process of being diagnosed..need help

Discussion in 'Fibromyalgia Main Forum' started by lastormer, Jan 28, 2007.

  1. lastormer

    lastormer New Member

    One day while doing my usual yard check, i'm a security guard/ dispatcher and i noticed that while walking my calves ached as though I had been walking for a really long time. Next i noticed when i was hanging colthes that my neck and muscles along the side and lower neck were burning only after hanging a few peices of clothes. what really sent me to the doctor was when my husband and I went on a weekend trip to New Orleans and after only walking a block my legs were in so much pain. I had to walk very very slow to deal with the pain, but I did push through it. By the end of the night when we returned to the hotel, i was in sooooo much pain. my legs hurt to even touch and took at least 30 minutes to return to a somewhat normal state. I went to the doctor and all my blood test were fine and my heart was ok so they refered my to a neurologist which i see next week. i'm afraid that it might be something else beside fibro because most of the info about the pain people expexperience seems to be constant and my pain is not. My muscle are painful only when i move. I have all the other symptoms fatigue,trigger points i think, mind fog etc.. it's just the pain that doen't seem to be the same. Can someone with Fibro maybe tell me how the fibro started and what the pain is like?
  2. HurtsToMove

    HurtsToMove New Member

    gets worse as the day goes on. If I could just lay in bed all day I'd never hurt (for the most part). I do have joints that hurt whenever I move them to extremes, most notably my wrists and elbows. My tender points also are usually sore. But the aching and burning I get (primarily in my legs+hips) gets worse and worse as the day progresses. Once it's "on fire" as I call it I can't get relief, no matter what I do. But I go to bed and the next morning I feel okay. Then it starts all over again. On really good days the pain doesn't start in earnest until lunchtime.

    After a million tests they can't find anything wrong with me other than FM.
  3. charlenef

    charlenef New Member

    i would get checked for chronic myofascail pain also here is some info on both

    What is Fibromyalgia?

    Fibromyalgia or fibromyalgia syndrome (FS, FMS) is a debilitating collection of symptoms and problems. Its foremost symptom is pain. It seems to be closely related to chronic fatigue syndrome, but with pain as its stand-out symptom instead of fatigue. It often occurs with Chronic Myofascial Pain (CMP, CMPS), but not always. (See a description of CMP below.) Fibromyalgia symptoms are similar enough to Multiple Sclerosis, Lupus, Neuropathy, and other disorders that most physicians want to run a battery of tests to rule out the other conditions before a diagnosis of FMS is given. It is the lack of positive testing for other conditions plus the patient’s history that yield a diagnosis of fibromyalgia. The cause of fibromyalgia is not known. Researchers performing tests on patients have found common deficiencies and physical problems and proposed some theories. Celiac sprue, leaky gut, estrogen dominance, genetic predisposition to move electrolytes inefficiently, thyroid problems, allergies, trauma, viral infection, relaxin hormone deficiency, and stress have all been suggested as possible causes. (These are discussed below.) There is also no known cure for fibromyalgia. Yet, some people recover from fibromyalgia and CMP, so there is a possibility of recovery, and some therapies banish symptoms to the point that sufferers can lead normal lives. FMS and CMPS are not progressive. That is, they are not a death sentence. But they can become progressively worse over time. Victims must aggressively take charge of their lives with the help of family and medical experts in order to reclaim their health. The things I have done to help myself recover represent changes in hormone balancing, lifestyle, and eating habits that are myriad and take commitment. But it’s worth it. Be comforted by the fact that your old habits were not just unhealthy for you, but are unhealthy for anyone. Unhealthy lifestyles are always harmful in some way or another, and there is always a payment – in health, in attitude, in money – to be made.
    Fibromyalgia symptoms are many, and no one suffers from all of them. Some symptoms may be more pronounced in your case than others. Pain was my most bothersome symptom, while my friend’s was irritable bowel syndrome, yet we both suffered from fibromyalgia. All victims have tender points that are very painful to the touch. The tender points feel severely bruised and may send pain radiating to other parts of the body. Eighteen of those points have been mapped and are used to diagnose fibromyalgia. Most doctors expect a newly-diagnosed patient to have suffered pain for at least three months, and to be very sensitive in 11 of the eighteen sites. These 18 sites are really 9 pairs, with matching sites on both sides of the body. This is laughable for many sufferers, for they have pain sites everywhere. Some even suffer skin pain, where even a light touch to the skin is unbearable. Still, some patients may have fewer pain sites. The sites are located in the following areas: 1) behind the ears at the base of the skull; 2) on the trapezius muscles half-way between the spine and the shoulders; 3) on the shoulder-blades; 4) in the front just above the collarbone; 5) about 2 inches below the collarbone on both sides of the breastbone; 6) on the forearms along the line of the thumbs just below the crease of the elbows; 7) above the buttocks on the outer sides; 8) on the upper thighs, on the outside just behind the hip thrusts; 9) on the insides of the knees.

