Quick Lyme checklist

Discussion in 'Fibromyalgia Main Forum' started by Applyn59, Jun 11, 2003.

  1. Applyn59

    Applyn59 New Member

    I answered yes to 26 of these questions!
    Many are FMS symptoms so how are we supposed
    to know which is which!

    The Quick Checklist

    As part of your symptoms, have you had any of the following?
                                                      Yes No
    1. Tick Bite (deer tick or dog tick?) Y N
    2. Rash at bite site Y N
    3. Rashes at other sites Y N
    4. Joint/muscle pain in feet Y N
    5. Swelling in toes, balls of feet Y N
    6. Ankle pain Y N
    7. Burning in feet Y N
    8. Shin splints Y N
    9. Unexplained fevers, sweats, chills Y N
    10. Unexplained weight change (loss or gain) Y N
    11. Fatigue, tiredness Y N
    12. Unexplained hair loss Y N
    13. Swollen glands Y N
    14. Sore throat Y N
    15. Testicular pain / pelvic pain Y N
    16. Unexplained menstrual irregularity Y N
    17. Unexplained milk production (lactation) Y N
    18. Irritable bladder or bladder dysfunction Y N
    19. Sexual dysfunction or loss of libido Y N
    20. Upset stomach Y N
    21. Change in bowel function (constipation, diarrhea) Y N
    22. Chest pain or rib soreness Y N
    23. Shortness of breath, cough Y N
    24. Heart palpitations, pulse skips, heart block Y N
    25. Joint pain or swelling Y N
    26. Stiffness of the joints, neck or back Y N
    27. Muscle pain or cramps Y N
    28. Twitching of the face or other muscles Y N
    29. Headache Y N
    30. Neck creaks and cracks, neck stiffness Y N
    31. Tingling, numbness, burning or stabbing sensations Y N
    32. Facial paralysis (Bell's Palsy) Y N
    33. Eyes/vision: double, blurry, pain, increased floaters Y N
    34. Ears/hearing: buzzing, ringing, ear pain Y N
    35. Dizziness, poor balance, increased motion sickness Y N
    36. Lightheadedness, wooziness, difficulty walking Y N
    37. Tremor Y N
    38. Confusion, difficulty in thinking Y N
    39. Difficulty with concentration or reading Y N
    40. Forgetfulness, poor short term memory Y N
    41. Disorientation: getting lost, going to wrong places Y N
    42. Difficulty with speech Y N
    43. Mood swings, irritability, depression Y N
    44. Disturbed sleep: too much, too little, early awakening Y N
    45. Exaggerated symptoms or worse hangover from alcohol Y N
    46. Any history of heart murmur or valve prolapse? Y N

  2. sofy

    sofy New Member

    To be sure. There are two blood tests and then they can do a spinal tap to see if it is in the cnf. I have definately had it twice and then when i got so bad that I couldnt work I let them chedk my spinal fluid too. It was clear but the infectious disease dr I saw said I could have had lyme again and the antibiotics I took got rid of it. He said if my symptoms were from lyme I would have to wait till I got better and it can take years and to date they have no way of hurrying it along. So who knows. Some things in medicine are not concrete and we can all attest to that. You should have the blood test.
  3. kerrymygirl

    kerrymygirl New Member

    Lyme news update on tv mentioned stinging and stabbing as a constant reminder. Had small child tried to explain his constant stinging.
    I was bitten 5 times by a wasp in my shirt, thought it was the constant stinging I normally have, did not even know till I felt it crawling and the swelling. They said this is a very usual sign. It can drive you crazy because you are constantly hitting or slapping the areas. Makes it very diff. driving. Plus you are not sure if you are being bit.

    Neurontin has helped me with this quite abit. Has lessened.

