relapse of A**-Kicking fatigue!

Discussion in 'Fibromyalgia Main Forum' started by Jeramy, Jun 5, 2011.

  1. Jeramy

    Jeramy New Member

    I have had pretty good control of my fibro fatigue in the last 4 years, but the last two weeks I have been steadily getting worse. Now the past three days I have been knocked off my feet and on the couch all day.

    Anyone else have relapses like this?
    Why do you think it attacked me so suddenly? (I haven't done anything different.)
  2. scotlandrose

    scotlandrose Member

    Jeramy,

    That often happens to me also! As i spend time glued to the couch, I try and think back to what could have gone wrong. Sometimes, I can finally pinpoint my mistake, most often not. I am a music therapist, and took undergrad and grad level classes in stress. Sure, everyone complains and talks about it, but it honestly can mess you up bad. That is usually what I find as the culpret while stuck to the couch. I may remember how upset/angry/frustrated etc. I had gotten a few days prior and I let it suck me down.

    Actually, I started practicing my own form of "stress reduction" a few weeks ago, and can feel a small overall difference in my energy and attitude. If some one is stressing me out on the phone, I just hang up. In daily activities, if it happens, I try to leave the situation or put myself into an "ignore" mode. I did advise family and friends this was the deal, i have to do this and even though I can tell they don't like it as much as me, they are so far respectful and understand.

    Before I resolve things and/or finish whatever i walked away from, I think it thru and try and get very calm before hand.

    As a therapist, I was trained to look at factors in experiments and elimanate useless factors and focus on the important ones. When I notice a new pattern in this DD, i get a legal pad and jot things down everyday like food, weather, stress, or anything that could be suspect. It usually takes longer than I want, but i eventually find a pattern or source for the problem.

    Hope you can figure out your trigger, find a way to get a handle on it, and things go back to normal, well, our normal at least.

    Feel better soon!

    Scotlandrose
  3. jole

    jole Member

    The 'push and crash' cycles. Last winter I went into a crash and it hasn't lifted. Total exhaustion day after day. Not just to the point of being unable to do anything, but of the very shallow breathing. Docs have no answers, of course...thyroid, etc. show fine. I'm to the point of thinking they're missing something drastic, or this has progressed drastically. I really feel for you.......life isn't offering much, is it? Hugs......Jole
  4. Jeramy

    Jeramy New Member

    Hi Jole and Scotlandrose,
    Sorry I'm so late in responding. I really appreciate your feedback. I got really bad after I posted in June. My gall bladder and liver became inflamed and I was in tremendous abdominal pain. Since then I have been taken off of all dairy and ANY sugar. Even agave, coconut palm sugar. I also can't have any coconut milk or rice milk. Only almond milk. Basically I need to cut out a lot of fat because of the inflamed gall bladder and all sugars because my adrenals are low and bound to crash if my glycemic intake is too high. All this is in addition to my already not having any gluten (for the past 13 years) and soy...I bet a lot of you avoid soy too... not good for anyone with hormonal/thyroid issues.
    So I have been going for over a month now on no sugar, no dairy, no coconut and I'm still exhausted. My abdomen is shrinking and I've lost 2-3 lbs. But, I'm still very tired.
    Maybe I'll look into eating for my bloodtype next.
  5. Marta608

    Marta608 Member

    Originally you asked why we get these crash and burn times and you got two very good answers from Jole and Scotlandrose. Another thought is Candida. It's very confusing because there aren't any two websites that agree on what foods to eat and what foods not to eat. I think we have to - oh dear - experiment. It sounds as if the no-sugar, no-dairy is the right start.

    I seem to be having a Candida flare - or something - but am exhausted again after having some energy for seven years. It's been 17 years total since the dx.

    Oh, by the way, I did the Eating For Your Type thing years ago. Maybe it will work for you but I'd check out the full Candida diet first.

    Good luck.

    Marta
  6. earthdog2000

    earthdog2000 Member

    Hi Jeramy!

    Wow, it sounds like you have been through it! Between the fibro relapse and the gall bladder and liver problems I can see why you are sooooo exhausted! It sounds like when you thought you were relapsing it was your bodies way of telling you something else was going on! It always amazes me how much sicker we all get even just with the flu because of the fibro and CFS. I always get the flu symptoms for about a week thinking it's a flare than after that I realize it's a flu and it takes sooooo much longer to get over it!

