PLEASE READ :NEW ANTIBODIES DISCOVERED IN FIBRO PATIENTS........

Discussion in 'Fibromyalgia Main Forum' started by HOUSEOFBLUES, Dec 12, 2002.

  1. HOUSEOFBLUES

    HOUSEOFBLUES New Member

    I don't know if this has been posted anywhere else on the board, but I just came upon this last night...
    It's from the Autoimmune Technologies web site.
    It talks about an article that was publised in the 1999 Journal of Rheumatology.
    I guess they have developed a patented blood test called the "Anti-Polymer Antibody Assay". The cost $145 to perform it in their labs.
    It's supposed to be a blood marker that shows that Fibro is real and not something "all in our head".
    "The titers of these antibodies correlate with nine separate clinical measures of Fibromyalgia severity".
    Take a look at it and let me know what you think.........

    Thanks,
    HOB
  2. HOUSEOFBLUES

    HOUSEOFBLUES New Member

    I don't know if this has been posted anywhere else on the board, but I just came upon this last night...
    It's from the Autoimmune Technologies web site.
    It talks about an article that was publised in the 1999 Journal of Rheumatology.
    I guess they have developed a patented blood test called the "Anti-Polymer Antibody Assay". The cost $145 to perform it in their labs.
    It's supposed to be a blood marker that shows that Fibro is real and not something "all in our head".
    "The titers of these antibodies correlate with nine separate clinical measures of Fibromyalgia severity".
    Take a look at it and let me know what you think.........

    Thanks,
    HOB
  3. Wreckless

    Wreckless New Member

    My Rheumy told me to beware of anyone making promises testing or treatment of fibro. So far everything I have read on the internet, besides that, has said there is no test to detect fibro. And if all that were not enough, coicedentally, the company who posted this research also just happens to own the patent rights to it. And even though it is not commerically available, they can get it for certain individuals. Sorry, perhaps i am just a skeptic, but I doubt that there was a discovery of this significance in 1999, and no one but the patent holder knows about it.
    Rudy
  4. karen2002

    karen2002 New Member

    Since the Anti-Polymer Antibody was found in just over 60% of patients diagnosed with fibro, and was also found in 50% of those undiagnosed.....sounds iffy....
    Also these studies were done in 1999,(we are now going on 2003) and the test can be ordered from AutoImmune Tech.... one would expect if the Assay were that valuable of a tool in detection, the fibro/cfs specialists would be using it as a diagnostic tool--which as far as I know, they are not. Which leads me to question its value.
    Karen

    ps--the test lab is in Louisiana...and $145 is not high--but less than many of the test we take, but I couldn't warrant spending it--at this time, for lack of proof positive.[This Message was Edited on 12/13/2002]
  5. lucky

    lucky New Member

    When I read the article and all the costs involved of getting tested, I knew that I did not want to believe in this research.
    As desperate as we all are in getting on with our lives, but it takes careful consideration what we read. May be there is truth in the Autoimmune Technology's statement, but how many others have found the reason why we are sick and what is wrong with us, but nobody has the answer of a cure for us. I for one have nobody draining my wallet anymore with promises and 'cures.
    Take care, Lucky
  6. nancyneptune

    nancyneptune New Member

    How many of us are fighting the SSA for disability? Wouldn't it be grand if there were SOMETHING other than trigger points and subjective data to support our claim? The fact that Fibro shows up on a specific gene and has antibodies is a huge landmark for the legal aspects of this DD. I know it's going to help me! N
  7. HOUSEOFBLUES

    HOUSEOFBLUES New Member

    FOR MORE OPINIONS........

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