    Dr. Whittaker, teaches bowen which I was in study. She did better on IV but went back to being ill. She moved from the clinic I helped at so I am not sure how she is doing now.
    She told me she could have went to prison for trying to expose some very devious cover-ups, with Lyme. She is in her 70`s. She has spoken across the world. Quite a literate person, bit of a tuff cookie, to get where she did guess she had to be.I was at the clinic when she located the intrusive bacteria under scope. Needless to say she was quite excited. She later moved on to bowen lab, lives off grants but stuggling to get them.She was 1 that told me she had no doubt I have lyme. Need treatment but my insurance is a pain, added pain I do not need. I spent 1 Christmas with her and we had quite a conversation on all this lyme cover-up.
  4. Applyn59

    Applyn59 New Member

    Did you see a dr. in CT for this? Is he good?
    Where is he???

  5. Applyn59

    Applyn59 New Member

    Are you talking about stabbing pains from the
    bite itself or at anytime. I getting shooting stabbing
    pains every so often but thought it was just
    normal. My mother even gets this and she doesn't
    have fibro.

    Just tyring to clarify this.

  6. Applyn59

    Applyn59 New Member

    Thanks everyone for your insight. I am beginning to
    think maybe I should try and get to a lyme literate
    dr. I just didn't think it was that necessary. I also
    don't have any time that I know I have been bitten.

    To those with lyme, how often do you need to go
    to this dr. for treatments? Guess I am worried they
    might think I have no reason to be there because
    I do have FMS and CFS.

    Thanks again for the info. I've been researching online.
  7. kerrymygirl

    kerrymygirl New Member

    Yes this was all the time until the neurontin calmed it down. On the new cast with lyme doc, he interviewed the boy and he was trying the best he could to explain, I knew exactly what he was talking about. When I had the wasp in my shirt I was so used to this feeling I did not know at first I was being stung until the 5th sting.

    Betsy I have been worried about you and your treatment how it is progressing? I have vertially no income now and since after so long they make no guarantee`s of any sort of a cure. Plus the controversy of advanced lyme. I have not known what to do. Especially since I have so much spinal injury,fm/cfids,plus this tissue thing over my head. I do not know what way to turn. If I knew I could get better and return to work I would put it on my card.

    The only good lyme doc here is accepting new pts.

    I know you are scared it is frightening, not knowing most of all. I am going to post on the board about a minister arrested who has lyme, very interesting & sad.

    Applyn if your gut is telling you something I would listen.

    Betsy you say you suffer from this also?
    Irritating as all get out. People think were nuts swating at ourselves, oh well I guess they already think we are anyway,lol.
  8. kerrymygirl

    kerrymygirl New Member

    What to do what not to do. How too much anitbiotics affect our good bacteia and fighters. I am so sorry sbout your kids just such another added worry. I know how I worry about my daughter. I know antibiotics always open me up for everything out there.

    I as I said am quite concerned about my daughter also plus being pregnant now, she is such a good kid. But the signs are there, sleep prob, torn rotator cuff with healing prob. hypothyroid can not get under control. Plus many odd symptoms. Since she is out of state so I am sure I do not know it all.

    I know I feel bad if I gave her these things to live with. Hopefully for them we will know more for them to have a better quality life.

    So please try to get some answers applyn maybe you can put your mind to rest. Betsy has given you some good advice also. Hugggss Still hard to understand Conn. docs of all.
  9. Applyn59

    Applyn59 New Member


    So sorry all of your are going through this, too.
    I have been corresponding with a few people who
    have given me leads on drs. Seems none of
    these drs. take insurance! The one who is supposed
    to be the best is $475 for first visit and 250 for each
    additional visit. I asked her if he would test me for
    hepatitis and mycoplasmas and she (the patient)
    told me he did all of that without her even asking him.
    He is supposed to be a leader in the field. I guess
    it would be best to go to a specialist now that I have
    heard that drs are so stupid about it! In CT, too.
    They don't even have a law that dr's have to report
    lyme cases!!! Remarkable.

    She did receive some reimbursement from her insurance. I am on Medicare and Medicaid so
    I doubt they will take that.

    This might be a good thing since he is so good at
    what he does. It would be nice to go to someone
    who can be the brains of the outfit for once!! LOL!!!

    Thanks for all the info.

    PS My friend who just got bitten does not seem
    too concerned. I am trying to get her to get
    more antibiotics from the dr.