question about CFS & Chicken Pox

Discussion in 'Fibromyalgia Main Forum' started by Sheryl, Jan 7, 2003.

  1. Sheryl

    Sheryl New Member

    My daughter is 15 and has been sick alot since she turned 11. In fact for her 11th birthday she had chicken pox and has not been the same since. I have suspected CFS for awhile (I have had Fibromyalgia for 11 years). Her doctor won't consider it and also says that the chicken pox has nothing to do with why she is sick so much. I just find it odd that things changed after he had them and she had them pretty bad. He also claims that CFS does not "present" with sore throats or fever which I know is wrong. So we keep battling infections with antibiotics, absences and the school who is on our case about the absences right now (she just had pneumonia). Does anyone have any thoughts or info relating to chicken pox and CFS?

    Thanks for listening,
    Sheryl
    [This Message was Edited on 01/07/2003]
  2. angelheart

    angelheart New Member

    Sheryl,

    I don't have any answers for you this time, but I just wanted to reply to you because I noticed in your profile that you live in SE Wisconsin. I live in the Milwaukee area and I don't know why but it feels less lonely when you see someone else from your area. Hope to see you here often. I am sure someone will be along soon to answer your question.

    Hugs,

    Angelheart
  3. herekitty

    herekitty New Member

    I think it's pretty well recognized thar CFS often starts with a viral illness - why not chicken pox? My trip to medical mystery land started with a bout of the flu. Is it especially signigicant that your daughter's illness started specifically with chicken pox? Maybe not. Is it significant that she never fully recovered from a viral illness, and has gone from one illness to the other since then? Yes. It seems to be a classic CFS pattern. She, unfortunately, seems to be also blessed with a "classic" doctor. Hope the new year brings better health for us all.
    Kitty =^..^=
  4. Mikie

    Mikie Moderator

    Try to get an appointment with an infectious disease specialist. The Herpes virus which caused the Chicken Pox is probably reactivating over and over again because of your daughter's compromised immune system. Antibiotics are useless against viruses and can cause harm if used where not bacterial infection exists.

    CFS runs in families. I think your instincts are right on. Docs are woefully ignorant of our illnesses. You need to find one who will look into the viral connection.

    Love, Mikie
  5. teach6

    teach6 New Member

    I would just like to add that it sounds like it's time to look for another more CFS friendly doctor for your daughter. They are out there, sometimes you have to look a bit.

    You can try our doctor referral link at the top of the page. Click on it and then click on Co-Cure Good Docs list. Then you can see who is available in your area. Even if a pediatrician or Famliy doc isn't listed you might be able to get some suggestions from someone else on the list.

    Good luck to you.

    Barbara
  6. sb439

    sb439 New Member

    If it is CFS, and it certainly seems possible, act sooner rather than later on seeing a specialist. The earlier you get the right treatment, the better the chances of keeping it in check.
    Susanne
  7. VickyB

    VickyB New Member

    Hi Kitty,
    I had the shingles which is chicken pox revisited-gave two of my kids the chicken pox at the same time. We were all miserable together. Anyway I will never forget that day because it was 7 years ago and I am still having effects from it. Just went from bad to worse. It has taken over my whole body. I have fms and cfs and it was definitely this virus that caused it.
    Vicky
  8. CelticLadee

    CelticLadee New Member

    Hello Sheryl,
    Just wanted to add that I also started a downward spiral with my health after I had Shingles spring 2001 which I have never fully recovered from as it lead into the symptoms of CFIDS. The herpes zoster virus is a vicious one anyway but when the immune system is not functioning up to speed it takes a heavy toll. Recently in our newspaper a young teenage boy was hospitalized with blindness and partial paralysis because of this chickenpox/shingles virus. He is slowly gaining back his functions and eyesight and we all hope and pray he will be back to 100% soon. Also I read an recent article about Shingles causing strokes although the rash may not be anywhere near the head area. It is not a virus to take lightily and I agree that you should seek help from a knowledgeable specialist to make sure your daughter gets proper help. I can only imagine what you have been through thus far and I want to encourage you that you are on the right track. Your daughters immune system is dysfunctional and needs to be fortified. Too bad she had to take the antibodies. In the long run they only compound the problems as you more than likely know since you have had FM for 11 yrs. and probably have had to do the balancing act to keep your system on the right track. I gave up on my doctor and went to a naturopath. He listens to me and responds to my real problems in helpful ways. Well, I hope this helps you realize you are smarter than your doctor. Hoping all the best for you & your daughter.
  9. Shirl

    Shirl New Member

    Do find another doctor for your daughter. It seems I developed Fibro after a bout with pneumonia.

    For years after this I was always sick with something, bronchitis, pleurisy, flu, infected ears, throat, and had pneumonia more times than I can remember.

    I never had any childhood illnesses, except for German Measles. I was told I had a natural immunity to them, go figure. My children had everything and I did not contact any of it from them.

    HOpe you get some help soon, that young lady must be miserable sick all the time at her age.

    Shalom, Shirl

  10. Sheryl

    Sheryl New Member

    Thanks very much for all of your concern and suggestions. I do plan on taking her to a specialist because enough is enough already.

    Thanks Again!
    Sheryl