    A patient’s history will provide a medical practitioner with a list of other manifested symptoms common to fibromyalgia. Dr. Devin Starlanyl ( is both a sufferer and an expert in dealing with fibromyalgia. Her book, Fibromyalgia and Chronic Myofascial Pain: A Survival Manual is a must-read for any sufferer (edition 2, Starlanyl and Copeland, 2001). Her list of possible symptoms is as follows:

    Childhood growing pains
    Sinus stuffiness at night
    Postnasal drip
    Drooling in sleep
    Swollen glands
    Difficulty swallowing
    Dry cough
    TMJ symptoms
    Dizziness when turning head or changing field of view
    Runny nose
    Sore throat
    Stiff neck
    Reflux esophagitis
    Mold/yeast sensitivity
    Light and/or broken sleep pattern with unrefreshing sleep
    Morning stiffness
    Shortness of breath
    Painful weak grip that may let go
    Menstrual problems and/or pelvic pain
    Loss of libido
    Low back pain
    Nail ridges and/or nails that curve under
    Difficulty speaking known words
    Directional disorientation
    Visual perception problems
    Tearing/reddening of eye, drooping of eyelid
    Loss of ability to distinguish some shades of colors
    Short-term memory impairment
    Weight gain/loss
    Sensitivity to odors
    Mitral valve prolapse
    Double/blurry/changing vision
    Visual and audio effects/falling sensations before sleep (called “sleep starts”)
    Unexplained toothaches
    Rapid/fluttery/irregular heartbeat/heart attack-like pain
    Bloating/nausea/abdominal cramps
    Appendicitis-like pains
    Carbohydrate/chocolate cravings
    Sensitivity to cold/heat/humidity/pressure changes/light/wind
    Abdominal cramps, colic
    Panic attacks
    Mottled skin
    Confusional states
    Thumb pain and tingling numbness
    Urine retention
    Tendency to cry easily
    Night driving difficulty
    Weak ankles
    Lax, pendulous abdomen
    Upper/lower leg cramps
    Tight Achilles tendons
    Groin pain
    Irritable bowel
    Urinary frequency
    Stress incontinence, anal/genital/perineal pain
    Painful intercourse
    Muscle twitching
    Numbness and tingling
    Diffuse swelling
    Hypersensitive nipples/breast pain
    Fibrocystic breasts
    Buckling knee
    Problems climbing stairs
    Problems going down stairs
    Free-floating anxiety
    Mood swings
    Unaccountable irritability
    Trouble concentrating
    Shin splint-type pain
    Heel pain
    Sensory overload
    Handwriting difficulties
    Sore spot on top of head
    Problems holding arms up (as when folding sheets)
    “Fugue”-type states (staring into space before brain can function
    Tight hamstrings
    Carpal tunnel-like pain in wrist (watchband area)
    Balance problems/staggering gait
    Restless leg syndrome
    Myoclonus (muscle movements and jerks at night)
    Feeling continued movement in car after stopping
    Feeling tilted when cornering in car
    First steps in the morning feel as if walking on nails
    Pressure of eyeglasses or headbands is painful
    Thick secretions
    Bruise/scar easily
    Some stripes and checks cause dizziness
    Bruxism (teeth grinding)
    Inability to recognize familiar surroundings
    Delayed reactions to “overdoing it”
    Family clustering (other members of the family have FMS)
    Tissue overgrowth (fibroids, ingrown hairs, heavy and splitting cuticles, adhesions)
    Reading this list is both distressing and comforting for the newly-diagnosed sufferer – you realize you really are sick, but it’s comforting to know that there’s a reason for all these maladies, and showing the list to family members helps them to understand how complex and encompassing the syndrome is. I would add the following: when lying down to rest and relax at night, saved-up pain accumulated during the day begins to fire off, resulting in a “torture-chamber” experience of assorted types of pain – burning, shooting, electrical, pressure, pummeling, biting. Muscles roil during the night, and prevent deep, relaxing sleep, as well as the production of growth hormone and serotonin. One wakes up feeling like he/she has been run over by a Mack truck and left for dead.

    Depression is common to virtually all fibro sufferers. This depression, however, might not be symptomatic, but might the kind of depression suffered by anyone who is in pain or who is disabled. Irritable bowel syndrome can be characterized by constipation and/or diarrhea (sometimes alternating), frequent abdominal pain, gas, and nausea. 40% to 70% of fibromyalgia sufferers experience IBS. About half of patients suffer from migraines or tension headaches. Muscles or tendons in the face can tighten and affect the jaw (TMJ). Half of fibro sufferers are very sensitive to odors, bright lights, noise, medications and/or foods. Memory can be impaired. “Fibro-fog” is the slang for foggy thinking. Most fibromyalgia sufferers are women (9 to 1). Many fibromyalgia sufferers have hypoglycemia. Fibromyalgia symptoms ebb and flow in an unpredictable cycle. When symptoms are severe, the sufferer is in a “flare.” Stress, stormy weather, diet, hormone fluctuation, or over-exertion can bring on a flare.



    [ edit | delete ] cmp 02/01/07 05:30 AM

    What is Chronic Myofascial Pain?

    Chronic myofascial pain is easier to diagnose than fibromyalgia, because the medical professional can readily see and feel the damage. The myofascia is the membrane that surrounds muscle fibers, every group of muscle fibers, and every muscle. The membranes come together to form tendons and ligaments. (You have seen this membrane yourself, if you have ever prepared to cook chicken and tried to remove the skin. The membrane adheres to the muscle underneath the skin.) In chronic myofascial pain these membranes harden and tighten. Small tears, or micro-lesions, form in the membranes. These tears scar over. The muscle won’t slide against the hardened, tightened, and injured membranes. The muscles are pulled into very strange and painful lumps that can be easily felt under the skin. Imaging scans of the muscles will show muscles that look “frayed.” While a person with fibromyalgia will benefit from mild aerobic exercise, the same exercise for a person with CMP may cause damage and feel terrible. Knees, hips, and shoulders give way, and Achilles tendons tighten painfully. When exercise is attempted, muscles might go immediately into a stage of tetanus, or tight, constant contraction, and then won’t relax. Lumps, and sometimes geloid masses, accumulate and must be massaged out. Massage is extremely painful, and trigger points can stimulate pain elsewhere.

  4. nightngale

    nightngale New Member

    Thank you for taking the time to post all that!