Possible Fibromyalgia and want answers

Discussion in 'Fibromyalgia Main Forum' started by elvira197335, Aug 20, 2008.

  1. elvira197335

    elvira197335 New Member

    I was diagnosed with chostochondritis last week with no underlying cause. I have been under extreme stress in the last month and had to give a promotion up at work due to severe chest pains. I went to the doctor who said definate chostochondritis possible fibromyalgia. He prescribed lyrica but would not diagnose the fibro so the insurance did not cover it. I called him back and his attitude was oh well pay for it out of pocket. Needless to say I have a new doctor and see her next week. I have had debilitating pain in every joint I have. I have been tested for carpal tunnel in both arms 5 times and have been told every time I do not have it. But yet my wrists and hands swell to where I can not hold anything and can barely type for work. There are days I think I am nuts because the doctors won't diagnose the fibro, they just keep saying it is a strong possibility. Anyones thoughts on this I would greatly appreciate. Any tips on what I can do to try to help myself would be greatly appreciated as well. Thanks
  2. charlenef

    charlenef New Member

    most pcp will not give you a dx. you need to go and see a rhumey that deals with fibro. i saw 6 dr before a dx was given. do you have tender spots in the right places? that is usually how they dx you. have you looked into fibro at all? ill find some info for you
  3. charlenef

    charlenef New Member

    What is Fibromyalgia?

    Fibromyalgia or fibromyalgia syndrome (FS, FMS) is a debilitating collection of symptoms and problems. Its foremost symptom is pain. It seems to be closely related to chronic fatigue syndrome, but with pain as its stand-out symptom instead of fatigue. It often occurs with Chronic Myofascial Pain (CMP, CMPS) , but not always. Fibromyalgia symptoms are similar enough to Multiple Sclerosis, Lupus, Neuropathy, and other disorders that most physicians want to run a battery of tests to rule out the other conditions before a diagnosis of FMS is given. Usually, it is the lack of positive testing for other conditions plus the patient's history that yields a diagnosis of fibromyalgia. The cause of fibromyalgia has not been determined by the medical community. Researchers performing tests on patients have found common deficiencies and physical problems and proposed some theories. Celiac sprue, leaky gut syndrome, estrogen dominance, genetic predisposition to move electrolytes inefficiently, thyroid problems, allergies, trauma, viral infection, exposure to toxins, relaxin hormone deficiency, and stress have all been suggested as possible causes. There is also no known cure for fibromyalgia. Yet, some people recover from fibromyalgia and CMP, so there is a possibility of recovery, and some therapies banish symptoms to the point that sufferers can lead normal lives. FMS and CMPS are not progressive. That is, they are not a death sentence. But the symptoms can become progressively worse over time. Victims must aggressively take charge of their lives with the help of family and medical experts in order to reclaim their health. The things I have done to help myself recover represent changes in hormone balancing, lifestyle, and eating habits that are myriad and take commitment. But it's worth it. Be comforted by the fact that your old habits were not just unhealthy for you, but are unhealthy for anyone. Unhealthy lifestyles are always harmful in some way or another, and there is always a payment – in health, in attitude, in money – to be made.

    Fibromyalgia symptoms are many, and no one suffers from all of them. Some symptoms may be more pronounced in your case than others. Pain was my most bothersome symptom, while my friend's was irritable bowel syndrome, yet we both suffered from fibromyalgia. All victims have tender points that are very painful to the touch. The tender points feel severely bruised and may send pain radiating to other parts of the body. Eighteen of those points have been mapped and are used to diagnose fibromyalgia. Most doctors expect a newly-diagnosed patient to have suffered pain for at least three months, and to be very sensitive in 11 of the eighteen sites. These 18 sites are really 9 pairs, with matching sites on both sides of the body. This is laughable for many sufferers, for they have pain sites everywhere. Some even suffer skin pain, where even a light touch to the skin is unbearable. Still, some patients may have fewer pain sites. The sites are located in the following areas: 1) behind the ears at the base of the skull; 2) on the trapezius muscles half-way between the spine and the shoulders; 3) on the shoulder-blades; 4) in the front just above the collarbone; 5) about 2 inches below the collarbone on both sides of the breastbone; 6) on the forearms along the line of the thumbs just below the crease of the elbows; 7) above the buttocks on the outer sides; 8) on the upper thighs, on the outside just behind the hip thrusts; 9) on the insides of the knees. My most profound pain sites (to pressure or touch) were along my outer thighs from hips to knees and at the Achilles tendons.


