Results of Lifestyle Management for CFS and ME

Discussion in 'Fibromyalgia Main Forum' started by tansy, Dec 7, 2008.

  1. tansy

    tansy New Member

    British Society of Rehabilitation Medicine (RSRM) Newsletter
    May 2008
    Page 12

    Evaluation of a lifestyle management programme in the functional abilities
    and fatigue for
    chronic fatigue syndrome (CFS/ME) patients

    T Gaber, J Priest, Bolton PCT, Bolton
    Email: [log in to unmask]

    Background: Bolton and Bury CFS/ME specialist service was established in
    2004 as part of a UK wide £8.5
    million investment to improve the care and equity of service provision for
    CFS/ME patients.

    Aim: To evaluate the impact a lifestyle management programme has had on the
    functional abilities and
    severity of fatigue.

    Method: The lifestyle management programme is delivered as a group or
    individual basis. The group
    programme is delivered over six fortnightly sessions of two hours. The
    programme integrated the principles
    of promoting graded activities (exercise) and cognitive behavioural therapy
    in an informal setting. Functional
    outcomes were measured before and after the programme using SF36 and
    severity of fatigue using
    Chalder’s fatigue scale. Patients’ subjective views following the programme
    were also documented.

    Results: Full data was available for 70 out of 112 participants in the
    programme. 49 were females. The
    mean (SD) of SF36 and Chalder’s scale before the programme was 15.7 (4.8)
    and 8.8 (3.1) respectively and
    after the programme was 15.7 (5.4) and 6.1 (4.4). Using the T test, there
    was no significant difference
    between the mean values pre and post intervention. In general, the
    participants praised the programme and
    felt that it helped them to cope with their symptoms.

    Conclusion: Most patients felt that the lifestyle management programmes
    improved their ability to cope
    with their disability. However, the programme failed to achieve either
    functional improvement or reduction in
    fatigue in CFS/ME patients. Further evaluation of the role of such
    management programmes for CFS/ME
    patients is needed.
  2. findmind

    findmind New Member

    heck, I would have told them that for only a penny!


  3. gapsych

    gapsych New Member

    Finally some research that shows that these treatments do not always work.

    I fear that a study of this kind will be brushed aside by the medical establishment. There are a few American studies that show PEM is real. Not in our heads unless you are talking about PEM as a neurological condition, LOL!!

    Sitting for two hours over consequtive nights? I sure could not do that.


  4. TeaBisqit

    TeaBisqit Member

    The disease is not going to miraculously go away just because you change your lifestyle. Might as well dye your hair pink and wear neon clothing for a lifestyle change, it will have the same effect!
  5. tansy

    tansy New Member

    as a result of CBT and GET. Actually I think your version would be more fun; at least we'd get noticed.

    tc, Tansy
  6. WhoSaid

    WhoSaid New Member

    And if my grandmother had wheels she would be a wagon.

    Why do they waste so much money doing research to prove it's just depression or a product of our imagination instead of doing real research?
    Would be nice if they could come up with some kind of tests and find out if there is a common virus at work here. I guess that would be too easy.
    Wonder if they just don't want to admit they are wrong and that we aren't crazy or lazy?
    It's always easy to blame the victim.
  7. tansy

    tansy New Member

    This is an extract from Invest in ME's latest newsletter.

    "Invest in ME have translated an article from the Norwegian ME Association which clearly shows the failings in the NICE guidelines. It is a sad fact that some European healthcare services are under the impression that adoption of the UK NICE Guidelines for ME/CFS would be a sensible approach and could save money. This impression is false and will lead to neither appropriate nor economical services being supplied.

    NICE typifies the problems with an establishment organisation that cannot deal with the latest evidence and stays rooted to past, flawed perceptions whilst attempting to enforce its main objective - avoidance of expenditure."