Discussion in 'Fibromyalgia Main Forum' started by restauranthell, Apr 9, 2009.
Any ideas on the progress for a new name?
I think we would benefit so much from this.....
Until we really know what this illness truly is, and as much as I would like to see a name change, I think it is too soon to change the name. I would rather wait until we know for sure what CFS/ME/CDIDS is and then choose an appropriate name that accurately describes and doesn't belittle our illness.
the gov killed the name change. They say that too much time has passed and that using the name "CFS" is accepted now especially in all the +20years of literature worldwide. And too little is still known about this disease to call it anything else.
If we don't know the pathophysiology or the disease process of a disease, than how can you give it an appropriate name? Before we spent our precious time trying to change the CFS name, we need to spend all our monies and energies to figuring out WTF this is.
Separate names with a comma.