    “Growing pains” in children and youth
    Chronic cold symptoms, such as sore throat, stuffiness, nasal drip, swollen glands
    Drooling in sleep
    Difficulty swallowing
    Dry cough
    Aching jaws, especially when chewing gum
    Dizziness when field of view moves
    Stiff neck
    Mold/yeast sensitivity
    Inability to enter deep sleep; unrefreshing sleep
    Morning stiffness
    Shortness of breath; sucking air during exercise
    Painful weak grip that may let go
    Dropping things
    Menstrual problems and/or pelvic pain
    PMS (Pre-menstrual Syndrome)
    Loss of libido (Loss of sex drive)
    Low back pain
    Nail ridges and/or nails that curve under
    Difficulty speaking known words
    Directional disorientation
    Visual perception problems
    Tearing/reddening of eye, drooping of eyelid
    Loss of ability to distinguish some shades of colors
    Short-term memory impairment
    Weight gain or loss
    Sensitivity to odors
    Mitral valve prolapse
    Double/blurry/changing vision
    Visual and audio effects/falling sensations before sleep (called “sleep starts”) Earaches/ringing/itch
    Unexplained toothaches; shooting pains in gums and teeth
    Rapid/fluttery/irregular heartbeat/heart attack-like pain Bloating/nausea/abdominal cramps
    Appendicitis-like pains
    Carbohydrate/chocolate cravings
    Sensitivity to cold/heat/humidity/pressure changes/light/wind
    Abdominal cramps, colic
    Panic attacks
    Mottled skin
    Confusional states
    Thumb pain and tingling numbness
    Urine retention
    Tendency to cry easily
    Night driving difficulty
    Weak ankles
    Lax, pendulous abdomen
    Upper/lower leg cramps
    Tight Achilles tendons
    Groin pain
    Irritable bowel syndrome
    Urinary frequency
    Stress incontinence, anal/genital/perineal pain
    Painful intercourse
    Muscle twitching (even in large muscles or muscle groups)
    Numbness and tingling
    Diffuse swelling
    Hypersensitive nipples/breast pain
    Fibrocystic breasts
    Buckling knee
    Problems climbing stairs
    Problems going down stairs
    Free-floating anxiety
    Mood swings
    Unaccountable irritability
    Trouble concentrating
    Shin splint-type pain
    Heel pain
    Sensory overload
    Handwriting difficulties
    Sore spot on top of head
    Problems holding arms up (as when folding sheets)
    “Fugue”-type states (staring into space before brain can function)
    Tight hamstrings
    Carpal tunnel-like pain in wrist (watchband area)
    Balance problems/staggering gait
    Restless leg syndrome
    Myoclonus (muscle movements and jerks at night)
    Feeling continued movement in car after stopping
    Feeling tilted when cornering in car
    First steps in the morning feel as if walking on nails
    Pressure of eyeglasses or headbands is painful
    Thick secretions
    Bruise/scar easily
    Some stripes and checks cause dizziness
    Bruxism (teeth grinding)
    Inability to recognize familiar surroundings
    Delayed reactions to “overdoing it”
    Family clustering (other members of the family have FMS)
    Tissue overgrowth (fibroids, ingrown hairs, heavy and splitting cuticles, adhesions)

    Reading this list is both distressing and comforting for the newly-diagnosed sufferer – you realize you really are sick , but it's comforting to know that there's a reason for all these maladies, and showing the list to family members helps them to understand how complex and encompassing the syndrome is. I would add the following: when lying down to rest and relax at night, saved-up pain accumulated during the day begins to fire off, resulting in a “torture-chamber” experience of assorted types of pain – burning, shooting, electrical, pressure, pummeling, biting. Muscles roil during the night, and prevent deep, relaxing sleep, as well as the production of growth hormone and serotonin. One wakes up feeling like he/she has been run over by a Mack truck and left for dead.

    Depression is common to virtually all fibro sufferers. This depression, however, might not be symptomatic, but might the kind of depression suffered by anyone who is in constant pain or who is disabled. Irritable bowel syndrome can be characterized by constipation and/or diarrhea (sometimes alternating), frequent abdominal pain, gas, and nausea. 40% to 70% of fibromyalgia sufferers experience IBS. About half of patients suffer from migraines or tension headaches. Muscles or tendons in the face can tighten and affect the jaw (TMJ). Half of fibro sufferers are very sensitive to odors, bright lights, noise, medications and/or foods. Memory can be impaired. “Fibro-fog” is the slang for foggy thinking. Most fibromyalgia sufferers are women (9 to 1). Many fibromyalgia sufferers have hypoglycemia. Fibromyalgia symptoms ebb and flow in an unpredictable cycle. When symptoms are severe, the sufferer is in a “flare.” Stress, stormy weather, diet, hormone fluctuation, or over-exertion can bring on a flare. It is more than coincidence that many of the symptoms listed are also seen in “estrogen dominance” or insulin or thyroid resistance. I will discuss these later.

    2 Devin Starlanyl: ( www.sover.net ) is both a sufferer and an expert in dealing with fibromyalgia. Her book, Fibromyalgia and Chronic Myofascial Pain: A Survival Manual is a must-read for any sufferer (edition 2, Starlanyl and Copeland, 2001).

  4. elvira197335

    elvira197335 New Member

    I have tenderness on both sides of my body and above and below my waist. Both shoulders elbows wrists hips knees ankles and occasionally my toes. I do have irratibility and am an awesome weather forecaster. I can tell two days before it is going to rain normally. I do have some depression on the days I hurt and don't want to move but I make myself get up and go. I think that is why the chostochondritis knocked me on my butt is because of a very high stress level and rain for a week. I unfortunately do no listen to my body real well and will push through anything. There are just some days I don't want to move at all and these are the days my husband dreads because I am a major bear. I work graveyards so I don't sleep real well and am tired most of the time. I try to sleep but usually wake up about every two hours. I see a new doctor next week and will see what she will do. I have no problem changing my PCP again if she will not listen to me. Thankfully I have extremely good health insurance that with the right doctor will cover just about anything.
  5. PVLady

    PVLady New Member

    You might want to ask for a doctor referral here for a fibro doctor in your area. There is also a website you can check for recommended doctors for fibromyalgia.

    It seems doctors either believe in fibro, or don't.
  6. charlenef

    charlenef New Member

    for a fibro chart it will show you where to press to see if you are tender here is one website http://www.fibropains.com/node/7
    [This Message was Edited on 08/21/2008]
  7. elvira197335

    elvira197335 New Member

    Bumping to the top
    [This Message was Edited on 09/03/2008]
  8. Susan07

    Susan07 New Member

    Check out the Library tab on this site, you'll get a lot of great information.

    Also the Doctors tab can help you find someone in your area.

    A nuerologist or internal medicine specialist can also help. Call the office first to see if they have any fibromyalgia patients. They'll let you know pretty quickly if they don't want to deal with you.

    You may want to print out the list in the other post and check off your symptoms to take to the doctors office with you.

    Take care

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