Before I found this site, I thought that my symptoms began three years ago, Now I realise that is not the case and I am beginning to realise that I have had the symptoms even in childhood. Many of the symptoms described as growing pains etc I recognised, but the one that shouted to me most was the soft spot on the head. I have always hated having anyone touch my head, because I thought that my bones must be thin, because the slightest touch would send me into spasm and my brain would literally hurt. I have never mentioned this before because I thought it was me just being silly. Now I am thinking I have had this condition for years and looking back recognise many of the symptoms occuring at various stages of my life. Has anyone else discussed their whole life symptons with a GP,because I am wondering if we are missing the link somewhere. I am thinking about childhood diseases such as chicken pox are they doing more damage than we realise?