POLL: How many different doctors have you seen.....

Discussion in 'Fibromyalgia Main Forum' started by kirbycat, Sep 8, 2006.

  1. kirbycat

    kirbycat New Member

    I'm just curious, How many doctors have you seen while trying to cope with this DD? Either fibro or CFIDS.

    How long did it take you to find a doctor that was understanding of this DD?

    We are from all over the United States, UK, Australia,NZ, Canada, Scotland,The netherlands and other places that my fog prevents me from remembering.

    So tell how many doctors, how long did it take, and where you are located.

    It will be interesting to see what a universal problem this is and what a lack of understanding we have.

    [This Message was Edited on 09/08/2006]

    FOYBOYFOY New Member


  3. Redwillow

    Redwillow New Member

    Good question Cathy, it will be interesting to see where everyone is from.

    Let me see I have been sick with Fibro for most of my life and I am 47...

    Several GP's, an Allergist, Gastroentrocenologist, 2 Rheumatologists, Neurologist, Psychiatrist, Cognitive Behavioural Therapist, Internist specializing in thyroid problems, Skin specialist, several Naturopaths, Chiropractors, Physical therapist, Herbalist, the list goes on and on.

    I was finally diagnosed with FM at age 45 so 28 years since my first painful 'arthritis' attack after the German Measles at age 17. I believe this condition my have started even earlier though as I had Scarlet Fever at age 10 and then 16 daily Rabies Innoculations at age 11 after my puppy died. From that point on I was considered by my family to be the sick one and very clumsy. Yeast problems started soon after that I am sure brought on by the penicillin shots I was given for Scarlet Fever.

    I am currently a patient of a rheumatologist who seems to care. I have to drive 2 hours for appointments but at least she is willing to listen. Her practice is in Kingston Ontario.

    My list is FM, OA, RLS, Anxiety, IBS, Migraines.... you know the drill! LOL

    I am also visiting an herbalist in Belleville Ontario who has put me on Cholostrum for my immune system, Olive Leaf for viral, Adrenal support and Milk Thistle for my liver function. All of this was decided by using muscle testing.

    I am in Ontario Canada.

    Marion (Redwillow)
    [This Message was Edited on 09/08/2006]
  4. pamj

    pamj New Member

    Starting from the beginning:

    5 yrs ago in CA:
    - PCP said it was a flu virus
    - PCP #2 said a virus that needs more time (after 2 months)
    - Allergist found only trees & cats tested positive
    - Rheumy said it was depression
    - Holistic doc diagnosed CFIDS & helped with treatment

    4 years ago in Mass:
    - Holistic doc re-evaluated & took over treatment
    - PCP agreed with diagnosis & treatment
    - Neuro-Psychologist does 3-day testing & agrees with CFIDS diagnosis
    - Psychologist helps with coping

    Last year:
    PCP wants re-evaluation to see if any other results may show up
    - Endocrinologist for start of re-evaluation
    - Infectious disease doc thinks it's Lupus based on his findings
    - Rheumy rules out Lupus, suggests mixed autoimmune disease, and says to stick with the CFIDS diagnosis & treatment

    So a total of I guess 12. All in all, only a couple of bad docs in the beginning. Everyone else seems to understand & wants to find answers.

    take care,
  5. kirschbaum26

    kirschbaum26 New Member

    Dear Cathy:

    I think that I am typical...seen lots of doctors:

    PCP at Kaiser
    Ortho at Kaiser
    P/T at Kaiser
    Anesthesiologist at Kaiser (for epidurals)
    Neurologist at Kaiser

    PCP (Dr. Dowell)
    Pain Management Doctor

    PCP (Dr. Dowell)
    Ortho- specializing in backs at Kerlan-Jobe
    P/T at Kerlan Jobe
    ortho - specializing in hips at Kerlan -Jobe
    podiatrist -- at Kerlan-Jobe
    Neurologist at Kerlan-Jobe
    Pain Management Specialist at Centinella
    Ob/Gyn for ovarian cysts
    Ortho -- USC hip replacement specialist

    ortho (for 2nd opinion)


    I think that covers it.


  6. kirbycat

    kirbycat New Member

    You are from California?
  7. littleleafhopper

    littleleafhopper New Member

    Well guys,

    My physician list would take all day to type, and honestly I've lost count. However, along with GP's, Neuro, Endocrinlogists, Allergists, Cardiologists, Chiropractors, Nauropathic Practitioners, Massage Therapists, and Acupucturists, you can throw in the Mayo Clinic.

    The Mayo Clinic was the worst. That was my biggest disappointment of all. Not only were they uncaring for the most part, but they really didn't try to cover anything unsual, which is what I went there for! I had visions of Dr. House finding a cause and treatment!

    That was a huge reality check for me. I'm thrilled to have found our boards so that we can keep track of our possibilities!

    Thanks Kirbycat for the post. I'm from Texas.

    Yours, Lil

    Yours, Lil
  8. kirbycat

    kirbycat New Member

    Hey, all,

    Try to estimate how many if you are unsure.
    I want to try to average them if I get enough.

    And give your location. State/country (if out of the US).

    I know it's gonna be alot.

    I'm just interested.
  9. littleleafhopper

    littleleafhopper New Member

    Hey Kirbycat,

    I'm going to guess around 35 doctors or practitioners over the 30 years that I can trace this DD. I think that's conservative. I hope you get lots of posts! I find this topic interesting.

    Yours, Lil
  10. kirbycat

    kirbycat New Member

    35 doctors, I thought I had seen alot!

  11. kirschbaum26

    kirschbaum26 New Member

    Dear Cathy:

    Sorry, did not know you wanted to know where we are from. I am from Southern California. San Pedro, which is about 25 miles south of LA.

    Also, time period for this listing was 16 years.

    Hope I answered all of your questions.

  12. jake123

    jake123 New Member

    Neurologist says I have RSD for sure; PCP ignores me;went to rheumatologist who says FM - has never prescribed anything just reads my chart; Psychiatrist has several patients with FM works on sleep meds, counseling, even how to handle doctors; Family doctor who was sympathethic;sent me to rheumatologist who dianosed me to polymyositis with high CKP; endocrinologist put me on thyroid but PCP took me off; PCP who we called Dr. Dimwad; Chiropracter who was a holistic doctor, I still like him but it was very expensive; another chiropractor UGH! another chiropractor; rheumatologist who said I had FM; migraine doctor who said I had CFS with migraines; another family doctor who gave me muscle relaxants. I think that is 15.
  13. shar6710

    shar6710 New Member

    In a way I am a little more fortunate than many because I was SO sick early on with a virus I was in the hospital for a few days that tends to give legitimacy to your illness. My PCP at that time was an idiot, argued with me about every symptom until I was so obviously ill that it scared him a little. So any way it comes to:

    3 PCP's (only the first was an idiot)
    2 Neuro's (2nd was a sleep specialist)
    1 Pulmonologist-however you spell it
    1 Cardiologist
    1 ENT (consult while in hospital if that counts)
    2 Infectious Disease ( both very good, 1st one DX me but
    then moved to Ireland so should probably only count as 1)

    [This Message was Edited on 09/09/2006]
  14. azbubba

    azbubba New Member

    But, this list is only between August of last year and June of this year. Haven't been to the doc since then.

    3 GPs
    3 Hemocs
    1 Infectious disease
    1 Pulmonologist
    1 Rheumy
    1 Cardiologist

    Guess that's 10.


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