Poll: Work? Still able or what can u still do?

Discussion in 'Fibromyalgia Main Forum' started by Dadto3, Aug 23, 2003.

  1. Dadto3

    Dadto3 New Member

    I am curious to see how many of us are able to work anymore and what type of work you are able to do. I was terminated from my factory kob of 11 years the day after finally being diagnosed with Fibro. Have had 3 jobs since then but not able to work for about 6 weeks now. Trying to put in new garage seeings how last one is now a new masterbedroom and wheelchair acess entryway. My ex wife has MS and we live together with my 3 beautiful little girls.
    [This Message was Edited on 08/24/2003]
  2. sunshine8957

    sunshine8957 New Member

    There seems to be something with that 11 year mark with an employer. I had a similar situation last November. I tried looking for work and when I was close to being offered a job, I panicked about HOW I WAS GOING TO BE ABLE TO DO IT. After that incident, I realised that I had to be realistic about working and I filed for Social Security Disability Income at the end of March. I was turned down the first time, which I understand is pretty standard. I now have an Attorney on Contingency for the Hearing with the Appeals Judge.

    I was dx'd in 5/99 with symptoms that started in 1/99 so I was able to keep working for almost 4 years - but that me.
    Everyone with FM have different symptoms that break them down to the point where they can no longer work. You just don't have any way of knowing when that time will be. It sounds like you may be either at or close to that point.
    For all you know, working on your new garage could be the final straw that breaks you down where you end up with a severe flare (happened to me) that puts you out of work.

    If I were you and didn't feel you could work anymore, you may want to consider filing for SSDI now (if they'll let you - first 5-6 months you are on your own for survival purposes, THEN IT CAN TAKE UP TO 1-2 YEARS to be approved for SSDI.

    With your sick Ex and 3 little girls, you want to make sure you have enough financial back up. I have to tell you from a woman's standpoint, that even though you and your wife are divorced, you are taking care of her because of her illness. Your girls really need you now more than ever. Can you imagine how scary it could be for them to have two sick parents - if you haven't had that "reassuring talk" with them - now may be a good time.


    Also, is it an absolute that you have a garage? I'm from New Orleans and a lot of houses do not have garages because the owners opted for more "house" space. If you have to have the garage, then you may want to consider recruiting some neighbors, family, your church family for help. If anyone knew your story, they would have to be either extremely busy or heartless not to help you get that major job done.

    I just have to believe God will help you BUT you have to ask him.

    I'll keep you and your family in my thoughts and prayers.

  3. pixipip

    pixipip New Member

    they couldn't fire me while I was sick so got round it by making me redundant, didn't matter in the end cos can't work anyway, everything wears me out, try to do little bits round the house putting clothes in washer & dryer that sot of thing, dtermined to keep up my one morning a week at college, it's my will to improve keeps me going av to positive though somtimes sooooo hard, I'll get better if it kills me LOL.
    Love & Light
  4. Pryna

    Pryna New Member

    I am still working, and generally I like what I do. Unfortunately, my job involves "call" (resident in training)and when I get woken up in the middle of the night, even if it is just once or twice at 2 or 3 in the morning, I go on the downward spiral. I really don't have a choice at this point, and am not ready to quit after coming this far. When I am not on call, things are much more do-able. No one at work knows, so I am just in my private little place trying to hold on when I am going through a sleep deprived period.
  5. IgotYou

    IgotYou New Member

    Three years ago I was so bad off that I thought I'd have to quit working. I still was not diagnosed and had no idea what was wrong with me. The aching was bad enough, but the brain fog was incredibly debilitating, particularly since I had a job that relied on intellect. I got an outbreak of skin lesions and was diagnosed with sarcoidosis, and after researching on the Internet found many people with that disease also were gluten intolerant. I decided I was in hell already, why not give up my favorite foods and see if I got better? After three days I was a new person. Since my diagnosis with FM a month ago I have found out that many people with it also are intolerant to wheat. I now realize that my sarcoidosis was in a way a gift from God. If I hadn't had it I wouldn't be able to work today. But now I can hold down a full-time job as a writer/graphic artist. It's not easy - I still get some brain fog that is very frustrating and my hands hurt, making typing difficult - but I can do it and I don't feel I'm getting to that point of not being able to work. If you haven't tried giving up wheat (and I mean ENTIRELY), you might want to try it. Maybe that's not your irritant, but if it has the potential of making you feel this much better, I would try it. You'll know in just a few days.
  6. Kim

    Kim New Member

    after the Summer off teaching college. I wouldn't have a problem if it weren't for the depression. It has hit me again and the State of Florida has cut back so much on mental health my shrink is a basket case at a time when I need him very much.