    What did the drs. do for you initially once they found out it was your gallbladder and liver? I imagine it's very hard to stick to a diet like the one you are on. I bet you will lose more than a few pounds by the time this is over! I personally would have the hardest time giving up sweets, they are my downfall!

    Well, I hope that by the time you read this you are feeling much better! Take care,

    Faith, Peace and Comfort, Julie
  7. mbofov

    mbofov Active Member

    Have you ever tried an adrenal glandular product for your adrenals? Several years ago I was weak as a kitten, doctors of course could not do anything. Then my chiro who does muscle testing found my adrenals to be very weak and gave me Drenatrophin PMG by Standard Process, and within a few days my energy started to pick up. I had to take about 3 times the recommended dose for a week or two because they were so weak and I had to take the Drenatrophin for a couple of months to help build my adrenals back up. But it worked really well. And of course I needed to do the usual things for the adrenals - avoid sugar, alcohol, caffeine, stress, take a good B complex vitamin and extra pantothenic acid, which is crucial for adrenal health.

    Re your liver and gallbladder - mine was inflamed also several years ago and the same chiropractor gave me AF Betafood by Standard Process and it was a godsend as well. It really really helped. And of course like you had to avoid fat etc. But I found out that really the root of my digestive problems was low stomach acid, because my diet had been pretty good. I never did eat a lot of sugar or fat. And again, my chiro discovered this for me. I would have been lost wtihout him. I eventually started taking HCL with meals, and a few years ago learned it was best to take 20 - 30 minutes before meals, and also to double what I had been taking. In any event, my gallbladder and liver are doing quite well now. I can eat fats in moderation (which we do need) and also I eat a lot of vegies, protein with each meal, low carb/low grains. Low stomach acid is extremely common with CFS but I think very few doctors look for it.

    I hope you give an adrenal glandular a try. It helped me so much. There are several good products out there, and also look into hydrochloric acid.

    Mary
  8. Saoirse3

    Saoirse3 Member

    I was going along just fine, even taking flying lessons, and then it was like I was shot out of the sky. I had 3 gallbladder attacks, my joints got worse and it was all I could do to stay awake. Every muscle, joint, nerve and organ seemed to be screaming all at once. And for the life of me, I couldn't think of anything I had done differently. My "combo" just stopped working. Back to the drawing board.

    I don't know if you have ever heard of it, but I started taking an herbal called Chanca Piedra, along with another called Liv52. Both are available on eBay and Amazon. They work SO much better than the Ursodiol the doc gave me. There is also another herbal combo called "Heal n' Soothe" that is pricey and comes with a lot of hype, but I have to admit it really DOES do what it says. I just started taking Doctor's Best Meriva and though it has only been a week, I feel a bit more energy. I think I have taken every painkiller known to mankind at one time or another, and I know for a fact they contributed to my liver disease. And I am also diabetic and have lousy blood (platelets are 54 and I have varices. Ugh!)

    The last thing I would recommend is a FAR infrared pad. I got this little thing called Light Relief, and it's handheld and portable. It heats the tissue much deeper than a regular heating pad and helps circulation and swelling. The thing is, you CANNOT fall asleep while using it or you will burn yourself. Only about 5 minutes at a time. But it is really working for me.

    Hope this helps! Hugs,
    Stacey
  9. Mikie

    Mikie Moderator

    You are having such a hard time. When my gallbladder stopped working, I had extreme exhaustion until it was removed.

    Our illnesses rarely travel alone and as time goes by, we are likely to suffer other conditions as well. I relapsed and had to quit my part-time job a year ago. It appears I have Sjogren's Syndrome now and lately, interstitial cystitis. With us, it's always something.

    Wishing you good luck and sending up a prayer for you.

