poll..What TYPE of doc has helped you the most

Discussion in 'Fibromyalgia Main Forum' started by lin-z, Jan 28, 2006.

  1. lin-z

    lin-z New Member

    We have all gone to so many types of doctors and non-doctors to find answers and help with this dd. I would really love to know which dr. you would say has helped you the most (ex. rheumatologist,psych, physical ther.,gp,neurologist,chiro....etc.)

    I am so sick of everyone who doesnt have this telling me who to go to (i'd like to tell THEM where to go )and figured I would pose this question to the most knowledgeable people I know :) thanks


    p.s. I havent found one yet that has helped
  2. Suzan

    Suzan New Member

    The right one is the one that believes that you have FMS..and is willing to work with your particular symptoms. I see a GP...but I have also seen a rheumy..who in my opinion was totally worthless! He confirmed fibro..but offered no solutions..and no hope. He told me that the only patients of his that got better did it on their own without any help from him! YIKES! He also said vicoden ( as my GP had prescribed was exactly what he would do.
    But..now I am moving to KY from WI..and I have to start over anyway...NOT something I am looking forward to a bit!
  3. Terry383

    Terry383 New Member

    My GP (who is a professor at the school of medicine) has been most supportive of the trials and tribulations I have encountered. He has tested me ad infinitum, sent me to many specialists, most of whom have helped within their limited scope, a couple have been idiots (rheumies)

    What I like about him is that he respects my feelings, he acknowledges that I do not want to be drugged into a stupor and discusses possible options with me. He has transferred a lot of the methods I have used to improve to other FM patients. He even had me come and address a couple of conferences of physicians of all kinds and has used me to talk to individual patients. (With their permission and mine)

    When I was at my worse with pain he had a nurse come every night to fill water bags so I could lie down, gave me lots of medical supplies (such as special sticky bandages only used in hospitals) because I am allergic to so many things.

    The first 8 years were a horrid nightmare until I found the unit I currently am with during the past 12 years. He is honest, he does tell me when he has no suggestions. He doesn't pretend he is omnipotent. His best trait in my book.

  4. mistress-o-pain

    mistress-o-pain New Member

    Out of all I have seen since I became ill (9 total) my GP has helped me the most. He believed in me when some of the others were just nasty and belittled me. You should have seen his face when I told him I got a positive bench decision! It was priceless!
    Oops, sorry I forgot 2 for a total of 11.
    [This Message was Edited on 01/29/2006]
  5. Musica

    Musica New Member

    I think I must be lucky. Although I still don't have a FMS dx yet, I have a rheumy who specializes in it and a PCP who I am pretty sure believes in it. My PCP has been best at explaining how meds work in the body, the meaning of blood tests, etc. in easy to understand language. Neither have hesitated to prescribe tramadol because they know the effect pain can have on blood pressure, heart, etc. At first, I thought PCP thought me crazy, and maybe he did! But after I described a couple of odd things to him and he actually saw them for himself, he started believing me more. And he finally saw RA for himself, which he had also questioned, as the signs of inflammation were gone by the time I first saw him.

    Also, my rheumy has only ordered SED rate and CRP, which both show inflammation in the fluid (blood), and not RF since I first saw him in 2004. My PCP ordered the RF recently, which was elevated and showed that the RA was active again after having stopped methotrexate. I also just heard from rheumy's front person that PCP has called at least a few times to talk to him about me. So, right now, I am BIG on PCP's thoroughness and a little disappointed with rheumy. Also, rheumy has never done a tender point exam, although I figure he is waiting for more signs and symptoms to show up first. He does watch for them and feels around a couple of places on most visits, though. Although it bugs me that his chart notes show no tender points and lists all the body parts even when he hasn't touched them.

    PLUS (I guess I had more to say than I thought lol), although rheumy knows and uses meds to aid better sleep, he sent me back to sleep doc for that. I didn't think it necessary since I am already on CPAP, but rheumy doesn't try to treat a lot of side issues like some, that's why he called himself "consultative". Still, I am glad I have him because it is still probably that I have at least early FMS, so he is there to monitor things from the beginning.

    [This Message was Edited on 01/29/2006]
    [This Message was Edited on 01/29/2006]
  6. Adl123

    Adl123 New Member

    Dear Lindsey,
    I've gone to two doctors who helped me, and knew what they were talking about.

    The first was an MD that practiced Integrated Medicine. Unfortunately, she passed away.

    The second was an MD who is a Rehabilitation Specialist. He is Dr. R.O.Waiton, and is on the good doctors list for this board. He has so many credentials that they can't be listed here. Unfortunately, he is very elderly now (He was a Flyng Tiger in WWII), and I had to move to another part of the state. But he is really good. He knows how to use alternative medicines as well as regular ones.

    I only wish I could find a Dr. where I live. :)

  7. Adl123

    Adl123 New Member

    Your Dr. sounds great. Where is he located?

