Please Someone HELP I am only 13

Discussion in 'Fibromyalgia Main Forum' started by Dan1989, Apr 21, 2003.

  1. Dan1989

    Dan1989 New Member

    Hello,
    I have only just found this site, and thought it could help me, i am only 13 as the title says so please bare with me.
    Well i have had glandular fever god knows how many times now and to be honest i am totally fed up.
    It has been going on for ages and i have missed a lot of school my main symptoms are just : -
    Tiredness
    Dizziness
    The diziness mostly , i have recently tryed vitamins to give me a boost back up, get some energy into me.
    But i am just fed up and i need someone to give me Advice, or somthing which will help, i am only 13.
    I have got upset over this and so has my mum i just want to be myself again
    Please Help.
    Many Thanks Daniel Parker Age13
  2. klutzo

    klutzo New Member

    It's sad to be sick at any age, but even more so as young as you are.
    Have you seen an Infectious Disease specialist or a Rheumatologist to see if you have Fibromyalgia or Chronic Fatigue Syndrome?
    That's the first step....getting the correct diagnosis. You don't want to waste time treating the wrong illness.
    If I remember correctly, "glandular fever" is a lay-person term for mononucleosis, which is very common in teenagers. I had it at age 15. In some severe cases, it can hang on for quite awhile, even as long as a year, so you may not even have CFS or FMS at all.
    If I am wrong about what "glandular fever" is, please forgive me, as I'm American, and am not familiar with your terms. (I assume you are British, since you called your mother "mum").
    If it is the mono virus, your mum might want to let you try some olive leaf extract, which you can get at any health food store. Since you are over 12 you can probably take the adult dose. The vitamins are a great idea, and I hope you are not eating the typical awful diet that most teens eat? Try eating less sugar and more veggies if you aren't already doing it.
    I hope you get well soon.
    Klutzo
  3. jgckeyes

    jgckeyes New Member

    I don't know very much about the fever you have, but I know how terrible it is to have something wrong with you all the time! I have FM, I get sooo tired of having this too. I am tired of being tired, in pain, can't sleep well and everything else that goes along with it. Maybe you being dx early on in life will help. My heart goes out to you along with my prayers. I am sorry that you do have this at such a young age.
    LOL and soft hugs,
    Jenny
  4. Dan1989

    Dan1989 New Member

    Hello again klutz,
    sorry if i have got the name wrong.Yes i am british and i have had gladular fever for quite a while so you are maybe right, that it may not be CFS.
    Well Thank You For The Reply,
    From Dan Thank You :)
  5. Dan1989

    Dan1989 New Member

    Hello Jenny,
    How long have you been ill ?
    I have eben ill quite a while now and i am tired of being tired to lol. Well Thank you for the reply
    From Dan :)
  6. jennycousins

    jennycousins New Member

    Dan

    I have a combination of things, i am one a mild anti-depressant, to make me sleep,a slow release pain killer, multi vits, and cold liver oil tablets, i have been suffering for 3 years now and found that these messaage boards really help, and finally i have found something that keeps me going!
    At one point i felt alone, and really sad, i typed in fybromyalgia, and found this great site
  7. jgckeyes

    jgckeyes New Member

    The more I learn about this dd, the more I realize I have had it as far back as my childhood. I have only been dx for 3 years now. In this last yr my symptoms have gotten worse. It took sooo long to finially get dx and now I need to find a dr that isn't afraid to give me the meds I need. I can't work, if I do that is the only thing I can do--so who is gonna do the things around the house that needs doing?? Now it is all I can do to keep the house half way in order. I was very active now I just dream of being active. I hurt just about all the time, I really feel like I would be a new person if I could find the meds for me. Not ever being able to sleep for more than 3 hrs at a time is just wearing me out. I am not able to get the restorative sleep my body needs to recouperate. Thanks for asking. Are you feeling any better? I am still praying for you.
    LOL and hugs,
    Jenny
  8. sofy

    sofy New Member

    When I was 13 I had to stay home from school for a whole year so I know what you mean. Thank god I found a lost kitty to be my friend cuz none came to visit me. There was a bright side cuz I had a doctor who I liked a lot on a personal level. He was young and introduced me to the world of books and this opened my small world. I am 59 now and I still remember the excitement and anticipation of my next visit so we could discuss the latest reading material. Some of it was pretty heavy stuff for a 13 year old. The fact he treated me as a person on his level was wonderful for my self esteem. The biggest thing I learned was how to look at what I had available to me and use it to make a meaningful life instead of getting lost in the world of what I had to do without and had lost. I am convinced that year contributed a great deal to the development of the creative person I have been all my life. I have been asked a million times how I come up with ideas to do thing out of nothing and I always credit the example of my creative Mother and my year at home.
    I cant help you get better but I can tell you that you do have the power to be a full person in spite of being sick. Once you learn how to tap into that power you will be amazed at the feeling of inner strength it will give you. I call it my Super Woman Strikes Again moments but you can pick your own name.
  9. Sandyz

