Discussion in 'Fibromyalgia Main Forum' started by abcanada, Jan 18, 2007.

  1. abcanada

    abcanada New Member

    Someone suggested I try this. What exactly is in this drug? Thank you Laura
  2. michele3322

    michele3322 New Member

    From what I was told by my DR it is a ADD type of med. I tryed it but had to cut it in half,a hole one made me feel like I was on diet pills. She gave me samples because it is really exepense. It really didn't help me so I don't take it anymore. But that me it may work well for you.
  3. wyattsmom

    wyattsmom New Member

    and I love it. I take 400 mgs a day. It doesn't make me jittery at all, it just wakes me up. I hope it works for you, too! I feel like my old self again and not so extremely fatigued.

  4. balletdancer74

    balletdancer74 New Member

    Hi Laura,

    Technically, Provigial was introduced for those with narcolepsy, but gradually FM and M.E. specialists started prescribing it for us.

    I was one of the first FM and M.E. patients to try it 6 1/2 years ago. Unfortunately, it gave me my one and only full blown panic attack. Who would've thought? It didn't help me with energy, strength and certainly not sleep.

    Others have found it to be very helpful, so it's worth a try.

    However, keep in mind that it's considered a "controlled substance" or rather, a potentially habit forming drug. It was like being on an amphetamine for me which was also tried way back when...I couldn't afford to lose weight either.

    Go with your instincts. If you try it and it helps tremendously, keep on it. If it you try it and it doesn't help, the adverse reaction or no reaction will subside.

    Keep us posted...

    LB32 (Leeza)
  5. mezombie

    mezombie Member

    My doctor gave me samples of 200 mg tablets to try. I tried one and turned absolutely hyper. I also couln't sleep for 24 hours. Then I totally crashed. At the time, I felt drinking a gallon of coffee could give me the same effect, at a much cheaper price!

    However, recently I used my pill splitter to get approximately a 50 mg or less sliver out of a tablet. I used it in December when I had a bad case of cabin fever and wanted to get out to some Christmas parties.

    I didn't crash afterwards, and it did give me extra energy. I also think it made me less inhibited, much in the same way alcohol could. I tend to get a bit anxious in social settings these days (dread those "what do you do?" questions!), so in some ways that was good.

    I think it's worth a try.

    Based on my experience, I would start with a small dose and see what happens.

    I'm hoping my doctor has more samples, as it is expensive.

    Hope this helps!
  6. FM58

    FM58 New Member

    As Leeza mentioned Provigil was originally for Narcolepsy. Now docs are using it off-label for FMS & CFS/ME.

    It is quite important to start out on this medication on a very low dose, see how you tolerate it - then titrate up
    s-l-o-w-l-y only if you need to.

    Some people have had very good results w/ Provigil & it helps them get through the day. Some use it on a regular basis, others reserve it for "special occassions".

    You might want to put Provigil in the search box at the top- I'm sure you will come up w/ a lot of posts.

    My own experience w/ Provigil was initially good - until I needed to titrate my dose up. Then I did not like the side effects, it made my body feel all jittery. I felt like I did not have control. Even when I lowerd the dose again - so I had to give up on Provigil. I was fortunate that my insurance company covered it.

    Good Luck - & hope you find something that works for you.

  7. Ales

    Ales New Member

    I would like to try modafinil (Provigil) too. I have been suffering from CFS nearly 9 years but in the country I live in it is practically imposible to obtain this drug. Would you give me some help how to obtain it, please? Via the internet pharmacies? Are they reliable? Do they distribute drugs to Europe?
  8. teacher

    teacher New Member

    Here's more anecdotal information for you!

    I have a sleep apnea. My doctor prescribed it because I was still having problems being alert even after I had been on the CPAP for over a year.

    He said to take 100 mg a day. I laughed and got a pill cutter. I take 50 mg. It keeps me awake. It does not hide my CFS symtoms.

    I had a tough time adjusting to it at first. My doctor and I were expecting that though. I have a history of not tolerating man-made drugs well.

    My doctor has spoken to me about increasing the daily dosage, but I said no. Since he's of the mind that I know my body and it's reactions better than he does, he's fine with that.

  9. leubie

    leubie New Member

    laura-----hey!!!-------ive been taking provigil for a while now--------------its been great for me--------DOES NOT give me the speedy feeling----------just lifts the fatigue-------------i can tell when i have not taken it------but it has really helped me---------my neuro gives me samples 1 month----------next month i pay----------------40 bucks co-pay----------i take 200 mg once a day----------------sometimes about noon ill take 1/2 -----------i think peacebaby takes these too w/ succes--------not sure though--------i hope you try them and they turn out to help you----------most meds like pain and what i have to take a hiogh dose----------------so iv NOT had any bad side effects w/ provigil-----------------good luk-------keep in touch --------------love to all--------------laura

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