    The pain in my neck and back is bad and the dizziness is bad but I can tolerate it when the depression in in check. When I'm not depressed I have NO BRAIN FOG, great concentration and memory. When the depression hits my brain is like that of a different person, maybe not even human LOL.

    God bless you and you, your kids, and their mom are in my prayers.

  7. loriRn

    loriRn New Member

    I am a registered nurse,have been dianosed for a year, sick for 2 years before. So far I've been abled to maintain full time. I never have much sick or annual leave time in the bank cause it seems I'm using it as soon as I get it, but I know I'm blessed. Trying to take it 1 day at a time. Lori.
  8. Chrissy3

    Chrissy3 New Member

    i was dx with CFS about 3 years ago and work full time but around 18 months ago I had to take off 5 months sick leave as I was so tired and dizzy I could hardly stand. I struggle now and most of time feel dreadful at work and have no social life but need the money as my partner is out of work.

  9. catgal

    catgal New Member

    I'm 54 and worked full time all my adult life up until 1993 at the age of 44 when my FM/CFS, asthma/allergies, and osteoarthritis forced me to resign and take a part-time job that I've had now for 11 years.

    Along these 11 years, I developed psoriatic arthritis, rheumatoid arthritis, my asthma has become extremely severe, and my FM has become worse. However, I am a therapist, work three days a week, and up until five years ago was able to keep up and perform fairly well.

    But five years ago, my back, neck, and shoulder area started hurting me unbearably. I started missing work because there were days I couldn't get out of bed. I was so used to the pain and aching of FM that I thought I was just in a long, very bad flare. But, the pain got so constant and intense that three years ago I finally had x-rays and an MRI which showed advanced degenerative disc disease with multiple back problems. I've seen several specialists who all agree that my back problems are so advanced, varied, and all up and down my back that surgery would not help me.

    I've been a therapist for over 30 years and love my work. However, over the past three years I started missing alot of work--especially this year. As I am the only therapist in my facility--the patients don't get seen if I'm not there which causes major problems in their treatment program and upsets the CD counselors and administration. And, I get behind in my work. I have recently been ill with additional infections and have been out of work for the past two weeks. My supervisor and the staff is not happy with my performance as it has gone so downhill and creates a hardship for the Program.

    I fear they are going to fire me due to too many absences, and I am my sole financial support. Yet, even if they don't fire me--I don't know how much longer I can keep working. It seems my immune system is shot to hell, and I get sick with all kinds of infections and such on top of all my other ailments. And, all these ailments have me so run down I am exhausted--so very, very tired & sick.

    I have to go to work tomorrow and am still down with three infections plus FM and back flares. But somehow, I've got to drag myself to work tomorrow. I would file for disabiity, but I don't know how I would survive financially until or IF it ever got approved. Blessings to All, Carol...
  10. Sunshyne1027

    Sunshyne1027 New Member

    I have skills to work office, clerical, admin. assistant, desktop publising jobs. Recently went through vocational rehab. Got to the point where I was constantly flaring, dealing with migraines daily. Went to try and file foe SSI or any sort of help, came to so many dead ends. Not enough work credits, husband supposedly has to high of a income. (Which is only 2,000 a month from workers comp).

    With not being able to work, contribute to our finances, it brings on alot of depression. Like clinical depression, anxiety. Being without insurance right now too, more depression.

    Trying at it again though. Talked with my VR counselor and we decided to try part-time work. Would like it to be close to home, so less travel and stress. The busy highways here stresses me out, then I flare again.. You know?

    The last job I had was last year, working a call center. The stress from it put me in flares, and I was sick alot.. so lost that job. Lost a couple more before that one too. Its been 8 months since I worked.

    We have three boys. Ages 16-13-11. Love them to death. Took time for them to come to realizations on how sick we really are. They deal with it the best they can.

    I know that therapy with it all has helped alot. To get my feelings out to someone who cares and understands, and trys to help me. Supportive.

    Thought about working from home. Not sure really. Thats the whole thing that bothers me. Don't know what to do. Work..Like out in the rat race, stay home and not work-but try and get a little better, or work from home. Etc..

    Right now taking a break from it all. Kids start back to school tomorrow. I will have more time to deal with it all, think it all over. See what happens.

