Question for fibro patients who take medication.

Discussion in 'Fibromyalgia Main Forum' started by abbylee, Sep 22, 2006.

  1. abbylee

    abbylee New Member

    Do you find that it take more medication for you than less medication for you to reach a positive result?

    I have 2 doctors. One is my neurologist who prescribes Xyrem and the other is my md who prescribes everything else.

    I take 200 mgs of Morphine 3 times a day for pain. Yesterday when I visited both doctors, my neurologist was SHOCKED that I was taking so much Morphine and was still walking around. In fact, he said so several times during our visit. His words were, " I can't believe you take so much morphine, yet here you are wide awake and talking with me."

    He was even more shocked that I take 13 other drugs such as 2 Xanax a day, 2 phenergan a day, 4 flexeril a day, and others that can cause drowsiness, yet there I sat wide awake and talking with him.

    Do you have the same problem (?) if "problem" is an accurate word to describe this situation. Or, do you find that a small amount of medication is all that you can tolerate?

    Thanks so much for your responses.

    [This Message was Edited on 09/22/2006]
  2. mosherpit

    mosherpit New Member

    I agree with your Neuro how do you withstand all those meds and exist? I took one small dose of Xanax to get through an MRI a cople of weeks ago and was sooo out of it. You must have a very high tolerance for meds...Do these meds help you? IF not maybe you should look into more of a holistic approach. That is the direction I am heading in as the meds help some but not that much and I just am ready to try something new. Good luck to you.
  3. m5shelly

    m5shelly New Member

    I know we have to worry about meds that work together, or not, but I just keep my mouth shut. I am very happy right now with the pain meds that my pain specialists gives me, and my PCP gives me meds for the RLS and sleeping, etc.

    I don't want to loose any of these scritps, and with all the issues with opioids and such, I just keep to myself and keep going happy.
  4. musikmaker

    musikmaker New Member

    Hi Abbylee, I am like you. I can tolerate very high doses of meds and need them to knock down pain.

    I have even woke up on the operating table as the normal does of knock out drugs was not enough to put me under. When I told them I was awake and going to thow up, they freaked.
  5. kirschbaum26

    kirschbaum26 New Member

    Dear Abbylee:

    I can certainly understand your doctor's concern. That is a lot of medicine. I also understand about building up a tolerance to meds. Over time, we all do. Perhaps what you might want to look into is finding different meds that do the same job, so that you can rotate them, so you do not build up your tolerance as quickly.

    I used to have to be IN bed to take a flexeril at night. Now I have to take 2 of them, and while I do not, I could drive without a they no longer make me sleepy. I think it is time for me to switch back to soma.

    Good luck, and hope that you can work out some kind of rotation so that you do not have to take as much of each medication.

  6. FMsolider

    FMsolider New Member

    I take a lot of pain meds. Much higher than ppl with temporay problems. I have issues with fatigue but, I am RARELY foogy from the drugs. My doc says FM/CFS folks - el dopimine is so low it takes quite a bit to get us to a normal level. Plus, we tend to build up a tolerance faster hence, requiring more.
  7. butterfly83

    butterfly83 New Member

    Well you can probably very accurately tell your neurologist that obviously you have enough pain that the amount of morphine you are on, balanced with the amount of pain you have, allows you to be up and around and alert without being knocked out. It's only when you are taking WAY more of a medication then your body needs that you get whacked out. If you are in enough pain that the meds are just controlling it, then you should simply be more comfortable, not asleep.

    And yes i have found that more meds are neccessary rather then less. I've had that conversation with friends/family before who are shocked by the amount of meds i have to take, but i have to just explain that THIS is what i need to take to get me minimally functioning.
  8. jens2angels

    jens2angels New Member

    I think that's enough drugs to kill a horse personally.

    I'm with everyone else, do you really get help from all

    those or can you trim it down a bit? I would be scared to

    death if someone told me to take all that.
  9. abbylee

    abbylee New Member

    Thank you all for your responses. I'm glad that some of you are in the same situation I'm in, and some of you aren't. I don't feel so much like a freak now, and your responses, though varied, let me know that some of you are in the same boat.

  10. abbylee

    abbylee New Member

  11. matthewson

    matthewson New Member

    he would know that people develop a tolerance to them after they have been on them awhile. Seems to me he is pretty ignorant about your meds! I really don't think it is uncommon for people with our syndromes to be taking a lot of medication that would put other people into a coma if they took all of that without building up to it.

    I can take a 10.0 vicoden and clean my whole house! My husband would be out like a light! That is because I have been taking them for awhile and my body got used to them. If he was any kind of knowledgeable Dr. he would know that!

    Take care, Sally
  12. StephieBee

    StephieBee New Member

    are you on 200 mg of Kadian?? I know that is time released morphine.

    My Dad was prescribed it, and believe me it is a very high dose.

    There is a dosage that doctors have set in their heads that they will not prescrible past at no cost.

    Instead of upping meds when you have maxed out on them they usually end up switching you to another opiate.

    I know my father was prescribled Kadian 100 mgs a long time ago...not sure how many a day though. He broke his neck. I put his pain up there with cancer pain. And I dont take that lightly because Ive seen family members die of cancer so Ive seen them both. Ive seen my mom also die of breast cancer when I was in college also.

    My father found the Kadian to be ineffective at 100 mgs so he decided to take another 100 mg capsule. And we all know not to self medicate or take more than prescribed...but he told his pain management doc and even his doc told him that is enough to kill a horse.

    My father has been thru every pain medication known to man and nothing works on him anymore. He's maxed out on OxyContin, now currently on max of name it.

    But it all comes down to the fact that yes you will build up a tolerance to medications but there comes a point where too much is too much.

    Maybe its time for a have options....and these doctors obviously dont feel comfortable treating you with that high a dosage.

    Just a thought.

    I hope I didnt come across as too harsh....I tend to ramble sometimes when I get going and I dont even realize it. Dont mind me.

    Take Care,

    [This Message was Edited on 03/04/2007]
  13. Mini4Me

    Mini4Me New Member

    I understand, totally. You are ok with this, so he shouldn't freak over it. It is my experience that Neuros tend to think: "narcotic pain relief=evil!" They would change their tune if they were the ones in chronic pain.
  14. Shalala

    Shalala New Member

    I seem to build up an intolerance to my meds and have to have them increased ... then when I max out on that it is on to another med.
  15. pat460

    pat460 New Member

    I also have a very high tolerance for pain meds. I try to stay away from Morphine because it doesn't affect me at all. That's the first thing doctors want to put you on after surgery and it's hard to make them understand that it doesn't go to my pain. After my first bowel resection, I woke up in recovery screaming in pain. The nurse kept giving me more morphine and I kept screaming. She told me to be quiet and I was disturbing the other patients. She said she couldn't give me anymore and asked if I was trying to overdose. I told her the pain was so bad I didn't care if I did overdose! See, I had told the doctors before surgery why I couldn't take Morphine but they didn't believe or listen to me. My sister came in and saw me crying and screaming and just basically out of my head with pain--they made her leave. After I demanded(rather loudly)to see my doctor and demanded(rather loudly)that he give me a different pain med, I finally got some relief.

    So the point of all this rambling is---everyone's tolerance level is different. If you're comfortable at that level of meds. then ignore the ignorant neurologist. Be thankful, that for the moment at least, you have something which gives you some relief. I personally don't think anyone should have to suffer. Doctors who think addiction even matters to someone who is suffering and praying for some sort of normal existence, well, they make me sick.


    PS. Can you tell I'm really hurting today? Today is a good day to be in preaching mode though, don't you think? lol

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