Question on Vision Disturbance

Discussion in 'Fibromyalgia Main Forum' started by elliespad, Jan 23, 2009.

  1. elliespad

    elliespad Member

    I posted this on Lyme Board too in case any Lymies have experienced this.

    This is about the 4th time this has happened, the last being about 2 or 3 weeks ago. Then maybe a year between each of the other two events.

    I "see" an arc, like a "c" in the lower left field of vision. The "c" has a zigzag line and is a flashing, neon type, image. It gradually gets worse, were the "c" grows to a capital "C". At its' peak, my left eye feels numb. The whole thing feels like it takes place in my left eye, but if I close it or put my hand over it, I still see it. Gee, I didn't think to close both eyes to see if I still see it. The whole event lasts about 20 or 30 minutes.

    As luck would have it, todays event happened as I was one mile from Empire Vision, where I am a patient and was just seen a month or two ago and got my eyes dilated and glasses (first time). They were already overbooked and couldn't see me but Dr. there said I should see an Ophthalmologist or come back for dilation and exam.

    Does this sound familiar to anyone? Any ideas?

    I am 50 and this is the first I have worn glasses, was very resistant, but when my arms could grow no more, I had to cave in.

    Anyway, any thoughts?
  2. elliespad

    elliespad Member

    Hi Kelly, Thanks for your thoughts, and no you're not scaring me at all. We've considered those things too. When I was to the Optometrist a month back, I told him about another event I had, where I woke with blurriness in my left eye, as if IT were under water. Proceeded to get much worse for 10-15 minutes to the point where it was like looking through many layers of white Saran Wrap or cheese cloth. Gradually faded. He thought it might be Ocular Migraine, but I had no headache afterward.

    Has a similar time frame and both feel to be in the left eye. However, this last event continued even with the left eye closed.

    The vision center placed a call to an Ophthalmologist to try and get me in yesterday. They will only take new patients by referral from Primary Care, can you imagine not by referral from Optometrist?

    Darn it. For YEARS I always said, the ONLY things that work well are my EYES and my TEETH. Looks like I'll be bragging on the teeth only from now on:)

    Anyone else have this happen and know what it might be?

  3. richvank

    richvank New Member

    Hi, elliespad.

    For what it's worth, what you described sounds just like what happens to me if I really overdo drinking coffee, except that it occurs in my right eye. I was told by a doctor that in my case they are ocular migraines. I've had them off and on for several years. They don't seem to have caused long-term problems with my vision. Mostly they just make it difficult for me to read for about half an hour. I don't get a headache with them, as I understand some people do. I can't say for sure that what you have is the same as what I have, but that's my experience.

  4. consuegra

    consuegra New Member

    This seems to describe a scintillating scotoma, which lasts about twenty minutes and often crosses the visual field from one side to the other. It then goes away, leaving in its wake a feeling of strangeness. Various eye doctors made no serious suggestions except to lie down when it is happening. It was only in a small privately owned photography store that I got a treatment. Robert Schwartz, the photo store proprietor, told me to take 1/4 baby aspirin every day and that I would never have a scintlllating scotoma again. Twenty years later, I still have never had a repeat of this phenomena. It is funny where you will pick up valuable info.

    You might want to read Oliver Sacks' book Migraine. It is fascinating.

  5. bct

    bct Active Member

    Yes I've had these. In my case caused by Lexapro (one of the listed side-effects: "disturbed vision".) They lasted about 20 mins, peripheral, and with pixilated central vision. NO pain. My eye doc. called them "silent migraines", and said some anti-deps. like Lexapro are well known to have this effect. Scary; first time I thought I was having a stroke!

    Discontinuation of the drug did away with the vision probs.

    Hope this helps,
  6. demeran

    demeran New Member


    I have also experienced the "C" in my vision. It is multi-colored and when I close my eye, I can still see it. My eye Doctor tells me that I am having migraines in my eye and not to worry about it. My event usually lasts about 10 to 15 minutes with no pain. I have mentioned it to my retina specialist and he was not concerned either. I can't seem to fine any common times of day or anything. It just happens at ramdon times.