    Hope something works for you, good luck!
  11. MiahRoo

    MiahRoo New Member

    I haven't been working for about 10 months now. I'm only 20 years old and I have to live my life like I'm 90. It's very frustrating for me to be at home with a messy house while my fiance works his butt off trying to make ends meet. I can barely wash the dishes half the time. I really hope I can get back to work because this is just killing me emotionally. I get a sense of self-worth from working and when I had to quit my job it just killed a part of me. I have some days when I can clean parts of the house. Or like today...I'm painting a dressing table for the room I want to redecorate and turn into my own little sanctuary. But I can never predict when I will be able to get out of bed in the morning or when I can barely roll over when I open my eyes because of the pain. That makes having a job seem impossible.

    Anybody find any work from home positions that weren't those silly rip offs? I'd give anything, anything!, to be able to bring in some financial support.
  12. IngyW68

    IngyW68 New Member

    Hi there,

    I can emphasize with all of you:( I was diagnosed in '95 with FM and CFS. I am 35 now. I have had lots of different jobs since then. THe longest I have had them is for 2 years consistently. BUt, ever since I had two discs in my neck taken out and replaced with the bone in my hip and got diagnosed with DDD, I have been in terrible pain and had to leave my last dream job as an event planner for the AMerican Cancer Society. It makes me soooo mad that this disease calls the shots and not us! So, now I work part time at my husbands company which is not too bad except WAY less pay and COBRA insurance for us for now. $700 a month just for the two of us!!!!! Isn't that ridiculous?

    I will be praying for you all and hoping that your pain is low and those filing for disability get their fair share.

    Take care.

  13. Takesha

    Takesha New Member

    I haven't worked in over two years due to a fall that messed me up. I tried to for a part-time job back in April. After attending 3-8hr orientation classes, I had my first full blown fibro flare, which hasn't gone away yet. I am attempting to classes at the college starting in Sept. There is no way I could work 40 hrs. per week at this point. Am barely able to keep up the apartment, cook meals etc.
  14. jadibeler

    jadibeler New Member

    for nearly 10 years. I'm 58 and I've had FM all my life (hereditary). Even when I did work - never for more than 2 years at a time - I usually managed to quit right ahead of the pink slip. My very first job, at age 20, was a killer. I had to climb to the Elevated platform every evening and it was so painful on my legs. Then I got fired because I kept making so many mistakes (clerical). The brain fog (and I have ADD) and bad memory have plagued me since school. After that, I just knew when it was time to quit.

    Back then there was no diagnosis for FM. In 1977 I was finally diagnosed after I had to give up a job as a podiatric assistant because it was so painful on back & knees. Went and learned medical transcription instead, which I loved, but again, just kept making too many mistakes.

    Finally, the fatigue just got to be too bad and I never know how I'm going to feel from one day to the next. There are days when I have to just stay in bed and sleep. I'd kill for a job I could do at home. For 2 years I painted wooden statues for a chainsaw carver, here at home, but I had to give it up when I had to care for my mother. Now he has someone else. I've been wracking my brain for something I could do here but nothing comes to mind. Even here, there are many days when I couldn't work.

    Never even tried for SSI, knowing how next-to-impossible it is. Now I'm just holding out for four years until I can qualify for the piddling little amount of Social Security I have built up.

  15. Danett

    Danett New Member

    That was up until January. Had a 2 week major flare January- another one that lasted for 6 weeks starting in April and haven't been the same since. I was dx 2 years ago, but went into remission for almost a year.

    I can now only work 4 hours a day- but do it 6 days a week. I'm stiff when I get out of bed, but once I get going I loosen up. After about 2 hours at work (on my feet constantly) my legs start hurting. By hour 4 I just have to go home- sleep it off. I literally "feel" like I will collapse if I don't lay down and sleep! After my nap, I do pretty good, but I usually just hang out, play on the computer, do bookwork or read. Some days I do great- I can actually cook supper!

  16. Chelz

    Chelz New Member

    Hi dadto3! I was terminated from my job only 1 week after my FMS diagnosis. I'm so sorry this happened to you as well. I was able to collect unemployment and my parents are helping me, but I haven't had any luck with jobs. My resume actually looks pretty good because I worked in office settings for 12 years. I apply for jobs, but get turned down because they think I'm overqualified. I laugh at this sometimes because I can't do the work I did before, but these companies don't know that. I've been out of work for a year and it's getting harder and harder to think about going back. I wish you luck in finding work, it's tough out there for everyone, but for people with this condition it can be an added misery. Good luck to you and your girls. Hugs, Chelz.
  17. libra55

    libra55 New Member

    Let's just say I don't have a paying job. I don't see how I could. Some days just completely stink healthwise and other days I am ok.