    Sandyz New Member

    Its nice to meet you. I was diagnosed with Fibromyagia 15 years ago but I think I`ve had it my whole life. Its a tough gig at times but you`ll get through it as we all do. I just want to tell you that I`ve had a very full life inspite of it and you can too. I am 45 now and I had a pretty active life until the last few years when my illness got much worse. I was under a terrible amount of stress and that seemed to make it worse.
    Find a good doctor, take care of yourself and find a good support system(like here). You`ll be ok.
  10. MemoryLane

    MemoryLane Member

    Glandular Fever here in the U.S. is known as Infectious Mononucleosis (Mono for short) and it is caused by the Epstein-Barr virus (EBV). Many of us here on the board have had our start with this same virus, so stick around and read in the library here. Also in the search bar at the top of this page, put in EBV or Epstein-Barr and read some of the past posts about it.

    Also, on the home page, scroll down a bit and read some of the Doctor's methods of treatment - might give you some ideas. You have to read everything you can and be more knowledgeable than your medical practitioners about your illness.

    I am so sorry you are suffering - but glad you found this board - we have many here from the UK.

    Wishing you well,
    Lane (from Texas)



    [This Message was Edited on 04/24/2003]
  11. tansy

    tansy New Member

    I'm sure you will be able to get in touch with other young people through this board which will help to eliminate the isolation these diseases can bring about.

    My son became very ill at 14, started with Glandular Fever too, although another infection was thought to be involved.

    It took time but now he is living a full life, the problems he has now are minimal and unlikely to be relevant to you.

    The good news is that no matter how ill young people may become with CFS etc they have a good chance of making a full or very significant recovery.

    Finding therapies and treatments that you feel will help you have 2 benefits

    1 They can alleviate symptoms and speed recovery

    2 You feel you have taken some control over your condition rather than feeling it's running your life.

    Good Luck

    Tansy
  12. 2411me

    2411me New Member

    Hi Dan
    I know what you are going through with the dizziness it is definately the worst symptom.It is also my main problem
    and constantly search this sight in hope of some sort of relief
    Mine started after a severe dose of flu which i suspect was undiagnosed glandular fever. My docter who takes a special interest in chronic fatigue is at the moment looking for something in the blood called STENATROPHOMOTAS
    MALTOPHILLA, a bacteria which produces toxins which in his opinion keeps the illness going.
    I will let you know when i get the results of my blood test
    to see if it has anything to do with the dizziness.
    In the meantime keep your spirits up and i hope you feel better soon Joan
  13. 2411me

    2411me New Member

    Hi Dan
    I know what you are going through with the dizziness it is definately the worst symptom.It is also my main problem
    and constantly search this sight in hope of some sort of relief
    Mine started after a severe dose of flu which i suspect was undiagnosed glandular fever. My docter who takes a special interest in chronic fatigue is at the moment looking for something in the blood called STENATROPHOMOTAS
    MALTOPHILLA, a bacteria which produces toxins which in his opinion keeps the illness going.
    I will let you know when i get the results of my blood test
    to see if it has anything to do with the dizziness.
    In the meantime keep your spirits up and i hope you feel better soon Joan
  14. Mikie

    Mikie Moderator

    Get your Mom to get you to a doc who treats Chronic Fatigue. In children, it is essential to get treatment early in the illness if you want to heal. The longer this goes on, the more difficult it is to treat.

    If you have an active Epstein Bar virus, there are antiviral drugs which can help and there are supplements to help rid your body of it. In addition, there are supplements which will help you rebuild your immune system. The colostrum and ImmunPlex whey sold here are excellent for this.

    We have more than 3,000 articles in the library here. Dr. Cheney is an expert in CFIDS and you can do a search on his name and bring up all his articles. There are many other experts' articles here as well. Learn all you can about the illness so you can help your Mom and doc with your treatment. Good luck and keep us informed.

    Love, Mikie
  15. loopyloo

    loopyloo New Member

    Welcome to our board i'm glad you found us, I am from England too, Milton keynes in Buckinghamshire, where are you from, ask your mum to ask the doctor if it is possible that you could have CFS Chronic Fatigue Syndrome/ME i had a flu like virus and it took me five years to get diagnosed with ME as there is no test your doctor will have to eliminate every thing else before he can diagnose it,and read as much as you can about cfs and Fm Fibromialgia this has the same symptoms as ME and it is difficult to tell them appart at first, keep in touch let us all know how you get on and dont be scared there are lots of people on the board with both of these
    (((big hugs)))and wishing you well
    from Loopyloo xx
    [This Message was Edited on 05/09/2003]