Question: Mayo Clinic Jacksonville Florida

Discussion in 'Fibromyalgia Main Forum' started by wrthster, Apr 3, 2009.

  1. wrthster

    wrthster New Member

    Hi all,

    Has anyone been to the Mayo Clinic in Jacksonville Florida? If so and you know of a good doctor to start with there it would be greatly appreciated. Also I am looking for general feedback on your experience there as well.

    If anyone has gone to the main one in Minnesota or the one in Arizona and had a really good doctor and could provide the name and department perhaps that Physician would know of someone in Jacksonville.

    Thanks very much.
  2. wendysj

    wendysj New Member

    Hi Wrthster!

    I went to the Mayo clinic over 5 years ago. They did tests on everything. I saw an internal medicine guy, Dr. Humbargur (Sp?). He was nice enough but he sent me to the specialist... Infectious Disease, Neuro and Endo. They diagnosed me with CFS and told me to find a doctor in my home town to treat me.

    The total amount I owed them (Mayo was out of network.) was $15,000. I paid them every month as much as possible but they sent my debt to collections anyway. I set up a payment plan with the collection agency but they sent it to the credit bureau anyway. I finally paid them off because they were calling everyday. I put it on a credit card so I wouldn't be harrassed on top of being sick.

    If you're going to get diagnosed, good enough. If you're going to be treated, don't bother.

    That's just my opinion. I hope you find the answers you're looking for... Good Luck.


  3. wrthster

    wrthster New Member

    That was very helpful and thank you very much. I did check with the insurance and between Medicare and BCBS I will be pretty well covered. However, the other info you provided is very helpful. I need treatment more then diagnosis.
  4. AuntTammie

    AuntTammie New Member

    I personally had good experiences with BCBS (before going on Medicare); however, there are a bunch of different branches and types of ins thru them, and my brother is having a ton of problems with them.....among which is that they are not paying for things they agreed to pay for beforehand. He lives in Fl, like you. If I were you I'd see if you could get their agreement to pay in writing before going

    Also, I pretty much agree with what was written about Mayo and diagnosing vs treating. I have not been there myself, but have read and heard of several people who have, and they are not really that good at treating (for a lot of things, but esp for Fibro and CFS). I would be skeptical, even if I hadn't read and head from others, just based on the cost and on what they say online re" CFS (actually I posted something about that awhile back)....still if you want any more info about them, it would be good to try the search function on this works weirdly, will say no results, but then on the rt hand side under recent searches, it will say the topic you just put in and if you click on it, results will come up
  5. wrthster

    wrthster New Member

    Thanks AuntTammie appreciate the feedback!
  6. wrthster

    wrthster New Member

  7. proo

    proo New Member

    Nothing to do with fibro but perhaps a representative sample. A friend of mine who lives in Richmond was diagnosed with a brain tumor near the brain stem (very dangerous area). After a local workup, she submitted her information to Mayo and requested a consult with a neurosurgeon. Initially her information was lost, then sent to neurology and finally to neurosurgery. That dept. told her they could help her. She and her husband went to the expense of traveling down there, hotel, etc. only to be told..."No one here can help you. We don't do this kind of thing!" She subsequently saw the neurosurgeon @ Duke who operated on Kennedy and loved him. She could have saved herself lots of time, money and heartache had they been up front with her to begin with.