    I bust my rear end around this house so I am obviously doing some sort of labor. I don't get any help with household tasks. I can relate to the woman who said she never had company. I can't have company either. This place looks like a nuclear bomb hit it. The little bit of housework I am able to accomplish doesn't even put a dent in this mess. My husband is bi-polar and collects all kinds of crap, old parts, wires, things from his childhood. He has a tantrum if I suggest he throw anything out. One of my children is also bi-polar/autistic.

    Before Fibro, I worked a 40 hour week at a major defense contractor. I was good at my job and loved it. Then I had two children. I tried to keep up working but I began to not feel real good (what I think was the beginning of the fibro). Eventually I became so exhausted I quit. I then worked part time as a copywriter/proofreader for 5 years. It was a perfect job for me because it was right in my town, I could work at home on my own schedule. By this time I had my fibro diagnosis but I was able to keep up with the work (only about 20 hours a week). Sadly, the company folded and I was left without a job. I have tried to find similar work but have no luck.

    I have such bad flare-ups that I cannot even look for work. I have gained over 100 pounds. I have to spend a lot of time taking my daughter to her various specialists. In spite of this she is doing very well making honor roll in school but it is a big committment to manage her appointments, meds, ed plan, etc. My other child plays every sport imaginable so I am always driving to games, meets, etc.

    I know I need to work, for my own sanity, but there are days I can barely function. Once I ran a department and scheduled rocket launches; now I can't find where I put my glasses. Don't know whether to laugh or cry.

  18. Sandyz

    Sandyz New Member

    This is a good topic. I`ve been wandering this myself.

    I no longer able to work. My last job was 3 years ago. I have gotten so much worse the last 5 years, I can`t do it anymore. Lately, I can barely cook, clean and take care of myself and my family. Its been hard to keep up. My kids will be back in school soon, maybe that will help my energy level.

    Good luck with your garage. That`s a big project and with 3 girls, your a pretty busy guy. Don`t overdo it.

    Take care
  19. MissRachel

    MissRachel New Member

    HI dadto3,

    I worked for almost 4 years of being dx. I got fired becasue I was sick too many fays and was falling behind and my quality of work was decreasing. I was an office administrator and accuracy was VERY inportant. It wasn't too bad because my goss and I did not get along well. I was just hanging in to save money to go to college, which I did.
    I just completed my 1st year and tried working a summer job, but I couldn't do it. I worked 8 weeks. Now I'm heading back for mysecond year of school and it it going to be relly hard. My husband doesn't think I can do because I have been really sick lately because i'm i'm new medications that are doing me in. I just pry for the strenght and the ability to succeed. Bcause I can work we are in BIG finacial propblems. (God let me keep my house). My hubbie says i'll probably never work again and is will to suppoy me (thank God), This has been the hardess time in my life and I pray it gets better.

    rachel[This Message was Edited on 08/24/2003]
  20. RhainyC

    RhainyC New Member

    I am having a rough time with it. I wokr full time PLUS> By plus I mean quite often I have to work 8-12 days in a row before having even 1 day off. I have been there just over a year, and we recently (May) had an ownership/management change. I am the *Hotel Operator* at a large very swanky resort hotel. The work is not really the hard part, as I have done similar for almost all of my working life. My problem is the fact that the Fog and the Pain really get to me somedays, and there is _ALWAYS_ massive stress.

    My depression is being handled very well by my meds, and my therapist (T) is working with me on learning some new coping skills. They will hopefully help me to keep my job a bit longer.

    I have so many days now, when I have to force myself to get out of bed, despite the fatigue and pain, and go to a job I HATE to have to go to. By the time I get home, I am totally worthless. I plop down in my chair and do basically nothing, until bedtime.

    I would love to be able to go part time, and stay at my job, but they will not allow me to do that. The stress at work is constant and very HIGH. That just triggers more FMS symptoms, like my IBS, which flares Horribly. Then, of course I can't do a good job because I am running to the bathroom every time I turn around. This of courses pisses of _Certain_ co-workers and then they give me more *sh*t*
    because I am not at their beck and call.

    So, I am trying to decide what I am going to do. I have applied for and been turned down for SSDI once, but am going to reapply again, and hope to get it this time..or I should say I am going to fight to get it this time.

    My husband thankfully has a good job, but in order to live, we have to bring in aobut $500 over his income just to break even. My SSDI would be just over that amount, so we could survive....

    Anyways, this ran a lot longer than I had planned....that is where I am at right now...btwn a rock and a hard place, and worrying about losing my job.

    [This Message was Edited on 08/24/2003]