POLL!!!!!!! How many people have copies of their medical records?

Discussion in 'Fibromyalgia Main Forum' started by jakeg, Dec 24, 2005.

  1. jakeg

    jakeg New Member

    Just wandering how many people have copies of their medical records, and use them as a reference when seeing a new doc or just to keep on file. I have all of my records since I was diagnosed in July of 05?

  2. MamaDove

    MamaDove New Member

    Since this began in 1993...

    I have every lab test, doc reports, even the office visit notes PLUS all my x-rays,ct scans, mris...Everything!

    Can't wait for my ALJ hearing...It will be like the end of Miracle on 34th Street when they drop the letters from Santa on the Judge's Bench...

    I hope the judge asks for PROOF of all my illnesses and says "PUT THEM HERE"...

    I will tell my hubby, BACK UP THE TRUCK!
  3. over50

    over50 New Member

    I kept everything also,which I know contributed to my getting SSDI.
    I need to keep at it,thanks for the reminder.
    Have a Merry Christmas.
  4. lovethesun

    lovethesun New Member

    still a very thick folder.Linda
  5. jakeg

    jakeg New Member


    Thanks for the laugh with the miracle on thirty forth street.

    It was great told my wife what you said and she got a kick out of it to.
    [This Message was Edited on 12/24/2005]
  6. sydneysider

    sydneysider Member

    I collected coppies of medical records in 1999, when I first applied for dissability. It was quite a big job, so I decided to ask for coppies 'for my own records'.

    Specialists like it when I can show them these records, but aren't always so happy to provide me with coppies of the tests that they do.

    I advise all FM people to keep records, as we are often forced to doctor hop, and often we are also more in charge of our own health, as most doctors just don't have a clue.
  7. MamaR

    MamaR New Member

    It makes it so much easier on us.

    I even scan in my scripts before sending them in. I had a mix up with my mail order prescription service. They said it wasn't written for certain amount....I had script to prove it....w'out calling doc (which would take a week to hear back from). It pays to keep records!
  8. Musica

    Musica New Member

    I have all my rheumy's chart notes from about October 2004 (I first went to him that June) and all my labs and radiology results. I also have the report from the neuro eval I had (negative, of course) and hospital reports from my hysterectomy. I get everything from my PCP's office because they don't bat an eye about printing them off (everything is on computer). I must admit, though - I haven't DARED ask for HIS! I am tempted to ask for notes from the visit a few weeks ago, though, as he did his own little test for FM - sneakily moved his stethescope across the inside of my right elbow after I told him it hurt when he took BP on the left! AND he lightly squeezed my upper arms and found that hurt. If/when I leave his office, though, I will probably ask for them, to see what is going to my next doctor and since I am the only one who can keep a complete record.
  9. skyeone

    skyeone New Member

    no i have none of my records, i just thought i'd reply to this as i had been thinking about getting them just before logging in. i believe it's a good idea to have all the info at your finger tips. i've been to so many hospitals, and doc's that i doubt if any one of them knows everything in my back ground. when i was 15 my doc at the time told me i'd be in a wheelchair by the time i'm 30, well i'm now 34 and would like to see if there is a note in my file somewhere recording that convo.

    that is all interesting and i should do it, thanks for the post,
  10. kimkane

    kimkane New Member

    I got mine from my lawyer.
  11. lilbird

    lilbird New Member

    I have all lab work results and copies of Dr. vistits. We will slip through the cracks if we are not pro active.

  12. jhmitch

    jhmitch New Member

    Keeping as many of your medical records as possible is a really good idea. One thing that amazes me is how many errors are in them!

    Each time I go see a new doctor, I hand in the same list of my meds, allergies, doctors, past operations, and medical problems. However, the medical records I've received back from these doctors show a wide variation in accuracy.

    One specialist's records said I was NOT on insulin (I've been on insulin for years). Another said I've never had pneumonia (I've had pneumonia over 12 times). These things were listed OK on the forms I turned into the doctors, but were mixed-up on the notes they took during the visits. The records kept by my endocrinologist are just plain impossible to read.

    So, yes, I think keeping a copy of your own medical records is an excellent idea. Another thing I've started doing is ordering a copy of the Discharge Summary following any type of surgery at a hospital (to order one, contact your hospital's Medical Records Dept. for a release form).


  13. kfrench

    kfrench New Member

    Ammazing what garbage you find the doctor writes about you. Psycosomatic symtoms with refer to psyciatrist. LOVely or for my daughter who also has fibro symotoms. Symtoms vague like mothers. Suspect most symptoms for secondary gain. GRRRR.

    If you want a clue to whether you doc thinks your psycosomatic or takes you seriously get the notes. If nothing else they will tell you if they are actually listening and accurate. My doc would write down thing like abdomen soft with no guarding when my daughter was showing his hands away when he tried to touch her stomach and was covering it so he couldn't touch her. I found discrepencys in almost every single visit of symptoms he denied me having or placement of them etc. Definitly keep all tests so you don't have to pay to repeat them. I will not show this docs notes to any other doc because I don't want to start them off with someone elses opinion that I'm a hypocondriac. Why my first doc thought that after seeing me for 2 years and me never going except when I was sick with a ear infection or something until this fall when my whole body decided to fail me.
  14. steve69h

    steve69h New Member

    I have been keeping mine for some time now with my memory the way it is i make sure to have my files with me when I go for appts to inform who i am with of whats going on .
  15. hagardreams

    hagardreams New Member

    I learned the hard way to get all the records you can. I would have had my disability apporved back in 1996 if I would have had them. I had no way of proving that I had been a diabetic since the age of 12, and they turned me down. They said they could not find any records, or at least that is what they said. A new doctor asked for them, so I went back to the hospital and requested them in 2003 and that hospital found them that time. I have been working on my husbands records also. God bless, Julie
  16. jaltair

    jaltair New Member

    I have lab tests and other tests, but as far as progress notes, I don't worry about them.

    I do keep a running diary and discuss visits to the doctors and conversations with the doctors in the diary. I also have a log of my medications and log of my medical history. These are all in my hardrive and on back up.

    Under HIPAA, we can now get our records anytime from our doctors. So, if I need them, I'll get them.


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