POLL:How many of you have eye problems and what symptoms?

Discussion in 'Fibromyalgia Main Forum' started by Plantscaper, Feb 15, 2003.

  1. Plantscaper

    Plantscaper New Member

    I have had a lot of problems with eyes including extreme over sensitivity to light(have to wear sunglasses inside), a lot of eye strain and soreness, extreme dryness, eye fatigue and I can't wear mascara because of the reaction I get from it.. sometimes when I am outside during allergy season my eyelids swell..AND it is the first part of my body that goes downhill if I have worked too hard or if I have had no sleep...Would appreciate any feedback or possible solutions.... to wellness.....LOVE, AMELIA[This Message was Edited on 02/15/2003]
  2. danisue22

    danisue22 New Member

    Hi Amelia, I have alot of problems with my eyes. Some times they water like crazy and other times they are so dry that I need to use afresh in them. I also Have sharp pain shoot in them ,like someone stuck an ice pick in my eye. It's very uncomfortable. I can never go outside without sun glasses.I had bells palsey in 1999 since then it's been worse. Hope this helps with your feed back request. God Bless Danisue
    [This Message was Edited on 02/15/2003]
  3. aprilhuque

    aprilhuque New Member

    and I have what is called "the occipital twitch". In fact, my left eye is killing me right now, and I have only been on the computer for 20 minutes! Taking lycopeine, selenium, and lyceine, don't know if it helps, maybe I would be worse if not?

  4. Plantscaper

    Plantscaper New Member

    Soon as I have tried to put mascara on, my eyes do the overly tearing reaction and burning and all the mascara usually tears off, anyways, and ends up in my eyes and then I really have a burning sensation like a hot poker being jammed into the eye..So, I just gave up and didn't wear it anymore..What kind of mascara has worked for you, Jelly? I have tried one that was at a health food store and was not suppose to be as harmful, but it caused a reaction as well.. I don't think that optometrists really encounter this often as they don't seem to know what to do beyond telling one to use artificial tears..When so many symptoms we all have in common how could this not be a real disease? I see myself in practically everything I read on this message board..I wish physicians would pay attention to all our commonalities.. LOVE TO ALL....AMELIA
    [This Message was Edited on 02/15/2003]
  5. kerrymygirl

    kerrymygirl New Member

    Many of us have changing vision. I am not sure if this is why but it doe`s suppossedly add to the headach problem`s. When I was at a seminar with Dr. Devin S. she said to put your hand straight out above your eye`s then look towards palm and look back and forth with your eyes if it is painful it means you have triiger points ,inside, behind your eye`s that is the only test she knew of for eye trigger point`s. That would cause blurred vision, headaches, eye sesitivitties etc. If not allergies could be sorgeign`s disease, recent article in arthritis today about it. We had many pts. with fm with this. Need to check with doc about that. Try using some wet eye solution at night,most drs.recommend that for their pts. with dry eye`s. I have always had light sensitivity they say vit. A and eating carrots, old saying, but doe`s have alot of A. Did not work for me, but good luck.
  6. karen55

    karen55 New Member

    My eyes are extremely sensitive to glare and light. I have to keep the blinds closed on the window by my desk at work because the glare off the parking lot and buildings across the street bothers me so much. Fluorescent lights bother me too, and unfortunately my office is full of them. I find myself squinting a lot to try and block some of the light out. I also have a LOT of trouble at night with glare from oncoming headlights, makes driving a bit difficult.
    I wear bifocal contact lenses. I have bifocal glasses but I cannot get used to them, they make me nauseous. My eyes feel dry a lot and I have to rewet my lenses often during the day, even to the point of taking them out for an hour.
    Other times my eyes tear for no reason and it will look as if I'm crying.
    My vision has gotten progressively worse in the last few years. And something weird, sometimes even with my contact lenses IN my eyes, I have to use reading glasses over them to read. Makes no sense to me, it doesn't happen all the time, and it's a major pain.

  7. 2girls

    2girls New Member

    Count me in! My vision changes like the wind. I don't know if you would call it a lazy eye, but my left eye hesitates to open fully when I get tired (often). Also, I seemed to have developped myclonus (sp?). Eyes wander (sometimes go x eyed for a second), sensitive to lights, hard time focusing when in a flare.

  8. praisingHim

    praisingHim New Member

    I also have vision problems. At night, when I am the most tired, I have double vision and I am also sensitive to light and glare.
  9. ssMarilyn

    ssMarilyn New Member

    I just got over a case of Iritis, which my eye surgeon says is common in anyone with an autoimmune disease or arthritis. It's a very painful condition and your site is gone for awhile.

