Quick response needed desperately!!!!

Discussion in 'Fibromyalgia and ME & Chronic Fatigue Syndrome' started by MsE, Feb 2, 2011.

  1. MsE

    MsE New Member

    Have any of you with CFS had to deal with chemo? I've had CFS for a dozen years, am 76, and am now dealing with breast cancer. Have had a lumpectemy a few days ago and must see the oncologist today. Have grave doubts about my ability to withstand chemo. I've been told radiation won't help my type of cancer, but I may find that is wrong. PLEASE--those who know, respond quickly. THanks a bunch. MsE
  2. MsE

    MsE New Member

    I appreciate your note. Maybe it will nudge someone else to write.
  3. MsE

    MsE New Member

    Remission of fibro sounds good. But I don't have fibro. Nuts! My overall heart health is okay, but I'm not physically strong, and the CFS is in a flare since the surgery. CFS and I have a day-to-day partnership. Some days are mine; some days belong to CFS. I never know. I'm one of those people who respond badly to medication. If the label says only 2% have such and such a problem, I'm among the 2%. I've been hyper-sensitive to meds ever since the CFS started.
    I appreciate your note, and yes--my daughter and I have a list ready. Thanks again.
  4. mbofov

    mbofov Active Member

    If I were you I would look into intravenous (not oral) vitamin C. There are studies showing that sometimes it can help. It also can be used together with chemo if desired.

    Google NIH Intravenous vitamin C.

    I wish you well -

    Mary
  5. MsE

    MsE New Member

    I just posted a message on that board. Thanks for the reminder. I wouldn't have thought of it.
  6. MsE

    MsE New Member

    Help in what way?
  7. gapsych

    gapsych New Member


    So sorry to hear this.

    Please talk to your oncologist about the vitamin C as it can make the side effects, especially nausea, worse.

    My brother in law is an Oncologist. I will have to ask him if he uses this as an adjunct therapy.

    Keep us updated.

    gap
  8. MsE

    MsE New Member

    The oncologist said chemo was not an option. In my case it would do very little good--more harm than good. No chemo. Radiology is still a chance. However, I learned if I walked away and did nothing I would have a 70% survival rate for ten years cancer free. Not bad. Thanks for all your input. I am SO grateful! MsE
  9. mbofov

    mbofov Active Member

    Here are links to several studies which show that intravenous vitamin C (not oral) can be effective in treating some cancers - it can actually kill cancer cells. I'm not saying that it is a definite cure or works all the time, but there is mounting evidence of its possible efficacy for cancer treatment.

    I didn't see anything about it increasing nausea (the IV vitamin C).

    Especially check out the first study here. Gap, your brother-in-law might be interested in this information.

    http://www.ncbi.nlm.nih.gov/pubmed/16157892?itool=EntrezSystem2.PEntrez.Pubmed.Pubmed_ResultsPanel.Pubmed_RVDocSum&ordinalpos=1


    http://www.ncbi.nlm.nih.gov/pubmed/16567755

    http://www.ncbi.nlm.nih.gov/pubmed/17760959

    http://www.ncbi.nlm.nih.gov/pubmed/15672419

    http://www.ncbi.nlm.nih.gov/pubmed/20171954

    http://www.ncbi.nlm.nih.gov/pubmed/19414313


    Mary
  10. MsE

    MsE New Member

    Thank you for the websites. I'll start reading tomorrow.
  11. gapsych

    gapsych New Member


    A friend of mine had breast cancer and was given an anti nausea drug, sorry don't know what it is called, and had very little nausea or side effects except losing her hair. There have been great advances as far as side effects with chemotherapy but this does not mean people don't experience side effects.

    However this may be an individual reaction. I think the bottom line is to talk to your oncologist as he/she may have had other patients like you with CFS or chronic illnesses.

    If nothing else, this post will bump up your post as I know there have been people here who have had cancer.

    Best of luck. BTW, my friend is fine after 20 years of being cancer free.

    Please keep us updated.

    gap
  12. MsE

    MsE New Member

    My cancer is triple negative. That means it is especially nasty and aggressive. However, yesterday the oncologist said that chemo was not a good choice for me because of my age and, I suppose, health. That's bad because chemo is the preferred choice for triple negative cancer.

    He said he strongly recommended radiation, which I will do. However, after reading as much as I can stomach on triple negative breast cancer, I feel like I've been given a death warrant. Guess it's time to watch "The Bucket List" again. :)
  13. gapsych

    gapsych New Member


    I am so so sorry to hear this. I don't even know what to say but want you to know my thoughts are with you.

    The only thing I can suggest is maybe get a second opinion?

    Please let us know how things are going.

    Take care.

    gap
  14. mbofov

    mbofov Active Member

    MsE - here are couple of more links re IV vitamin C. You may want to print some of them out and take them to your doctor. It's non-toxic and may very well be beneficial. It may not be, but I don't think you have a lot to lose. And of course more studies need to be done, but in the meantime some people are having positive results.

