I'm pretty much housebound with a myriad of symptoms like fatigue, pain, headaches, chills, shortness of breath, etc. The list is very long. Every month, I get these 'episodes' as I like to call them, where I start to get extra 'spacey', then have trouble breathing, severely dizzy, can't sit up, my calves feel rock-hard, the fatigue is so bad I feel like I'm dying. I've been evaluated by a ton of doctors - I've given this some thought and read up and feel I have dysautonomia but a top-notch neurologist I saw refused to do a tilt-table test because the day I saw him I was sitting upright and acc to him "You can't have dysautonomia bc you wouldn't be able to sit up" - well I mostly can but many times I can't. Oh I forgot to mention-during these 'episodes' I also feel like peeing a lot. Anyone else get this? A CFS doc had suggest Midodrine a long time ago but my BP is above normal so that's a no-go. Oh yes, wicked headaches too.... Any suggestions other than elevating the head of my bed, compression stockings, etc.?? this stuff debilitates me like nothing else - I can't barely move! thanks in advance!