Reeves Must Go -Support the 500 Professionals of the IACFS/ME

Discussion in 'Fibromyalgia Main Forum' started by QuayMan, Oct 24, 2009.

  1. QuayMan

    QuayMan Member

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    From: RESCIND <>

    ***Please distribute far and wide!***

    Support the 500 Professionals of
    the IACFS/ME - Reeves Must Go

    On May 27th and May 28th, 2009, the Chronic
    Fatigue Syndrome Advisory Committee (CFSAC)
    convened in Washington, D.C. Among their
    recommendations to the Secretary of Health and
    Human Services was a call for new and progressive
    leadership at the CDC's ME/CFS research division.

    We, the public, need to back the IACFS/ME and the
    CFSAC. Under Bill Reeves' regime, funding has
    routinely decreased and increasingly broad
    definitions which have ceased to have any clinical
    meaning or research value have been implemented.

    Under Reeves' direction the CFS program is being
    slowly strangled.

    A couple of weeks ago, Dr. Judy Mikovits, who is a
    retrovirus expert at the Whittemore Peterson
    Institute, released the results of a study which
    provided overwhelming evidence that xenotropic
    murine leukemia virus-related virus, or XMRV, could
    very well be the third human retrovirus.

    Mikovits found that in a study of 101 CFS patients,
    67% were found to have XMRV in their cells, but this
    is really not new news. In 1991 Dr. Elaine Defreitas
    found retroviral DNA in 80% of her study's 30 CFS
    patients. The CDC "replicated" her study, did not
    follow her exact procedure, and ended the study
    prematurely while ostracizing Defreitas.

    What does Reeves say about Mikovits recent
    discovery? Without doing any study or due diligence
    Reeves dismisses the findings by saying that they
    are "unexpected and surprising" and that it is
    "almost unheard of to find an association of this
    magnitude between an infectious agent and a
    well-defined chronic disease, much less an illness
    like CFS."

    Deceit and incompetence have increasingly become
    the order of the day. The money that Bill Reeves has
    been receiving has been terribly mismanaged as he
    desperately strives to forestall the slow but
    inevitable pace of biomedical research.

    Inappropriate management of funds prevents
    collaboration with biomedical experts, as well as
    collaboration with psychosocial experts who are not
    trying to build a career in psychosomatic medicine.
    Bill Reeves must be held accountable.

    Inaccurate stereotypes persist because Bill Reeves
    has not been accurately educating the public on the
    seriousness of this disease.

    CFS is not a disease of "feeling a little tired," no
    matter what you call it; this is a severe neuro-
    immune disease of among other things, debilitating
    exhaustion completely out of proportion to exertion.
    Patients may be too exhausted to even be able to
    chew their food, leave their beds and much less even
    work - and remain so year after year. Is that your
    neighbor's experience of tired?

    Perhaps you suffer from CFS, perhaps your patients
    do, or perhaps a loved one does; your best interests
    are not and have not been at the heart of the CDC's
    program. What's at the heart of the program is job
    security for Bill Reeves, his paycheck and
    collaboration with his pals - not finding ways to
    combat and track this horrible disease.

    We need you now more than ever. Right now is the
    first real chance that we have had in nearly 30 years
    to fight Reeves in force; to fight for you, your loved
    ones, or your patients. Everyone from researchers to
    advocates are in agreement - Reeves must go. And
    we must make it happen. No one will do it for us.

    Join members of the IACFS/ME at the CFSAC's
    October 29-30th meeting in Washington, D.C. Do not
    let the hard work of other advocates and researchers
    over the years be for nothing. We need to show that
    we cannot be silenced and we will never give up.

    If you cannot personally attend, find someone to
    attend in your place. Ask your parents, your children,
    your spouses or friends to attend in your place. Ask
    your elected officials to have aids attend.

    The answer is always no if you don't ask - we must
    make it happen - none of us can live with the

    Reeves must go.

  2. victoria

    victoria New Member

    Is there a site where we can read more... or sign a petition... ?

  3. spbm

    spbm New Member

    I absolutely agree that there should be a campaign to remove Reeves, especially after his dismissive remarks about the WPI study, which were downright unprofessional and disheartening to the very people he is supposed to be helping. Anyone with any interest in helping CFS patients should be nothing less than estatic about ANY kind of biological finding associated with this disease, even if it doesn't end up being the actual cause of the disease. I won't be able to make the meeting, but I sent an email to the CDC advocating for Reeves's dismissal, citing his comments published in the NYT. If you are unable to attend the meeting, I suggest sending an email to the CDC.
  4. simonedb

    simonedb Member

    could someone please make it easy, post an email addy and more if time so I can easily send a note to right place at cdc? I would also gladly donate money towards getting rid of him if there is a way to do that?
  5. QuayMan

    QuayMan Member

    I don't believe there is a petition against Reeves.

    There is a petition against his definition/criteria ("empiric" criteria (Reeves, 2005)) i.e.

    It gives extra information on that issue (e.g. with some links).

    I wouldn't be surprised if a petition on Reeves specifically is set up at some stage.

    What exactly would you like extra info on?
  6. AuntTammie

    AuntTammie New Member

  7. QuayMan

    QuayMan Member