  8. Sheila1366

    Sheila1366 New Member

    My 2 psych. are wonderful and so is my reheumy.All three are females and I really like that.One of my pscyh.has bipolar and she is the greatest inspiration.My reheumy is very understanding and just a sweet person.I try to shower them with cards,cookies and things I make.I like to take care of those that take care of me.I feel very blessed.
  9. laura81655

    laura81655 New Member

    Who is an Internal Medicine dr. It took me so long to find someone without the Ego or Arrogance. I was desperate before finding him. I went to the Scripps Clinic and asked the Receptionist who told me about him, how much she liked and respected him. He was also her doctor too. Maybe you could simply ask the Receptionist at your Clinic. Good luck to you!!!

  10. musikmaker

    musikmaker New Member

    My GP has helped the most as she believes in FM and she listens when I bring in topics I have read for discussion. She also thinks a blend of traditional medicine and natural medicine can be beneficial. After reading so many stories on the board about bad Doc experiences, I a greatful to have found her.
  11. ilovecats94

    ilovecats94 New Member

    I saw the pain specialist, PT, neurologist, had the tests, but never saw a rheumy. It was never even mentioned to me.

    I've been through two different family docs with FMS. My present one is the one who is treating me for that and overactive bladder.

    My endocrinologist is treating me for diabetes, hypothyroidism, high cholesterol.

  12. russiankids3

    russiankids3 New Member

    me out the most. First rheumy did not believe in FM/CFS and told me my problem was that I was fat and lazy!! At the time I was 5'7 1/2" and weighed 145 lbs.!! He should see me now. Weigh 160!

    Someone on this board recommended Dr. Neucks who is in Indianapolis. He is a rheumy and he is very interested in FM/CFS and tries his best to help me with meds. He also is very pleasant to talk to--he actually listens!!!

  13. MamaDove

    MamaDove New Member

    a Physiatrist in central Maine first mentioned FMS to me in 1994...He also told me that the medical community around him frowned upon this diagnosis cause they didn't understand it...He stated it once in a report but always referred to it as myofascial pain syndrome for workers comp and the insurance cos...

    He stodd by me the entire year I was going for treatment for a herniated disk in my neck suspected of causing allthe symptoms which I still have and more...Along with a previous whiplash, a surgery to remove my left ovary and tube and a 4lb. mass as well as grieving the loss of my Mom, all coming within 2 years of eachother, became my lifelong struggle with FMS...

    Dr. Ahmed stated in a report that he believed I would never fully recover and the FMS would be a chronic, lifetime condition and he would hope I could find some relief in drug or physical therapy...He tried everything on me, I did not do well...His last recommendation was trigger point therapy and injections in my cervical spine...I passed on that!

    He now has his own practice in NM...I would gladly go to him again, I am sure he is well equipped knowledge-wise and is treating many people like us...

    Funny tho, it took me another 10 years and over $20k to be diagnosed by a rheumy for anyone (SSDI) to take me serious.
  14. tmeacham

    tmeacham New Member

    Some of us want to learn more about what you are going through. Have to admit; it's frusrating when there are a constant stream of patients who come in with a syndrome that no one has yet found a cause of. When there is no known cause, cures don't come easily.

    Being a psychiatrist, I'm used to that.

    It's far easier to be dismissive of the suffering person in front of you than admit you din't know how to treat it.

    But then, you are sharing what's working for you here. I'm paying attention.

    Don't lose your patience. The virus or what ever it is will be found some day, and the mechanism revealed.

    In the meaintime, I'm going to think "Klonopin" (among other things) for a lot of my patients with this.

    Thanks for the perspective!
    Dr. Tom
    [edited as per rules]
  15. Dee50

    Dee50 New Member

    I just reported Dr. Tom and his web site to our Pro-health.
  16. lin-z

    lin-z New Member

    Maybe I am not familiar with all the rules but what was it that Dr. Tom said that needed to be reported? Maybe he listed his web address and it was deleted before I saw his response. I think its awesome that docs read this site or is that not ok??

    As long as they let us know they are doctors are they not able to respond???

    thanks linz
  17. ellikers

    ellikers New Member

    I am here to say that the nurse practitioner I'm seeing is wonderful! Her specialty is as an FNP (family nurse prac.) and she has a small practice near my house with other NPs and two doctors.

    Honestly, the two NPs I've seen this year have helped me 10 times more than any doctor I've seen over the year (which is about 5-6 of them).

    She was recommended to me from someone in my town who also has CFIDS.

    And it turns out this NP has HAD CFIDS! She had it years ago and recovered. Hows that for promising?

    This makes me want to be a NP even more!!
    [This Message was Edited on 02/01/2006]
  18. dancingstar

    dancingstar New Member

    My internist is a sweetheart and has given me pain meds, without which I couldn't do the little I do to keep my business running as sometimes I hurt so badly I can barely make it through...and sometimes I don't. ;-) He doesn't know what causes the FM or CF, though.

    I've recently been going to Dr. Holtorf/FFC, and I'm really feeling optomistic about his ability to help me to heal or to at least feel significantly better. So far everything he has done agrees with my oh-so-sensitive system perfectly. In fact, I am beginning to think that I should be taking some of their shots home with me :) cause after a week, I wish I had them again; they seem to make such a huge difference in the way I feel and function, kind of night and day.

  19. ellikers

    ellikers New Member

    bumping up because I think this is a helpful thread

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