Question for the Doctors' on the board and others with advice

Discussion in 'Fibromyalgia Main Forum' started by Joannie, Nov 6, 2002.

  1. Joannie

    Joannie New Member

    I am so upset I'm ready to cry. I have to question the Doctors' on the board and any of you that have any knowledge about the problems that I and people like me face. I have been battling the system as I call it for three long years. It began with a simple strain injury that was misdiagnosed and has turned into Fibro. The problem is this. Litigation has long since been resolved and we have medical Ins. but it is the past medical history that still haunts me. I was shuffled from one Doctor to the next and from one University to another. Since the first five doctors and the first six months that this happened to me No Doctor is willing to diagnose or treat me for any of this aside from my primary Doc. I no more go in for the first counseltation with a Doctor and get the first three questions answered which are: when did it start, how, and where. Then I am told. I will not treat or diagnose.... My medical records are as thick as an encyclopedia and I am sick to death of hearing the same old thing. Why do these Doctors' not have the compation to treat us? What makes them so afraid to just HELP us have some relief from this horrible pain and and discomfort. I am so let down with our medical society and am sickened by how inhumane they can be. I have NEVER once been doubted that I am not in pain. It is stuff said like I wish i could help you. I feel so bad for what has happened --BUT-- you carry so much baggage with you that I can't help you. I feel bad for you and wish I could help though. Or WOW you really have been through a lot ha. Or common sense tells you etc. But I won't put it in writing. I am not looking for anything but HELP from these medical specialists. I have been fighting SS Disability now for over two years because of the gutless wonders we have for Doctors' no offense but this is how I feel right now. I am not looking for anything more but to have one take hold of my medical problems and begin treatment. I am now looking at the highest level that you can possibly go for Disability. My Primary has done everything she can to help me win this and it has not worked due to her not being a specialist in the field.
    I am questioning where do i turn to find a Doctor that is willing to treat an extensive case such as mine? I am in Iowa and the Good doctors' list has nothing on it even close to my area. I don't know hopefully some of the Doctors' here could suggest some where to go or what to do when going in for the first appointment with a new Doctor. It seems so unethical for a Doctor who has taken the oath to care for people to deny them treatment because of some past medical history inwhich the patient had no say so in the matter at the time. Why am I treated this way? Where is someone to turn when you can't even turn to your own medical Doctors'.
    I feel that I am losing everything including my sanity.
    Thank you in advance for you replies
    Joannie
  2. Joannie

    Joannie New Member

    I am so upset I'm ready to cry. I have to question the Doctors' on the board and any of you that have any knowledge about the problems that I and people like me face. I have been battling the system as I call it for three long years. It began with a simple strain injury that was misdiagnosed and has turned into Fibro. The problem is this. Litigation has long since been resolved and we have medical Ins. but it is the past medical history that still haunts me. I was shuffled from one Doctor to the next and from one University to another. Since the first five doctors and the first six months that this happened to me No Doctor is willing to diagnose or treat me for any of this aside from my primary Doc. I no more go in for the first counseltation with a Doctor and get the first three questions answered which are: when did it start, how, and where. Then I am told. I will not treat or diagnose.... My medical records are as thick as an encyclopedia and I am sick to death of hearing the same old thing. Why do these Doctors' not have the compation to treat us? What makes them so afraid to just HELP us have some relief from this horrible pain and and discomfort. I am so let down with our medical society and am sickened by how inhumane they can be. I have NEVER once been doubted that I am not in pain. It is stuff said like I wish i could help you. I feel so bad for what has happened --BUT-- you carry so much baggage with you that I can't help you. I feel bad for you and wish I could help though. Or WOW you really have been through a lot ha. Or common sense tells you etc. But I won't put it in writing. I am not looking for anything but HELP from these medical specialists. I have been fighting SS Disability now for over two years because of the gutless wonders we have for Doctors' no offense but this is how I feel right now. I am not looking for anything more but to have one take hold of my medical problems and begin treatment. I am now looking at the highest level that you can possibly go for Disability. My Primary has done everything she can to help me win this and it has not worked due to her not being a specialist in the field.
    I am questioning where do i turn to find a Doctor that is willing to treat an extensive case such as mine? I am in Iowa and the Good doctors' list has nothing on it even close to my area. I don't know hopefully some of the Doctors' here could suggest some where to go or what to do when going in for the first appointment with a new Doctor. It seems so unethical for a Doctor who has taken the oath to care for people to deny them treatment because of some past medical history inwhich the patient had no say so in the matter at the time. Why am I treated this way? Where is someone to turn when you can't even turn to your own medical Doctors'.
    I feel that I am losing everything including my sanity.
    Thank you in advance for you replies
    Joannie
  3. selma

    selma New Member

    Docs don't want to admit that they don't have a cure. A pain clinic May help. Stay sane. It is the best way to get better.

    Love, Selma
  4. karen2002

    karen2002 New Member

    I have been where you are--it is exhausting and frustrating.
    The problem is......Doctors are running a business. It's no different than the store down the street. They have overhead, employees to pay, utilities, insurance...etc.--
    all those things add up.
    Now imagine the clothing store, in your town. They have all the same bills. Money in, covers those expenses, and hopefully makes a profit. What if the customer in the dressing room, required two hours of the sales persons undivided attention--no other customers being served during that time either.
    That's the way it is in the physicians office--they rightly need a patient who is in and out, in 10 minutes, with a prescription in hand and happy.
    We are high maintenance cases. We demand alot of time, and energy. We do not have the common flu, which with or without prescription will just run its course in 3 days.