    Gap, the Mayo Clinic studies were fatally flawed - they only used oral dosage vitamin C, not intravenous. You cannot get the same concentrations of vitamin C in your system with oral dosage as with intravenous. It's a little mind-boggling to be honest that the Mayo Clinic failed to use IV vitamin C in their studies when that was the core of Pauling's research. But his research was then debunked for a couple of decades due to the flawed Mayo Clinic studies until a few years ago when someone decided to study the use of INTRAVENOUS vitamin C in the treatment of cancer and recommendations were made for further research.

    http://www.pnas.org/content/102/38/13604.abstract

    http://www.ncbi.nlm.nih.gov/pubmed/19414313

    http://www.alternativecancersolution.com/natural-cancer-cure-vitamin-c.htm

    http://www.ncbi.nlm.nih.gov/pubmed/18450228 - Mayo Clinic studies oral use only

    Mary
    [This Message was Edited on 02/03/2011]
  15. richvank

    richvank New Member

    Hi, MsE.

    I just want to give some more information about this treatment, which Mary has posted about.

    The initial work on vitamin C treatment of cancer goes back to McCormick and then Cameron and then Linus Pauling. Dr. Hugh Riordan of Wichita, Kansas (now deceased) picked it up, and found that it was necessary to use IV application in order to make it effective, as Mary wrote.

    Researchers at the NIH, led by Dr. Mark Levine, did a detailed study. They found that it does work, and they developed a hypothesis for how it does, which they tested and found to be valid. This has since been confirmed by an independent research group. The hypothesis is that when vitamin C (ascorbate) is in the blood stream, high concentrations of it will cause it to be pro-oxidant, rather than antioxidant. It produces hydrogen peroxide. In the blood itself, the red blood cells are net producers and exporters of glutathione, and they are able to counter this peroxide production.

    However, in the extracellular fluid, which bathes the cells, the red blood cells are not present, because they are confined to the capillaries. Therefore, the hydrogen peroxide that is generated by the ascorbate in the extracellular fluid is not countered by sufficient antioxidant. The hydrogen peroxide, being a small, neutral molecule, is able to diffuse through cell membranes and enter cells.

    Normal cells have sufficient antioxidant capacity to quench it, but cancer cells have less protection against oxidative stress, and they are preferentially killed. (This, by the way, is one of the main mechanisms of chemotherapy and radiation therapy, which produce oxidative stress.)

    The current status of ascorbate in cancer therapy is reviewed here:

    http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2981594/?tool=pubmed

    One of the authors of this review is Neil Riordan, son of Hugh (who by the way also runs the stem cell treatment clinic in Panama that Dr. Paul Cheney has been using for stem cell treatment of CFS patients.)

    The ascorbate treatment of cancer is not yet approved by the FDA as a stand-alone cancer treatment, since it has not yet been through clinical trials.

    Researchers at the University of Kansas in Wichita, led by Dr. Jeanne Drisko, are currently using this treatment on cancer patients, as an adjunct to chemo and radiation therapy. Information is available here:

    http://integrativemed.kumc.edu/ivvitaminc.htm

    As to whether this would be a good treatment for a person with CFS, I'm not sure. The reason is that in CFS, the normal cells are already in a state of oxidative stress. Adding to it with any of the cancer treatments that raise oxidative stress might be problematic. But I'm not an oncologist, nor do I have any research experience with this treatment. I think this would be a good question to address to Dr. Drisko. She may have experience in treating cancer patients who also have CFS.

    Best regards,

    Rich


    [This Message was Edited on 02/04/2011]
    [This Message was Edited on 02/04/2011]
    [This Message was Edited on 02/04/2011]
  16. MsE

    MsE New Member

    Thank you for the very complete information. If Dr. Drisko is using it as an adjunct treatment to chemo, it might not work for me. I can't have chemo. Radiation, yes, but not chemo. I imagine the U of Kansas must have an email or phone address for Dr. Drisko. I'll take your suggestion under advisement, and am grateful that you wrote.
  17. gapsych

    gapsych New Member


    Good for you. Go with what your oncologist says.

    Others here, me included do not have the skills to assess your case nor recommend treatments for something like Cancer and it is rather presumptuous for any of us to do so.

    Leave it to the real doctors. Your oncologist has had years of experience.

    Do you know when you will start your treatments.

    Take care.

    gap

  18. gapsych

    gapsych New Member

    Out of respect for MsE. I am starting a separate thread on the health board about the Vitamin C debacle, as I don't want to detract from the subject of her post.

    Frankly, I am not in the mood to discuss it but since I did not bring up the subject I will let others have at it.

    gap
  19. LEFTYGG

    LEFTYGG Member

    read this book. it has a lot of good info and doctors names that treat cancer. please know we are thinking of you. love gail
  20. MsE

    MsE New Member

    I'll see the radiology oncologist next week--early in the week, I hope. She will determine when I start therapy, but I know it won't be for another three weeks. "Stuff" has to mend first. :)