    Love, Mikie
  10. Jeramy

    Jeramy New Member

    Sorry I didn't respond sooner. I've been getting my kids settled back in school. Well, I've been having this swollen abdomen for 3 months now and 3 days ago I had what seemed to be another gall bladder attack. I couldn't stand the pain anymore, so I went to the ER to have all the bloodwork and ultrasounds that would show what the hell is wrong.Negative, UGH!
    So why is my belly so swollen. I'm also constipated gassy and belching uncontrollably. And this is after 3 months of going off of dairy and sugar, in addition to my regular gluten free, soy free diet. I've also avoided high fat stuff and have only eaten small amounts of meat.
    I am so sick of this! I think it's time to see my Rheumy. I think that my nutritionist/Celiac specialist knows what she is doing when she guides my diet, but maybe I have a moisture problem. Maybe I need to be back on meds for my Sjogren's.
    Oh... and I do take an adrenal supp, I have for years. I do the epsom, yes it feels good, but wipes me out, so I have to do it before bed. Not so bad. I've tried all that stuff you wonderful, supportive DD buddies have provided. I am still stumped. And still not living my life as I should be.

    Here's another theory and question. Stress triggers stuff, right? But how long is the effect?
    I.e. - my life was pretty crappy years ago when I was first diagnosed with all my problems. My spouse was a louse and didn't support me and worse. So, I got away from that 5 years ago. I now have an extremely supportive mate. You'd think that main connection would keep me whole. BUT, last fall i went through a very stressful work situation that left me knocked down for a few months. I recovered, so I thought. But my kids have had more health issues (my 10yo son was diagnosed with FM), ER dental surgery, orthodontics,and school issues (they need accommodations due to their health and learning disabilities) and this has all cost a ton of money, which I have had to borrow or use credit. meanwhile their father is not paying his share.
    I guess this is stress enough to have all this physical reaction. But why?! It can't just be the stress. There has to be a physical weakness.

    I wish I could figure this out.
  11. Jeramy

    Jeramy New Member

    Sorry I didn't respond sooner. I've been getting my kids settled back in school. Well, I've been having this swollen abdomen for 3 months now and 3 days ago I had what seemed to be another gall bladder attack. I couldn't stand the pain anymore, so I went to the ER to have all the bloodwork and ultrasounds that would show what the hell is wrong.Negative, UGH!
    So why is my belly so swollen. I'm also constipated gassy and belching uncontrollably. And this is after 3 months of going off of dairy and sugar, in addition to my regular gluten free, soy free diet. I've also avoided high fat stuff and have only eaten small amounts of meat.
    I am so sick of this! I think it's time to see my Rheumy. I think that my nutritionist/Celiac specialist knows what she is doing when she guides my diet, but maybe I have a moisture problem. Maybe I need to be back on meds for my Sjogren's.
    Oh... and I do take an adrenal supp, I have for years. I do the epsom, yes it feels good, but wipes me out, so I have to do it before bed. Not so bad. I've tried all that stuff you wonderful, supportive DD buddies have provided. I am still stumped. And still not living my life as I should be.

    Here's another theory and question. Stress triggers stuff, right? But how long is the effect?
    I.e. - my life was pretty crappy years ago when I was first diagnosed with all my problems. My spouse was a louse and didn't support me and worse. So, I got away from that 5 years ago. I now have an extremely supportive mate. You'd think that main connection would keep me whole. BUT, last fall i went through a very stressful work situation that left me knocked down for a few months. I recovered, so I thought. But my kids have had more health issues (my 10yo son was diagnosed with FM), ER dental surgery, orthodontics,and school issues (they need accommodations due to their health and learning disabilities) and this has all cost a ton of money, which I have had to borrow or use credit. meanwhile their father is not paying his share.
    I guess this is stress enough to have all this physical reaction. But why?! It can't just be the stress. There has to be a physical weakness.

    I wish I could figure this out.
  12. fleabitis

    fleabitis New Member

    If you live somewhere in the world where it is spring then it might be the bad organisms in your blood are breeding like everything else in spring. See Dr. Jadin's website www.chronicfatiguesyndrome.co.za. She helped our very sick daughter tremendously. Also a friend, a reliable friend, said that despite being so "fatigued" that she had to be carried from room to room she insisted on flying from Malawi to Capetown (a few hours). When she got to Capetown she walked down the stairs as if there had been nothing wrong with her. She was amazed. It was some years ago when aeroplanes still pumped clean oxygen into the cabin. The bad microbes lives off carbondioxide, so as you get tireder and can do less your muscles have less oxygen and so they have a field day. This isn't proven - just an aside which may help. Also, if you take lots of vitamins to feel better the microbe whatsits (I'm not a doctor or nurse) feed of them too! Avoid sugar for the same reason and avoid coffee which narrows the veins so less oxygen reaches your muscles - if you can manage any exercise. Good luck.