Discussion in 'Fibromyalgia Main Forum' started by klarry, Apr 15, 2007.

  1. klarry

    klarry New Member

    Does anyone suffer from Reynauds as I do? Mine occurs several times a day. The trigger is either cold or pressure (if I grasp something too tightly). I get it in both hands, but not all fingers. It is generally short live, thank heavens. When I asked the doctor he said it was part of my fibromyalgia, and that there was little to do except avoiding the things that cause it. Now I dread going to the grocery store, as I always get it in the frozen food section. I don't want to wear gloves but may have to give in.
    If anyone has any tips I would appreciate hearing them. Also are there any medications that might cause this condition? I am taking a nasal antihistamine (Astelin) for my hoarse voice, another fibromyalgia caused problem according to my doctor. I worry that that might be making my attacks more frequent.
    Thanks for the help.
  2. openyourmind

    openyourmind New Member

    sigh--I suffer from reynauds too--

    and the hoarse voice occasionally--my husband said he can tell by the sound of my voice if I am suffering a flare

    reynaud's--I think the only thing you can do is use the gloves, etc and caution

    the meds--do a google on side effects--usually anything that dries up nose may also affect circulation and that could worsen blood flow to hands--I have found most decongestants and cold meds are really bad for me--we (fibro people) seem to have strong reactions to most meds
  3. Greenbean7

    Greenbean7 New Member

    I was diagnosed with Raynauds at 16. I wasn't on any meds in those days so I can't address that issue, sorry.

    At 32 I went to a circulation specialist because it was so bad I frost bit my toes! Lack of circulation caused the frost bite even though I wasn't all that cold.

    Specialist took the blood pressure in my finger, then had me emerge my hand in ice water for as long as I could stand it (couldn't have been more that 30 seconds even though it seemed much longer) and then took the pressure in that finger again. It took 45 minutes for the blood pressure to come back up to where it was before the ice water.

    He put me on a vasal dialator which opens the blood vessels up. Immediately set off a migraine and I wasn't able to take the med long enough to see if it would work!

    Both docs, the one at 16 and the specialist, recommended I move to a warmer climate. Also said if I would swing my arms when my hands shut down it would help. Swinging my feet however is a whole other problem!

    It's the pits when you need to wear gloves to hold onto a can of cold soda! Mittens actually work better, but I'm so clumsy in them!

    From what I've read fibro doesn't cause Raynauds, but people with fibro are more likely to have it. Joy, huh!

    Sorry I'm not more help, but unless you can tolerate the vasal dialators I don't know of anything else that works. I keep my hands in my pockets a lot. Those zippered sweat shirts with pockets are a life (or hand) saver!

    By-the-way, stress can cause it, too. Check what your hands and feet do when you go to the dentist or in a stressful social situation. Cold hands, warm heart translates to cold hands, cold feet for me!

  4. Greenbean7

    Greenbean7 New Member

    Klarry - I bumped this up for you.

    You also might want to do a search on Raynauds (or Reynauds) from the search feature at the top of the page. This has been disucssed before and you might get more info that way.

  5. klarry

    klarry New Member

    I am so grateful to everyone for their advice. I have tried most of the suggestions, although I have not tried medication. Unfortunately I am sensitive to so many meds that I try to keep my intake to the minimum. Since I have Hashimoto's thyroid along with all my other problems, I pretty much am stuck taking replacement hormone for the thyroid. I am also on Evista for osteoporosis. Any one else?
    It does seem that my Reynauds has gotten worse since I was put on Astelin. I can even get it from doing a crossword, if I hold the pen too tightly.
    It is so encouraging to hear from people who can relate to what I am feeling. As the only one in my family with fibromyalgia I get frustrated trying to explain all my medical woes.
    Thanks everyone!
  6. Greenbean7

    Greenbean7 New Member

    I was just happy to see that someone else does the crossword in pen!!

  7. GigglePoet

    GigglePoet New Member

    HI Klarry..I have it to!

    Hugzzz GigglePoet
  8. winsomme

    winsomme New Member

    i too have this.

    i am hoping that if i ever figure out what is causing my CFS it will ultimately help with Raynaud's.

    currently i am looking into this:

    a theory that the bacteria chlamydia pneumoniae could be the cause of some CFS and Fibro and requires long term antibioitc plus other supplements.

    personally i think it is some mix of either bacteria or virus plus toxin overload.

    i will report if i have any success.

  9. stagename

    stagename New Member

    even in your house, where the temperature may be comfortable for you, your hands and feet can get cold. i keep socks and slippers on all the time. when i used to work in an air conditioned office, i wore socks and leather shoes to work in the summer. use boxes, bins or shoulder bags instead of grocery bags, keep a set of thin gloves in the car for the cold steering wheel in spring and fall.
  10. ladybird1

    ladybird1 New Member

    I have it. My right hand is freezing right now.
    I live in Texas. Cold weather naturally triggers it.
    But because Texas is so well air-conditioned, I suffer in
    the warm/hot months as well.
    I wear an arthritis glove to help some.
    I am not taking any meds for it.

[ advertisement ]