    Marilyn :)
  10. MildredAnn

    MildredAnn New Member

    I, too, have eye problems. I have numerous allergies and have given up ALL eye make-up because they made my eyes itch and water. I have problems with the glare of the sun, reflections, and bright lights at night. To help with this problems I have had my glasses tinted with a light brown, or coral color. Others use a gray tint. My eyes are extremely dry, which I believe to be caused by the medications I am taking, all of which are necessary. The eye doctor said I have a condition like dandriff on my eyelids and lashes (blasphorus?? spelling??) therefore I must wash my eyes with baby shampoon each morning first thing. Because of allergies (mold, pollen and food) I must take 6 allergy shot per week and use allergy eye drops, Alocril twice a day. I then follow with a steriod eye drop. I can not vary this procedure, otherwise the eye problem worsens. It is worse the effort. Hope some of the ideas help you. Good luck.
  11. dojomo

    dojomo New Member

    Please be sure to check the ingredients list.... a lot of mascaras and eye drop solutions contain Thimerosal...a mercury presevative. The government has yet to force the removal of mercury preservatives from cosmetics..FYI..DJ
  12. 1maqt

    1maqt New Member

    I have Sjogrens which makes the eyes very dry. My eyes get blurry and small print is hard for me to read. I have gotten new glasses but that is not the problem. I also have trouble focusing so regular print is just more difficult to see.
  13. KarenL47520

    KarenL47520 New Member

    have the sensitivity to eye make up other mentioned here but both is my vision affected in other ways.

    Where I get my glasses, anytime during that 2 year period you can go back for an eye exam at no charge. I can't tell you how many times I have gone back complaining of not being able to see out of my glasses properly. A couple of times I have been told my eyes were better at that particular moment than they were at the time I got new glasses.

    My eyes have gone downhill so fast that John even bought me a flat pannel monitor. They are suppose to be so much easier on the eyes, the refresh rate of the flat pannel is vastly different than other monitors.

    It drives me bonkers, one day I can see fine and the next day I need a magnifying glass to read small print. Man I had this DD.
  14. WendyC

    WendyC New Member

    Let's, see ... I have night blindness, light sensitivity, I see lines (veins?) all the time as well as spots, I have gotten iritis twice.

  15. ohmyaching

    ohmyaching New Member

    One of the first things to be effected were my eyes. I've experienced most of the problems you mention at one time or another. Eyes just kept getting worse. Been wearing glasses because I can't see things clearly up close- Lost near sightedness. Refuse to accept this as a perminent condition.
  16. IngyW68

    IngyW68 New Member

    One of my first strange symptoms was extreme sensitivity to light in '95 before I diagnosed. I was living in Dallas and had to actually cover the windows with bed covers to keep the light out during the day. Yes, my boyfriend at the time thought this was very weird. But, aren't we fibro folks weird. LOL:) That's when my eye sight starting going bad and I needed glasses. Before Fibro, I had better than 20/20 vision and now I need to change my prescription every 6 months almost to see correctly.


  17. Betsy2

    Betsy2 New Member

    My eyes get really dry at times. I use eye drops throughout the day to keep them moist. Sometimes, they just ache like crazy and I can't keep them open. I also have night blindness so I am unable to drive in the dark.
  18. samjenkin

    samjenkin New Member

    Hi there

    I have really sore, gritty eyes most of the time (looks like I have been hitting the bottle). A mascara I had used for years makes my eyes red and itchy and they tear up really easily also. I am also getting a lot of mucus and stuff in my eyes during the day.

    I bathe them in alternating hot and cold water and this brings relief but sometimes they are too sore to use cold water on. Hope this is helpful.


  19. Kay2

    Kay2 New Member

    I will try to explain. Its like when you look at a camp fire and you see heat waves coming off it or if you see a marauge( SP) in a desert. I look at things as if they illuminate. I can be driving down the street and I cant see the whole car coming. It lasts for about 20 minutes or so. My eye specialist says its migrains, but I dont get migrains when it happens. I may get alittle headache, but nothing major.I have had to pull over because of this while driving. When I am grocery shopping I cant see the whole object. I get these waves when it happens. It happens more in the summer time. I wish I knew what it was caused from. Scary!!!
  20. Plantscaper

    Plantscaper New Member

    because my different eye docs just didn't seem to understand all of these various symptoms that were everpresent for me..I have, at times, tried to really drive the point home that I need to know how to address these symptoms...I used to wear contacts, when I was young, but I went from not being able to tolerate them to no makeup of anykind. My eyes
    react by overproducing so many tears, my eyes burn and ache, etc. so the makeup smears all over my face. Basically, I look like a raccoon..so I have given up...the eye docs have never used the term, Iritis? LANE: Have you had a diagnosis with similar symptoms, called that.. Well, I appreciate all the suggestions, and now I know that I am not alone..It seems that we all have so many similar symptoms but we have come along at a time when few of our docs can give up the help we so desperately need...we need to organize in some way that these docs take notice instead of dismissing our complaints as not of much importance..if it does not fit into their "box of limited knowledge", we pay the price..............LOL, AMELIA
    [This Message was Edited on 02/25/2003]