Questions about Nebulized Glutathione

Discussion in 'Fibromyalgia Main Forum' started by Slayadragon, Mar 23, 2007.

  1. Slayadragon

    Slayadragon New Member

    I just ordered the glutathione nebulizer and the drug to go with it. Based on positive reports on the board, I'm excited about it.

    My doctor thinks that it will give me some of the benefits of Rich van Koynenburg's methy cycle block supplements, but without the harsh detox that I was experiencing. (A good part of why I had a hard time was because I was using it in combination with Famvir, which has had almost as big of an effect on me as some people report with Valcyte.)

    Some people here have reported that adding a drop of B12 to each dose can make it work better. What type of B12 might be best?

    Are people talking about adding a sublingual liquid, for instance? And what form--e.g. hydroxycobalmin, methylcobalmin, cyclocobalmin?

    Also, as an alternative to putting it in the nebulizer, would using a sublingual tablet or liquid at the same time have a similar effect, does it seem?

    On another note, my doctor has recommended that I try oral ATP as a supplement to make the glutathione work better. This seems not to be available as a prescription anymore, but is sold as a nutritional supplement. My doctor recommends the patented form of Peak ATP.

    For the record, my doctor phoned in a prescription for both the nebulizer and the glutathione from the following compounding pharmacy:

    Key Pharmacy (800-878-1322). This is in/near Seattle.

    Nebulizers are available without a prescription, but my doctor thought my insurance conceivably might pay if I got it prescribed. The pharmacy also promises detailed written instructions to go with it. (Others here have used this pharmacy for the nebulized glutathione--that's how I got the name.)

    The order should arrive in the middle of next week. I will report my experiences on my Famvir status reports.

    Thanks for any input that people can give!

    Best, Lisa


    P.S. My doctor apparently gave me enough to use this twice a day. How much do other people use?
    [This Message was Edited on 03/23/2007]
  2. deliarose

    deliarose New Member

    that insurance might cover the cost of nebuliser if Rx'd.

    Otherwise, i think u can buy nebulisers much cheaper elsewhre.

    Paid $50 for mine off teh web! But i get the nebulised glutathione from Key pharmacy.

    Delia
  3. Slayadragon

    Slayadragon New Member

    I think the cost of the Key Pharmacy one was something like $80. This included special non-rubber tubing, since I have a rubber allergy.

    They also said something about renting the machine, although I didn't really like that idea.

    Best, Lisa

  4. rockyjs

    rockyjs Member

    My friend with lyme (originally diagnosed with MS 10 years ago) checked to see if specialists though the treatment would help her. They felt that the nebulized glutatione was especially good for Parkinson's but that in her case it would be best to use suppositories.

    I believe she is getting hers from Wellness Pharmacy in Atlanta. She had done IVs but didn't notice much change. She has seen some improvement with the suppositories.

    Jan