    You have to find someone on a mission. Someone who is geniunely interested and cares. You must find someone who specializes in (and better than that believes in) Fms and Cfs. I have been to tons that don't. You and I are not going to change their minds. They are not going to suddenly say---Oh yes, today, I believe!! Today I am feeling compassion.
    Don't bother to make appointments searching for a needle in a haystack. PRIOR to making the appointment, find out if they treat FMS and CFS patients, and how many.
    If the receptionist on the phone says ..no they don't, don't waste your time and money, its futile.
    If the Good Doc list--came up short, find one in a neighboring state. Iowa's not that big....I am in Texas, which takes a Day plus some to drive across, and I would do that to find a good doc. It makes all the difference in the world. Look for support groups, and get names from members. Look at the American Medical Assn. site...you can type in Iowa, and specialty. Make a list and work your way thru it. I drive miles to see mine, and I am so thankful to have found him.
    Find a Doctor who wants to be your advocate. That will take the time, and effort, to go the distance with you. They are out there. You have to weed the bad ones out, till you find the flower. That field can be thinned tho---you don't have to pay and try out each weed.
    Best Wishes,
    Karen
  5. Roxi

    Roxi New Member

    Hang in there! No one hates doctors more than I do. Worked for them for 30 years!
    My own doctor has given up on me too! I have an attorney for my SSDI case who will not get paid unless I get it. Called "On Contingency." Try to get one yourself. All attorneys should give you a free first 1/2 hour. Mine says depression is usually accepted by SSDI and we all have a secondary depression due to the constant pain. And I'm sure your years of doctor abuse add to that. Your attorney could get you a psychological exam that would be paid for until your SSDI grant. One thing to try. Hope this helps!
  6. Joannie

    Joannie New Member

    I want to tell you I truly appreciate both of you replying to my post. I have been doing some searching and will hopefully find someone to help. I found three Rheumo's with e-mail addresses that I may try and send something out in that way rather then spend the time and money out to see them in person first.
    As for the SSD Roxy, sad to say I have seen a Shrink throughout this whole thing and I also have a LAZY attorney to say the least. My Shrink is a very kind man who feels it is absolutley rediculous I have been turned down a million times as it seems now. I cry to him every time. I am severely depressed and he said my next step is the very strong meds for depression. However my attorney actually told me to go to him for a letter to send in for the last appeal I made. Well, my Shrink explained he can't just do that for me he needed a letter from my attorney for it. I tried contacting my attorney over and over in the last three or four months and still trying to contact him but, he has yet to return my call. I have considered changing attorneys because I feel he has botched this entire SSD case of mine. He was not prepared for the hearing with the judge and blamed me for the medical dictation errors. And actually sent me out to ask the Doctors for letters explaining their dictations had errors and what the truth was in them. It is just a big mess. But thank you to both of you for replying. It really helps to know people are out there and that I have somewhere to turn to.
    Joannie
  7. nancyneptune

    nancyneptune New Member

    I'm so sorry to hear all those doctors are butt heads. One thing you do need to do is dump your lawyer. 3 or 4 months without him contacting you!!! That's totally unacceptable.
    Your psychiatrist's word will get you SSD, mine did. But you got to get another lawyer to ask for his "testimony".
    Hurry. Don't let another day go by that you haven't hounded some lawyers to help you. You will get the SSD without going through an appeal. Depression is good enough to get it without fibro. Fibro will be your secondary reason for SSD. Hang in there hon. Hugs, N
    [This Message was Edited on 11/07/2002]
  8. Joannie

    Joannie New Member

    I am from the cedar valley. I live right outside of Waterloo. I have wonder if I was the only one from Iowa.
  9. Joannie

    Joannie New Member

    I am horrible with directions but I know that it's around here someplace. I believe by Tama (Gambling). I will need to ask the Hubby when he comes home. I am so bad about directions i will drive way out of my way to get to where i want to go just so that I have familiar surroundings. Probably part of the anxiety thing going on. Hate anything that I am not familiar with. Get all panicky. I know that it has to be close though because the sports teams at our schools play against each other. I have Aunts in Illinois and in Davenport so that is pretty neat ha.
  10. toots2

    toots2 New Member

    I don't go to drs. anymore as I think there is nothing much they can do for me now. I take something for pain, something to help me sleep and an antidepressant, all of which work well, along with supplements too. I'm sure your primary care dr. has you on these already. If you haven't found anything for sleep, you might try trazadone. It works well for many of us with fibro. I tried ambien, sonoma, but hated the way they made me feel. Also, you can't take them over a long period of time. I don't like taking a lot of medication anyway, and from what I have read and other than what I am taking, I don't think there is anything else that would help me. Of course, I don't have a lot of the other symptoms that accompany fibro like some of you do and for which you do need medication.Have you considered seeing a pain specialist? I don't always have to take something for pain as I don't hurt everyday, but I thank God I have medication to take when I am hurting a lot. Just a suggestion. Toots
  11. toots2

    toots2 New Member

    Forgot to add you definitely should see a good rheumatologist who specializes in the treatment of fibro. Toots