Warning....I am on a pretty good rant here....and I am feeling quite foggy, so the results could be a bit interesting! : ) I usually re-read what I post, but I am too tried, so I am just going to go ahead and post anyway. The results of the conference that just took place, as well as the fact of the CDC's recent redefining of CFS are so discouraging. The new definition is for a completely different malady than ME or CFIDS. Of course they are able to tie it to mental illness, becasue their new definition leaves out all the real, physical pathways and all the symptoms that are unique to ME. They are somehow getting away with ignoring anything they don't want to hear. Any research that doesn't fit with their financially beneficial psychological definition just gets thrown out the door. The sheer amount of research that they are just flat out denying is nothing short of outrageous. Their thought process seems to go as follows... Research has proven mitochondrial malfunction? Let's pretend it hasn't. Research has proven genetic changes? Let's ignore those. Research has shown neurological changes after exercise? We'll just pretend that research doesn't exist. Research has shown all sorts of immunological dysfunctions, viral, and environmental contributors to the illness? Pretend it hasn't. Research has shown that CBT doesn't work and GET makes people worse? Ignore that and keep pushing harmful treatments on people. Research has shown central nervous system dysfunctions that are not attributable to depression? Ignore that. Many patients were very active prior to getting ME, and many continued to try to push through their fatigue until they got so sick that was no longer possible. This completely contradicts the theory that ME patients are just out of shape and resistant to exercise? Ignore that, too. Keep saying that they are lazy and using this illness to avoid having to work and have real responsibilities. They just want to have an easy, fun life. (Oh yeah, and ignore the fact that most of them are not sitting back and having fun with their lives now that they got out of all their responsibilities, too, but are instead grieving the loss of their formerly fulfilling lives becasue they are unable to do much of anything.) I could keep going, but I will stop after bringing up the really big one. Research has proven quite conclusively that there are big differences between ME and depression? What can they do about that one? Oh yeah, don't just ignore research on that one. Effectively ignore the entire illness by changing the definition of it. As far as they're concerned, ME, with all its very real symptoms, no longer exists. They have replaced it with a mental illness they have conveniently given the name CFS. The sad thing is that people believe them when they try to discredit us this way. It's almost as bad as if they were to take something like a heart attack due to a blockage and redefine it to leave out the fact of the heart stopping and ignore the blockage. Then they could say that the chest pain, nausea, and shortness of breath were due to stress and a certain personality type, and redefine it as a mental illness, too. They could push CBT and exercise on the patient without doing anything to fix the blockage, and in the process the patient would get worse. They could then say that it is just that he/she is out of shape and resistant to exercise. I know that sounds crazy, but you could actually apply this logic to most proven physical illnesses out there if you leave out enough symptoms and ignore the research showing the physical causes. For many, many other illnesses you could find enough to tie the remaining symptoms to some form of mental illness, stress, depression, etc. becasue there are certain symptoms that apply to most illnesses to some degree or another, and they don't have real clear physical pathways. For that matter, most illnesses can cause some emotional symptoms, simply because being sick sucks, and most illnesses can also be exacerbated by stress. Yet they don't say that stress induced heart attacks are simply in the patients' heads and they don't say that about a lot of other illnesses where stress is a contributing factor. What's really crazy about all this is that they don't seem to understand why we are fighting them so much. Most of us are really bothered becasue they are preventing people from finding real treatments by continuing to push their erroneous psychological model. If we were really just creating this illness to get out of doing things, becasue we were depressed or unmotivated, like so many want to say, then you would think we would embrace the lack of effective treatments because they would enable us to continue on with our lazy lives. However, the opposite is true. I think most of us are so desperate for a cure, we would almost be happy to find out it was in our heads. Then we could actually have a chance of getting better. Even people with very serious mental illnesses have better chances of having normal lives than we do.