Raynauds is killing me

Discussion in 'Fibromyalgia Main Forum' started by Sheila1366, May 23, 2006.

  1. Sheila1366

    Sheila1366 New Member

    Anyone else have constant freezing pain in your toes and fingers.I had hoped that once the weather got warmer that this would get better.No such luck , it's just as bad as it ever has been.

    Sheila
  2. jess

    jess New Member

    Hi Sheila, My daughter has Reynauds which has gotten worse.Hers is mainly bad in the cold months but she has sweating feet and hands now. I wonder if she has cfs and fibro like I do. Anyhow, I asked my Doctor a rheumotologist who also practices alternative med what could help her. He said he has had good results with magnesium. He said she should take up to 6 a day. Have you tried this? It is easier to tolerate mag glycinate. He said magnesium relaxes the blood vessels. I hope you find this helpful. Jess
  3. Sheila1366

    Sheila1366 New Member

    Thanks for the help. I take magnisum everyday but probably need to increase it.My raynauds is so bad.I asked the dr. could the pain and constant freezing be causeing damage to my blood vessels.She said no, as long as I don't cut my fingers or toes and the wound doesn't heal.

    I just want the stinging to stop.

    I hope your daughter doesn't have fm/cfs.That just not fair for our children to suffer too.

    Take care Jess,
    Sheila
  4. Greenbean7

    Greenbean7 New Member

    I've lived with Raynauds forever and even frost bit my toes due to the lack of circulation.

    When I was about 15 the family doc dx'd it and basically told me to move to a warmer climate.

    When I was in my 30'sI went to a circulation specialist (don't ask me what they are called, I don't remember!). They tested the blood pressure in my finger and then had me put my hand in a bowl of ice water for as long as I could stand it. Wasn't long!!

    They took the blood pressure again several times and it took 45 minutes to get the blood pressure back to normal.

    The doc basically said the same thing, move to a warmer climate. They prescribed vasal dialators. I never got to find out if they would work because they gave me horrible migraines!

    Moving to a warmer climate won't help because just walking down the frozen food aisle with do it, being in an overly air conditioned room, and even stress!

    Try putting your hands under the heating pad. One for your fingers and one for your poor little tootsies!

    Hugzz
    Greenbean
  5. mollystwin

    mollystwin New Member

    My MIL has this and wears gloves to the grocery store and outside in the fall and spring. A girl at work has it too and she wears gloves sometimes even in the office. The main thing seems to be not to let your fingers and toes get cold, because once they do, it's hard to turn off!
    Theirs both get better in the summer. I hope yours does too!