days-pain wise that is. But that was a free visit, but she did tell me if I couldn't afford to see her for acupuncture to at least come in a get the herbs!
  10. Saul

    Saul New Member

    I just wanted to thank everyone for replying to my post and offering your support and suggestions. I can't even take a multi-vitamin b/c it makes the fog even worse. The only med that I have been taking is Klonopin, and I have been trying to gradually wean myself off b/c I thought that was what was increasing the fog. I'm only on .5mgs anyway so it shouldn't be difficult. I hope that all who suffer from cognitive issues can find some relief!
  11. astroherb

    astroherb New Member

    For me the things that helped the most with brain fog are clearing out a chronic body-wide yeast infection and changing to a low carbohydrate diet. I still get brain fog but only when I have pushed myself too far and am in a flare or when I endulge in too much sugar. I hope this helps.
  12. ladybugmandy

    ladybugmandy Member

    would it be possible for you to take sick leave (a year or so) and see a real CFS / FM specialist?

    my illness started after mono and valtrex is just starting to help my horrible fog a little. i have been sick 15 years.

  13. Sunspot

    Sunspot New Member

    Hi Saul,

    Once while I was seeing a homeopath I was having very thick brain fog and was also totally unmotivated to do anything. He had me take a homeopathic remedy called China -- I think it was two pellets, twice a day for 3 days. It started working right away and I think I actually stopped after two days because I felt so much better.

    It's helpful to actually see a homeopath because often there are several different remedies for the same type of symptom, but they need to know more about you to choose the most effective one for you.

    Other than that, how is your fatigue level? Are you getting enough sleep and rest? Are you drinking lots of water?

    Good luck!
  14. ellikers

    ellikers New Member

    I think that try essential fatty acids such as omega 3s ... they can help a lot, as can vitamin D. Try high quality omega 3s like flaxseed oil.

    In the meantime, I'd suggest researching techniques you can use to help your remember things ... even if you have to look at lists for people with brain injuries or other cognitive impairments (what do you have to lose? it could be helpful).

    Writing as much down as possible and sorting lists according to different categories can help. You can also ask people that have meetings with you to write you an email afterwards to summarize what was discussed and who agreed to what (then you have a written record to look back on). That always helped me.

    :) Hang in there.
  15. munch1958

    munch1958 Member

    Took it for 10.5 months. It really helped me feel like my brain is connected to my body again. My Sed Rate was 1. Anything below 5 indicates hypercoagulation problems.
  16. fnx3

    fnx3 New Member

    I was amazed to find that my chronic, 18 month brain fog, just lifted completely after only 3 days on Cymbalta - as well as a noticeable lift in the massive physical fatigue & pain in my right leg & foot.

    I had in the previous 18 months tried just about every recommended supplement, mineral, diet ideas out there. I also tried "brainwave entrainment" therapy, meditation & the relaxation response. Nothing touched it until Cymbalta - I LUV it! I can read again & follow conversations & watch documentaries on TV.

    I had already decided that the source of the problem of my Fibromyalgia must be in the center of the brain - the brain stem. And that it's "misfiring" was causing the hypothalamus to also mess up the secretion of Serotonin & Norepinephrine & thus lead to a whole brain imbalance. Hence why the description of how cymbalta works, of regulating those brain hormones, made good sense to me & I felt fine about trying it.

    Plus I was most relieved to find that I experienced none of the usual negative side effects that I have always had with any other anti-depressants.

  17. Cinderbug

    Cinderbug New Member

    One word - PROVIGIL!

    Absolutely amazing.

  18. alyssalyn

    alyssalyn New Member

    This is what helped my brain/cognitive/fog issues:

    Omega 3-6-9 fatty acids - soft gel capsules (can be gotten as liquid too).
    B vitamins from Brewer's yeast (health food store item, sometimes can be gotten in bulk section of grocery store - BIG TIME MENTAL BOOST!!!!!!
    Amino/Protein supplement drinks - BIG TIME MENTAL BOOST!!!!!
    Dulse powder from for an iodine source for thyroid
    Liquid B12
    Dr. Schulze Superfoods
  19. CFS Facts

    CFS Facts New Member

    Another intriguing finding is that patients tend to hypoglycemia. "The more challenging the mental task – like those difficult attention tests – the more sugar neurons need to function." Steroids make it even worse.

    I was diagnosed in the early days when they weren't sure what was wrong with us or what to do for us. The first book I read had a variety of elimination/detox diets to see if it was a food allergy, a reaction to preservatives, etc. I found out three things: (1) I'm not allergic to anything I didn't already know about, (2) what I eat does not affect my symptoms except for (3) if I don't get a massive dose of sugar first thing in the morning, I'm useless.

    Then I read Dr. Bruno's book and confirmed my own observation.

    I start my day with a Continental breakfast (the more sugar in the pastry, the better) and keep either Coke or Gatorade readily at hand throughout the day if I need a sugar boost. I work part-time doing brain work, and without the sugar rush, I couldn't do that work.

    I know there are some who recommend that CFS patients avoid sugar, but I don't have Candida, therefore, the only reason for me to avoid it is my dentist. I feel like **** when I don't get sugar first thing in the morning.
  20. SpiroSpero

    SpiroSpero New Member

    Well what helps my brain fog is to stay away from wheat/gluten/milk.

    Antihistamines increase my brain fog and reduce my cognitive function. So does melatonin.

    After a long day I get such incredible chocolate cravings that I have to eat some. I just drove to the supermarket and bought some since somehow we didn't have any more chocolate at home. I waited one hour till I drove off because first I thought that maybe this is just a temporary spike but it wasn't. Moreover it's not only the sugar in my eyes but also the neurotransmitters contained in the chocolate and maybe some minerals e.g. magnesium.

    [This Message was Edited on 01/08/2009]