Another long update for those who might be interested. Progress continues after 7 months starting at the FFC. I'm amazed to say it but I consider myself in remission now. Still getting stronger, and sleep continues to improve with muscle twitching almost gone and not really an issue any more. Also, I no longer see my doctor at the FFC. Don't need him right now and don't think I will anymore unless I need a change of prescription strength. Personal Discoveries this month ------------------------------- 1) Got the results of my latest hair analysis. I was surprised to see I still have a deficiency in Copper in spite of taking large doses of supplements. I just don't seem to be absorbing copper very well. Starting to take a very good colloidal copper supplement instead (MesoCopper) which I hope will help. Also, I'm giving up Soymilk which may really be at the root of the problem for me...too many phytates in my diet which may be causing malabsorption. Regimen Changes since last update ---------------------------------- 1) Starting to take 1Tbs MesoCopper a day. 2) Back on some thyroid hormone...18mcg T3 daily. I've been going through a period of stress lately and feel I need the extra T3. 3) Dropping the Silica Gel...Don't think I need it anymore. BACKGROUND ---------- I've been diagnosed with CFS and have suffered from milder forms of it for the last 20 years or so. Then I went off the deep end about 2 years ago, finally becoming completely disabled in July 2005 and rarely left the house. I was entirely in the care of Anne and don't know how I would have survived without her. Over the preceding 18 months, Anne, and I had moved toward an alkaline diet and started mineral balancing in the hopes of healing this condition, and her own (she suffers from Fibromyalgia). Both of these were helpful, primarily for dealing with chronic infections and candida. After staying alkaline I have not had the flu or any of the weekly recurring flu symptoms. I used to pick up everybodies colds but not anymore. But in spite of my strengthening immune system I was still declining, with energy levels dropping to their lowest levels November 2005. Unending agonizing malaise with constant muscle twitching is the only way I can describe it - yuk! I couldn't understand, with everthing I was doing in terms of diet and supplements, that I was still not well. I was running out of options. I did all the rounds with the doctors and the specialists and was heading for long term disability when I took a chance on going to the FFC clinic in Torrence. It was really my last big hope. And while it hasn't been cheap, for me, it's been worth every cent. TREATMENT PLAN -------------- I was diagnosed at the FFC with pituitary disfunction, sleep disorder and multiple hormone imbalances. Along with previous, but not current, EBV and Candida infections. No Hypercoalgulable issues, basically, just hormones and sleep problems. Treatment started with DHEA, 50mg daily, and 100mg Pregnenalone. I don't know if it was high hopes, but within a few days I noticed the malaise already beginning to lift. A week later started with 25mcg T3 and 1iu Growth Hormone. Then about 3 weeks later, 100mg Testosterone/Chrysn cream. With big smiles and bigger hopes, I could see the positive impact of each hormone as it was added, with my mood, sleep and stamina increasing rapidly. RESULTS SO FAR -------------- I'm able to hike several miles a day and do a round of weights and stomach crunches. I do those in the morning before heading off to a 4 hour work day with a 30 minute commute each way. On my way home from work I'll often do a bit of grocery shopping before getting home and sometime cook a dinner for Anne. Some days, I'll even do another hike in the afternoon. I get home at about 3:30 to 4pm...My work hours are rediculous (in a good way) but I'm starting to enjoy it. I think I could go back to work full time right now but I'm going to take it slow. I'm shooting for returning to regular hours by end of July. One other thing. My body is feeling younger by the week. I've never seen it respond like this to exercise. Fat has come off everywhere but I've gained about 20 pounds in mass, and the whole body is feeling more toned, strong and resilient. HORMONE TWEAKING ---------------- Thyroid - I'm back on a bit of Thyroid hormone...18mcg timed release T3 a day. Growth Hormone - steady at 1/8 iu daily. Testosterone - Reduced from 120mg to 100mg daily. DHEA - No change, steady at 25mg. Pregnenalone - 100mg daily. Progesterone - 50mg oral at bedtime. SLEEP TWEAKING -------------- Overall this one was the hardest to deal with. With the constant muscle twitching, had trouble falling asleep and staying asleep. Current doses I'm taking are. 750mg Tryptophan - 2 hrs before bed on an empty stomach. 25mg DHEA - 2 hrs before bed 50mg Oral Progesterone 2 hrs before bed. 500mg GABA - at bedtime 1mg Melatonin - at bedtime Put on sleep mask and dive into the black ocean of sleep. CURRENT SUPPLEMENTS: -------------------- Here's a list of everything I'm taking at the moment 1) Hormones - Testosterone 100mg, Growth Hormone 1/8 iu, DHEA 25mg, Pregnenalone 100mg, Progesterone 50mg 2) Extra Minerals: 8 mg copper - in 4 divided doses 1 Tbs MesoCopper 50mg manganese 3) 1 Source Naturals vit/min complex 4) 1500mg DL Phenylalanine 4a) 350mg N-Acetyl Tyrosine 5) 500mg N-Acetyl cysteine 6) 600mg Calcium citrate/malate 7) 300mg Magnesium citrate 8) 600mg Potassium citrate/aspartate 9) 1000mg D-Ribose 10)500mg Super Oxide Dismutase 12) Creatine Monohydrate - 5 grams daily. 13) 1 scoop Inner Light Super greens daily. 14) B12 shot about once a week - 1000mcg 15) an additional B50 complex. WHATS COMING ------------ More of the same: 1) Stay alkaline 2) Continue to balance minerals. I seem to have trouble with keeping copper levels up. Working on it... 3) Continue with hormone balancing 4) Continue with getting better sleep 5) Excercise daily 6) Gratitude, Gratitude, Gratitude... Having many days where I'm feeling really good.