Reeves' Criteria Petition update: petition is going to CFSAC meeting

Discussion in 'Fibromyalgia Main Forum' started by QuayMan, Oct 21, 2009.

  1. QuayMan

    QuayMan Member

    (from Co-Cure)

    Subject: Reeves Criteria Petition update: Marly Silverman (Pandora) to bring petition print-out to CFSAC meeting

    Marly "Marla" C. Silverman, Founder of P.A.N.D.O.R.A. (Patient Alliance for
    Neuroendocrineimmune Disorders Organization for Research & Advocacy, Inc has been in touch to say that she will be
    bringing a print-out of the "entire petition" (i.e. the visible signatures
    and comments) to the CFSAC meeting at the end of October.

    Please use whatever resources you have access to (e.g. blogs, Twitter,
    Facebook, other social networking sites, newsletters, E-mail
    lists/discussion forums, etc) to highlight the existence of the petition.
    The petition also links to some critiques of the definition. Many people
    have also written interesting comments.

    Note: I have no intention of closing the petition site until the CDC stop
    using this flawed definition.

    I'm appending the text of the petition below with a link.

    Tom Kindlon

    The petition

    We call on the Centers for Disease Control and Prevention (CDC) to stop
    using the "empirical" definition[1] (also known as the Reeves 2005
    definition) to define Chronic Fatigue Syndrome (CFS) patients in CFS

    The CDC claim it is simply a way of operationalizing the Fukuda (1994)
    definition[2]. However the prevalence rates suggest otherwise: the
    "empirical" definition gives a prevalence rate of 2.54% of the adult
    population[3] compared to 0.235% (95% confidence interval, 0.142%-0.327%)
    and 0.422% (95% confidence interval, 0.29%-0.56%) when the Fukuda definition
    was used in previous population studies in the US[4,5].

    The definition lacks specificity. For example, one research study[6] found
    that 38% of those with a diagnosis of a Major Depressive Disorder were
    misclassified as having CFS using the empirical/Reeves definition.


    [1] Reeves WC, Wagner D, Nisenbaum R, Jones JF, Gurbaxani B, Solomon L,
    Papanicolaou DA, Unger ER, Vernon SD, Heim C. Chronic fatigue syndrome--a
    clinically empirical approach to its definition and study. BMC Med. 2005 Dec
    15;3:19. Link:

    [2] Fukuda K, Straus SE, Hickie I, Sharpe MC, Dobbins JG, Komaroff A. The
    chronic fatigue syndrome; a comprehensive approach to its definition and
    study. Ann Int Med 1994, 121:953-959.

    [3] Reeves WC, Jones JF, Maloney E, Heim C, Hoaglin DC, Boneva RS, Morrissey
    M, Devlin R. Prevalence of chronic fatigue syndrome in metropolitan, urban,
    and rural Georgia. Popul Health Metr. 2007 Jun 8;5:5.

    [4] Reyes M, Nisenbaum R, Hoaglin DC, Unger ER, Emmons C, Randall B, Stewart
    JA, Abbey S, Jones JF, Gantz N, Minden S, Reeves WC: Prevalence and
    incidence of chronic fatigue syndrome in Wichita, Kansas. Arch Int Med 2003,

    [5] Jason LA, Richman JA, Rademaker AW, Jordan KM, Plioplys AV, Taylor RR,
    McCready W, Huang CF, Plioplys S. A community-based study of chronic fatigue
    syndrome. Arch Intern Med. 1999 Oct 11;159(18):2129-37.

    [6] Jason, LA, Najar N, Porter N, Reh C. Evaluating the Centers for Disease
    Control's empirical chronic fatigue syndrome case definition. Journal of
    Disability Policy Studies 2008, doi:10.1177/1044207308325995.

    Further reading:
    Problems with the New CDC CFS Prevalence Estimates
    Leonard Jason , Ph.D., DePaul University i.e.
  2. QuayMan

    QuayMan Member

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