Question about going for a lymes test

Discussion in 'Fibromyalgia Main Forum' started by morningsonshine, Mar 27, 2006.

  1. morningsonshine

    morningsonshine New Member

    I am going to get some blood drawen next week
    April 6th, for a lymes test sent to Igenex.

    I'm excited and nervous!

    I was wondering if i should take something now before i go that fights viruses or bacteria before i go in.
    (like garlic, or olive leaf)
    So if it's dormant, of hiding, maybe it would stir it up before testing?

    Or is that just a dumb idea?

    Input Pleaaase!!!


    Thank you all!
  2. victoria

    victoria New Member

    As the infection may be laying dormant in your system elsewhere, in cyst form or intracellularly. I'm not sure it is clear cut you should or should not, you may want to go to

    http://flash.lymenet.org

    and read more about that idea.

    I understand your excitement & nervousness, cuz it is good to finally at least get some firm grasp on what is causing your symptoms... I hope you are also being tested for the most common co-infections as well.

    But I also agree with fight4aCure in that Lyme is a terrible disease... my now 18 yo son was dx'd with it last May after starting to mirror my own physical symptoms except much worse. If he hadn't tested positive, he'd have been in denial, the only way he could get himself moving was by getting angry with himself, plus he had youth on his side.

    (No I haven't been tested due to $$ concerns, I am doing the marshall protocol and have responded so I am convinced I have one of the bugs - which is why I had him tested after routine testing showed all 'normals').

    While we at least know what is basically wrong, treatment is a nightmare in a way - he's not responding quickly, they suspect a hidden coinfection, etc., etc... end result we are going to try treatment for babesia - a common co-infection - then go back to treating Lyme;

    if still no results, he will end up having to do IV abx and moving to where his doctor is as we don't seem to be able to find a 'lyme friendly' doctor to back him up here.

    We have no insurance, and it is very expensive overall, esp the IV abx... hoping we don't ultimately have to go that route. He cannot work, and I know it will be very difficult for him to get SSI... I was really upset with SSI over the phone trying to say OUR assets might count... he IS considered an adult, they were just trying to get me to go away! Grrrr! (yes we have a lawyer!)

    While you're waiting to be tested, also do a search for the Townsend Letter Feb-March 2006, they have a full online article free to all, and quite informative.

    hope this helps,
    Victoria
  3. jarjar

    jarjar New Member

    The Igenex test is the most sophisticated test on the market so it catches the majority of lyme. I wouldn't worry about taking anything along with it. At one time Igenex suggested you take Zithromax prior to testing but from what I understand no longer.

    I was so glad that I got the test and finally find out what had kept me ill for so long. It was like a weight was taken off my shoulder. I as well as my family could tell people what was keeping me so ill for so long instead of using the dreaded CFS word.

    Wishing you the best

    jar
  4. morningsonshine

    morningsonshine New Member

    Thank you for your imput,
    If i do have lymes, i want it diagnosed, and not left to
    wonder, i have always suspected it but never had a Dr. take it seriously.
    I also Suspect EBV, but previous DR. refused to test me,
    Maybe this one will, I'm going to a specialist 3 hrs away.

    I just feels good to be stepping out and doing something, i know lymes is serious, that's the scary part.

    But, it would give me answers, and a direction in all of this.