RECOGNIZABLE? excellent read on difficulties of diagnosis

Discussion in 'Fibromyalgia Main Forum' started by victoria, Jun 6, 2008.

  1. victoria

    victoria New Member

    Excellent article in current Psychology Today, you might recognize yourself or family members...

    here's a partial excerpt:

    "It was all so gradual. In the fall of '93, I began to feel ill. Though I never took a day off work, I functioned for years through an avalanche of impediments. Migraines with nausea had become my steady companion. I had intermittently sore and swollen knees, and the buzzing in my left hand was so intense my fingers sometimes formed claws. My vision, at 20/20 for most of my life, had begun a sudden, precipitous decline.

    "Mark, meanwhile, was teetering. An avid tennis player with great coordination, he began stumbling and bumping into walls. Formerly affable, he began exploding at offenses as slight as someone spilling water on the floor. He was an award-winning journalist with a love of literature and a vocabulary so vast he was our stand-in dictionary. But gradually he began struggling with memory and groping for words. He left his job as an editor after realizing, one day, that he'd spent hours trying to read a single, simple paragraph.

    "Our younger son, David, began to sleep—first so long that he could not do his homework or see friends; eventually, so much (15 hours a day) that he could not get to class. Violating the strict attendance policy at his prep school but without a medical diagnosis, he was asked to leave.

    "Hardest hit was Jason, the elder, who suffered fatigue and shooting pains starting at age 9, the summer we took up residence in our fairy-tale house. The doctors called these growing pains normal, but by age 16 in the year 2000, Jason was essentially disabled. He couldn't think, walk, or tolerate sound and light. His joints ached all day. On medical leave from high school, he spent his days in the tub. As his condition worsened and doctors at the teaching hospitals of Manhattan eliminated one diagnosis after the next, I began to wonder about Lyme disease. Yet throughout most of Jason's decline, our pediatrician dismissed the notion out of hand.

    Instead, the interpretation he came to favor was PSYCHOLOGICAL (my caps): This great collapse could be in Jason's mind. How lucky we were when he referred us to a psychiatrist, who said there was no psychiatric illness that could do this to a child.

    "No, he insisted, this had to be a physical illness, and the pediatrician had better go back to the drawing board. The chastened pediatrician drew 14 vials of blood, testing for hormone imbalance, mineral deficiency, anemia, and a host of infections...

    rest is at

    This family was lucky to get a dx for all of themselves...

  2. annade

    annade New Member

  3. gapsych

    gapsych New Member

    What an informative article.

    THank goodness the Psychiatrist saw that these symptoms were not just psychiatric. I know a lot of us can totally relate to that.

    Interesting read.

    THanks, GA
    [This Message was Edited on 06/06/2008]
  4. bunnyfluff

    bunnyfluff Member

    The Dr said my son had "growing pains".

    Of course, knowing what I know, we had him tested for Lyme. Of course, positive.

    I have to wonder how many will never get tested. It's really a shame.

    Good article,