Question for those who have FM and Endometriosis

Discussion in 'Fibromyalgia Main Forum' started by EllenComstock, Mar 30, 2003.

  1. EllenComstock

    EllenComstock New Member


    I'm just curious about something for those who have both endometriosis and FM. Which diagnosis did you get first? Did you have to figure this out for yourself (like I did) or did your doctor tell you that endometriosis and FM often occur together. I figured out I had endometriosis several years ago and the doctor later confirmed this (with a laparascopy). (This was after years of being told I was born with a too-small bladder and after three bladder surgeries with two different urologists. Getting second opinions doesn't always mean a correct diagnosis I found out).

    I then went to a endo specialist who did another laparascopy on me. I continued to have a lot of pain in areas of my body that didn't seem to fit the endo plus other symptoms. This doctor told me I should just have a hysterectomy and my pain would go away. It didn't seem right to me so I continued my research and decided I had FM when I read that women with endo have a higher risk of developing other diseases such as FM. When I told the endo specialist about this, he said he didn't know anything about FM. I was both surprised and disgusted that a specialist would not even know this fact. I told him that a hysterectomy would not take away the pain from FM. I fired him that day, which I am sure he was glad of. I have found that many doctors don't like patients who do their own research and question things.

    I found an FM specialist and he confirmed the diagnosis after doing other tests to rule out diseases like MS and diabetes.

    So I was just wondering if anyone else has had a similar experience.

  2. judywhit

    judywhit New Member

    I was diagnosed with endo about 15 yrs ago. I went to over 20 doctors until I was diagnosed. had 2 little ones and that was the most depressing, exahusting time in my life. Was in lots of pain from the endo. After the diagnosis I came down with strange muscle/nerve problems and was suspecting I had MS. Well, many moons have passed and now I have fms..which was what I had way back when but no name for the symptoms. I have managed very well for the most part. Elavil was a life saver back than for me. the pain got much better. I just started back on it one month ago. I have 2 daughters so I have tried to educate them about endo because it is genetic. best of luck.